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pixiegirl

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Everything posted by pixiegirl

  1. pixiegirl
    I was diagnosed on 9/04 too... most of my family is clueless too and really don't have the drive to figure it out for me... I was pissed about that over thanksgiving but I've come to a far better place about it. Hey its my disease and my issue and they all have their own problems... I decided I can stay mad at my family forever or just do what I have to...
  2. pixiegirl
    Linda.... I hate to say this but I don't think you can go around eating things like frozen dinners unless you have checked the company websites to see if they are gluten free. Amy's makes frozen meals and some are gluten free but they label it right on the front of the package. There are a few companies I think that make Thai and Indian frozen foods that...
  3. pixiegirl
    Its my opinion that very few in the medical profession have much to offer for us Celiac people, even if you get diagnosed by them they are clueless about where gluten is found. I have learned more on the internet then my doctor knows, that's for sure.... I love the various lists like this one, people are so helpful and there are a bunch of good websites...
  4. pixiegirl
    A lot of good advice here, as usual, but I want to add that when you take advice from someone about what has gluten and what doesn't, think about who you are taking it from... a worker in the grocery store is NOT someone I'd trust with my gut. Purdue rotisserie chickens are gluten-free and I spoke to the grocery store manager and the Deli manager to...
  5. pixiegirl
    Oh I made my Manna by Anna in an old bread machine too... mine is an old Panasonic and the mix by Anna is actually too much for my small loaf thing in the bread machine... so... here is what I do: I put it all in the bread machine loaf thing and mix it up just like it says... I put it in the machine and set it on the white cycle which is 4 hours long ...
  6. pixiegirl
    Wow, you're all going to hate me. I've been gluten-free since late Sept. 2004 and I've lost about 8 lbs now, without trying. The major difference for me is I'm not eating hardly any "bread" products. Almost no bread, cake, cookies (yes I know there are tons of gluten-free products). I do have starches.... rice, potato, pasta (very rarely). When I...
  7. pixiegirl
    I had EntroLab testing done and I had both of the main "genes" for celiac... I also showed auto immune reaction as well. Just like you I didn't have any malabsorbtion so I guess I don't have any damage yet. But why push it until I get damage, my health is really important to me so I never considered continuing to eat gluten... what will you do, eat...
  8. pixiegirl
    Hmmm it makes me wonder if it is DH if you are gluten free... I was only diagnosed in the fall of last year and I've had a rash on my foot and butt cheek for years, if I use cortisone they do tend to get better (not gone but better). No one ever knew what the rash was. Then I got diagnosed and did a lot of research about being Celiac and of course...
  9. pixiegirl
    Hi Gina! Welcome to the list.. I think a lot of us have somewhat similar stories in that we have been diagnosed with everything else first other then celiac. I too had the IBS and lactose intolerance thing and my blood work for Celiac came back saying I do not have Celiac. I just didn't believe that because immediately after having the blood drawn I went...
  10. pixiegirl
    Its supposed to ensure the bread doesn't get crumbly and it prolongs its freshness, its got lecithin, citric acid, and other stuff in it. I was told to get it at the Gluten free mall but they are sold out right now so I googled it, just like you did with the muffin rings.. and found some gluten-free dough enhancer at: Open Original Shared Link thanks...
  11. pixiegirl
    I made this bread yesterday for the first time... My bread machine is old and has a very small loaf in it, so I dumped it all in the machine, let it mix and rise in there, then before the bake cycle I took a spoon and took some out (otherwise it would have overflowed while baking). I took the extra and made a small loaf and baked that in the oven...
  12. pixiegirl
    Oh I'm glad I didn't go to the store yet, I was going to do it tomorrow morning, many thanks for telling me about the yeast! I'm try it without the dough enhancer first... thanks so much for the info!! susan
  13. pixiegirl
    Ok I've read here over and over how good this bread is, so I bought some and it came today... well it figures my yeast is too old to use so I'll have to run up to the store for more. However my real question is this... it says to add a dough enhancer (yes it says this is optional but....) what is a dough enhancer? Does it make the bread better? Where...
  14. pixiegirl
    LOL well if you get it and there are any upscale places in downtown houston, let me know! susan
  15. pixiegirl
    I've yapped about Legal Seafoods a number of times here and I'm glad you brought it up again, they deserve the good word. The restaurant is very interested in helping people with all sorts of food issues. I am gluten-free and my daughter has a life threatening allergy to peanuts and reactions to all nuts. Legal is one place we both enjoy going because...
  16. pixiegirl
    La Choy soy sauce is supposed to be gluten-free but I have a reaction to it, I did try some soy sauce from Whole Foods market that said wheat free, gluten free on the label and I did not have a reaction to it... I think the DNA pannel at Entrolabs is at least a couple of hundred dollars, I ordered the whole shebang, along with lactose and all sorts of...
  17. pixiegirl
    Yes I think the bottom line in any restaurant is that you have to ask. The McDonalds I go to they say they never use the fry fryer for anything other then fries. The way its set up, its not even close to the other food, its way in the front of the store buy the cash registers not by the rest of the food so that makes it much harder for a mistake to happen...
  18. pixiegirl
    I'd say if you call a company and they say their product is gluten-free then you can bank on that, the reason that the problem happens at restaurants is because you are asking a server who usually has NO understanding of Celiac, if you were to call the company headquarters you'd get a better response. Most food companies are very worried about lawsuits...
  19. pixiegirl
    I hate to say but by your descriptions of what you are eating I think you are still ingesting a lot of gluten. I've had similar symptoms to yours (less the hospital visits) and a doctor that told me to eat gluten because my blood tests came back negative. Well I tried a gluten-free diet and felt wonderful after the first week, so I gave up on the doctor...
  20. pixiegirl
    Someone in charge of the houston gluten-free group told me there were a number of bar b q places in town that are gluten-free, but I can't help you with the names of them, she said I had to pay for the list of them. It was only $5. so it might be worth it to you but I felt it was very unfriendly to ask a visitor to pay, so I didn't! (shooting myself in...
  21. pixiegirl
    Well someone has to be more expert on this then me, but I've had an unexplained rash on my foot for years and after I found out I had to be gluten-free I did some research on DH. Yes your dermatologist can test for it and if I remember correctly oddly enough they take a small piece of healthy tissue (biopsy I guess) next to or near the DH skin problem. ...
  22. pixiegirl
    I've been eating many of Thai Kitchens soups but after going to their web site, it appears ALL their sauces are gluten-free.... hmmm I find that hard to believe.... I remember the other day looking at one of them in the store and thinking it was probably not gluten-free.. maybe it was because of the soy sauce.. I guess I'll have to try them now! Susan
  23. pixiegirl

    ARCHIVED Red Lobster

    pixiegirl replied to shimma's topic in Gluten-Free Restaurants

    Certainly experiences will vary from restaurant to restaurant and as many people here always say.... eating out will always be a risk... but I think we can decrease that risk by going to very gluten-free friendly places. Best, Susan
  24. pixiegirl
    I hate to say but from what I've read I think the time it takes to feel better is different for everyone. All our systems are somewhat different, tolerate different things and were damaged to various degrees. I've had a similar history as your husband, problems for about 10 years, unexplained rashes, no clear diagnoses. I've switched primary care doctors...
  25. pixiegirl

    ARCHIVED Red Lobster

    pixiegirl replied to shimma's topic in Gluten-Free Restaurants

    I just want you to know that you have your restaurants mixed up.... the restaurants you listed are owned by 2 different parent companies... One, the Outback people are very gluten-free friendly, the other Darden is not. Outback owns: Outback Steakhouse, Carrabba's Italian Grill, Lee Roy Selmans, Cheese Burger in Paradise, Bonefish Grill and Paul Lee...
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