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Lynayah

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Latest Celiac Disease News & Research:

Everything posted by Lynayah

  1. Lynayah
    Mamaw, your posts are always sooooo wonderful! You've reminded me of a few brands I've forgotten about. Thank you so much!
  2. Lynayah
    For people who ship to your area: Take a look at the food mall here, too.
  3. Lynayah
    The University of Chicago has a gluten-free care package that they send to people recently diagnosed. It is WONDERRFUL! IT IS FREE! Here is the link: Open Original Shared Link Mine came with cookies, pancake mix, sweet and salty items, a shopping reference guide, and so much more. Hope this helps.
  4. Lynayah
    We ALL feel your pain. You are not alone! We have all been there. Heck, I'm STILL there! Do you have a Costco in your area? Costco brand tortilla chips are very good and they're labeled gluten-free, at least they are in my area (Midwest) as of today . . . I was just there this afternoon. Also, in regular stores: Act II Popcorn ...
  5. Lynayah
    Chex ingredients: I remember reading somewhere that tocopherols sometimes have a, I believe it was, wheat germ oil base -- let me know if I am wrong.
  6. Lynayah
    Thank you, Peter!
  7. Lynayah
    Good point. The good news is that you may not have to worry. From what I understand (and those more educated than I, please tell me if I am wrong), foods labeled gluten free or "naturally gluten free" are not necessarily saying they ARE gluten free. Something can be "naturally gluten free" and still be manufactured in a facility that also manufactures...
  8. Lynayah
    Swimmr, Good post.
  9. Lynayah
    Has anyone noticed that if they eat free-range eggs they get a reaction, but not to regular store-bought eggs? (If this has already been discussed here, I apologize -- haven't read the entire thread.)
  10. Lynayah
    I would like to learn more about HLA DQ1 (and DQ3) and their link to gluten sensitivity, and I would appreciate hearing from those who have been tested for it. I am a highly sensitive gluten-intolerant non-Celiac (Very High Gliadin). My DQ2 and DQ8 and biopsy came back negative. All of my symptoms completely mimed Celiac disease (see my signature...
  11. Lynayah
    Yolo, Coincidentally, I also had pneumonia as a baby -- I was not 4 months old, but I was still in a crib. I know because my mother was a nurse, and she somehow talked the doctor into allowing her to set up an oxygen tent over the crib -- promising to watch me carefully, so I wouldn't have to go to the hospital. This story was told many times throughout...
  12. Lynayah
    I guess I am a little confused as to why my body seems to want to hold onto weight when I do not have Celiac. (I am highly gluten-intolorant.) So, if my villi are absorbing nutrients, why does my body still rebel? I've been gluten-free since Sept and had a lot of D for a couple years prior, so I guess that if my body is reading that I have a toxin...
  13. Lynayah
    I am trying sooooo hard to lose weight (the gluten challenge I went through was killer for me, and I gained 15 pounds). Right now, I'm eating mostly whole foods with an emphasis on meats and low-carb vegetables. I also have a cup of fat-free homemade SCD yogurt every day. My body just doesn't seem to want to budge, and it's driving me crazy. I...
  14. Lynayah
    I want to add that I missed most of second grade to to my having reoccuring infections -- had to have a bedside teacher. I am on a quest to find a link between this and gluten. I know there may very well be one.
  15. Lynayah
    I love Redken products and recently called the company for information. They were able to tell me that All- Soft Shampoo has gluten but the conditional does not. I asked about All Soft Velvet Whip -- they weren't sure but said they'd check and get back to me. It took over a week, but they eventually called and said it is gluten free. They also told me...
  16. Lynayah
    Simple: What I'm saying is that many of us all too often blame a product or label as being wrong, when in fact we might be doing something else wrong that causes a gluten reaction without knowing it. If we happen to do it at the same time as trying a gluten-free food, it is easy to assume the food is glutened or the label is wrong. I've made that...
  17. Lynayah
    For those who are not reading the entire thread, I just want to say once again (as posted earlier here), that I went on to discover it was not the baking mix that was causing problem. It was my making other mistakes (things such as using lotion that contains gluten and then putting my hands in my mouth to floss my teeth). Many folks here stressed that...
  18. Lynayah
    Probably . . . the date on the label is often the "sell by" date. Also, if it says "best ued by" that doesn't mean you can't use it thereafter, at least for a time. If you are unsure, you might want to call Bob's and ask.
  19. Lynayah
    rflynn, Yes, I know that feeling all too well. It will get better once you go gluten-free (if not, be sure to tell your doctor). Have a very happy Thanksgiving . . . I know you're not going gluten-free until after . . . know that you will have a lot to be thankful for once you do. In time, you will feel so much better.
  20. Lynayah
    Thanks for the reponse, Yolo. Were you diagnosed with Hypogammaglobulinemia, or were you put on the shots as a preventative measure against disease? Thank you, thank you. I hope more will respond to this.
  21. Lynayah
    Castor oil? That is a new one for me. Did it help? Interesting . . . Paint toenails: Yes! I think a pedicure is definitely in order. What a wonderful way to celebrate - thank you for the suggestion! I'm going to pick a CRAZY color, just for fun.
  22. Lynayah
    Yes, it is worth it to see a doctor. Please do. Others' opinions: All that matters is how you feel about YOU. Do what you think is right. If others understand, fine. If they don't, so be it. Do not worry about them. Come here, and we'll give you all the support you need. Not everyone understands, but we do.
  23. Lynayah
    It was within days for me, too, although because I had so much learning to do, AND because I made some mistakes, it was a couple months before things really started to get better. I am still in the processes (went gluten-free in Sept) and feeling incredibly better all the time. It is different for everyone. Because I am 56, I don't expect my body...
  24. Lynayah
    LOL! It is interesting how reactions happen, is it not? That aside, for me, there have been times when I swore the gluten-free-labeled-food I ate caused a reaction, only to later discover that I maybe had gluten on my hands (hand lotion, for instance) and then, without thinking, put my fingers in my mouth (to floss teeth, for example) . . ...
  25. Lynayah
    Hypogammaglobulinemia - Has anyone else out there ever been diagnosed with this? I took shots for this for years in my childhood and teen years. I was told years back I was misdiagnosed. Now, as I look back, I wonder if the diagnosis was due to problems I was having with gluten. Any thoughts out there?
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