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Lynayah

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Latest Celiac Disease News & Research:

Everything posted by Lynayah

  1. Lynayah
    An update: While my oral dose Miralax helped a bit with the C, it did not lessen the discomfort of being glutened, at least not for me. Next time, I will probably just wait it out. For me, it takes about a week to get to the other side of being glutened.
  2. Lynayah
    Let me begin by saying how very happy I am with the treatment I've received at U of C. Testing: It all depends on the person. I had to do an 8-week gluten challenge first, which left me highly symptomatic. After the challenge, they ordered blood work right away and, if memory serves, they went ahead and scheduled the endoscopy in case the blood work...
  3. Lynayah
    Yes, I compltely understand. As you quoted, my hip pain can be extreme, too. It especially hits hardest in the middle of the night, making sleep quite difficult. FOR YEARS I never knew it was related to gluten. I'm glad to see that your symptoms seem to get better after only about 24 hours. I know 24 hours is a long time, but for many it can take...
  4. Lynayah
    You are very welcome! Sending a hug. Lyn
  5. Lynayah
    Thank you for this post. I've ordereed this book and am looking forward to reading it. Much appreciated!
  6. Lynayah
    What brand? Thanks!
  7. Lynayah
    Please, what brand of pro-biotic do you use? Thank you!
  8. Lynayah
    I totally understand. Actually, considering U.S. insurance and how they deny coverage sometimes, medical costs, etc., it might actually be the smartest thing to do, especially if you are super dedicated to not eating gluten, the same as if it were Celiac (just in case you do have an auto-immune disorder instead of being gluten-intolorant only). I wish...
  9. Lynayah
    Thanks!
  10. Lynayah
    You really need to do all the weeks. I did six after being partially gluten-free, and doc still isn't sure if it was long enough. The gluten challenge weeks, oh my gosh, I was so sick. It was a nightmare. A gluten challenge is HELL. I completely understand what you are going through. It will be over eventually, though, and even thought it might seem...
  11. Lynayah
    I need to check next time I am there. Thank you for the reminder.
  12. Lynayah
    I hear he's also been known to appear at Captain Cook's. Not when I was at Cook's, unfortunately . . . but maybe if you ask for him, if he's around he'll come over. He is such an obviously enlightened, immersed-in-love individual. Just thinking about him makes me smile! Thanks for your post. Always GREAT to be in touch with you, mamaw! You're...
  13. Lynayah
    I am learning that when I get glutened, constipation can be a problem, as I know it can for many. I get horrible back pain in the kidney area that sometimes becomes so severe it mimes a kidney infection. Right now, I have a reaction so intense that raising a leg is almost impossible. Bending? Forget about it! At night, my hips will hurt horribly...
  14. Lynayah
  15. Lynayah
    Great suggestion, thank you. Do you use the Yogourmet starter as well?
  16. Lynayah
    I am buying a new yogurt maker and would appreciate opinions on which brand to buy. I am thinking of purchasing a Yogourmet (currently have Salton, lid is cracked). Thank you!
  17. Lynayah
    I just want to add that while I was at Disney recently, I had gluten-free pancakes and waffles (not sure what brand was used), and I was okay. I prepared the pancakes in a freshly cleaned, white Corning Ware cornflower skillet size casserole, it was large enough to do two pancakes at a time -- Corning Ware doesn't hold gluten from wash to wash, does...
  18. Lynayah
    San Diego Seaport Village - Gluten Free Dining Suggestions Needed I will be traveling to San Diego on business this week -- staying close to Seaport Village. Does anyone have any dining suggestions? Thank you.
  19. Lynayah
    Janet, thank you for so thoughtfully adding my reviews to my initial Disney post! I wish I had thought of it -- I forgot about the earlier post. Much appreciated.
  20. Lynayah
    Glad you posted this. I think I can help. You need to call the WDW dietary line directly. It is: 1-407-824-5967. They will send you a ton of stuff.
  21. Lynayah
    "Wignature" -- is the the name of all the Disney-owned restaurants?
  22. Lynayah
    Chef TJ is now at 'Ohana and the Polynesian Resort. I do not know if he works at Animal Kingdom Lodge any more at all. PS (added later): Your question prompted me to do some online research, and I found this link about Chef TJ. Hope this helps! Open Original Shared Link
  23. Lynayah
    Pamela's Baking Mix: Anyone here get reactions negative reactions after eating, like diarrhea very shortly after? If yes, any idea why? It is gluten-free. I am revising this post. To be fair, I also had two other foods this morning about which I did not think -- one is Imagine Creamy Tomato Soup (labeled gluten-free) and another about a tablespoon...
  24. Lynayah
    So, and excuse my continued confusion, if I understand all this correctly: something like sodium phosphate might have gluten or be manufactured in a plant that may have a cross-contamination issue, yet it is not required to be mentioned on meal labeling?
  25. Lynayah
    A couple quick questions about yogurt making. I'm sure the answers must already be in this thread somewhere, but it will take me weeks to get through all of them . . . I'm looking forward to it, though. Thank you for this thread! What is the best yogurt maker? I have a Salton with a cracked lid and am looking into buying a new one. I've seen some recommend...
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