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Beth03456

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beth03456

  1. Beth03456
    My 4 yo son keeps packs of gluten-free rice crispy treats at school for emergency treats. He also loves the fruity or cocoa pebbles bars, which are similar.
  2. Beth03456
    We only have our 4 yo who is gluten-free. My other child is 6 and she usually eats gluten-free but not always. However, we also feed the kids separate from the grown-ups most of the time, so it is easier to keep gluten-free and non-gluten-free things separate. If we all eat together, we usually make everything gluten free (tacos, roasts, chicken and veggies...
  3. Beth03456
    My kids are both somewhat picky - here are some random ideas. We make homemade chicken nuggets and fish sticks using gluten-free breadcrumbs that they like, especially with a little ketchup. Have you tried the Quinoa pasta - its my favorite kind. Does he like french fries, hash browns, latkes, sweet potato fries? My kids like plain thin-sliced chicken...
  4. Beth03456
    My 4 yo has Celiac and my 6 yo does not. The kids eat mostly gluten-free at home, since we cook them the same dinner. My 6 yo eats other stuff at school and sometimes they will have different things. We have a book called Gluten Free for Emily that is helpful in that it shows that sometimes you just can't eat what the other kids have. It is hard, although...
  5. Beth03456
    My 4 yo has been gluten-free for a year and is also very small (3%) for weight. He's gotten a bit taller since going gluten-free, but he's still very short. It really bothers him and he gets frustrated about it. Our doctor encouraged us to give him Ensure or Pediasure to make sure he is getting enough calories. He's 4 1/2 now, and does seem to have gained...
  6. Beth03456
    If you're close to Montgomery County, we see Benjamin Enav who is with Lynn Duffy's pediatric GI group. We go their VA office. He sees quite a number of Celiac kids. He did our son's scope and was very nice. We've also met with their nutritionist.
  7. Beth03456
    Yeah, its hard. My 4 yo keeps asking when he can go back on his wheat diet, and its been over a year now. Its just so hard sometimes.
  8. Beth03456
    We provide my child's preschool with homemade playdough now. We also are willing to substitute as much as possible for any pasta and cereal they use in art projects. We made up a sheet for all the teachers similar to the above list to let them know what is expected like washing everyone's hands after meals, not sharing food, no playdough, etc. I think...
  9. Beth03456
    You could also do brownies. I haven't tried these yet, but here is a Whole Foods recipe for brownies that has no flour in them - they use black beans instead. Open Original Shared Link If you wanted, you could add dairy free orange sherbert for brownie sundaes. Would look especially good for an October birthday. My non-Celiac DD used to not like...
  10. Beth03456
    My son had just turned 3 when he was diagnosed. He had been very tired all the time prior to that, and dropped his nap altogether within 6 weeks after going gluten-free. He seemed to have lots more energy in general - less reliance on the stroller and more interest in walking/scooting. Also he started growing a bit within a couple months - went from 1...
  11. Beth03456
    I hear about moms with Celiac who feed their families non-gluten-free food. Right now, I don't allow my son to touch regular pasta, bread, play-doh, etc. I admonish my older child to not touch her brother while eating, to wash her hands, etc. I'm just wondering what that magic age is where you feel like a Celiac child/teenager is responsible enough to...
  12. Beth03456
    There's Pete's Apizza, Austin Grill, Hello Cupcake, Jaleo and Zaytinya. All either have gluten-free options or understanding staff.
  13. Beth03456
    My son was also asymptomatic, except that he didn't grow or eat much, and slept a lot prior to diagnosis at age 3. We don't know if he gets gluten now or not - he's never gotten sick as far as I can tell. He occassionally asks when he can stop being on a gluten free diet.
  14. Beth03456
    My child attends a private school and they bought the playdoh for the class, or made it themselves, or sent out gluten-free playdough recipes and asked parents to make it per that recipe. Ours doesn't supply meals. We have an annual meeting with the teachers right before school to go over how to work with our child and his lunch/snacks. Basically, they always...
  15. Beth03456
    I think the likely answer is yes. I don't think the Celiac Panel gives many false positives. However, they generally do an endoscope as additional support of the blood test. Our blood test (just the IGA TTG) was positive and the endoscope was iffy and they said that it therefore supported the blood test and that my son (also 3) had Celiac. Go...
  16. Beth03456
    My son is the same way - no symptoms and he didn't grow for a year and was then diagnosed. Its hard to know if we have missed something or glutened him accidentally. As a result, we tend to be pretty cautious because we don't feel there is any ability to have trial and error. He could be having some sort of mental/behavior gluten reaction, but it could...
  17. Beth03456
    We generally get the pre-packaged deli meats, just to avoid potential cross-contamination from the counter. Also my kids like the Hormel pepperoni as a snack.
  18. Beth03456
    My son was diagnosed at age 3 after not growing between ages 2 and 3. Was at around the 3% for height and weight. He's been gluten-free for a year now. He grew several inches and is now at the 8% for height. He went from wearing 24 mo. to 4T clothes. His weight hasn't increased that much though in the year since diagnosis. We are now giving him Pediasure...
  19. Beth03456
    My son was diagnosed through IGATTG with levels over 100. Six months later he was re-tested and the number was 3. So obviously it takes less than 6 months for some. I'm sure different people and kids, especially with different ages and weights, react at different speeds.
  20. Beth03456
    My husband makes homemade chicken nuggets that look more like McDonald's ones. He buys ground chicken, forms it into a log and then freezes it. Then he slices off nuggets, coats with rice flour and bakes them. I realize its labor-intensive, but my kids eat them. Also, I didn't see you mention if he would eat hamburger. My celiac disease son loves...
  21. Beth03456
    Have you looked to see if there are any yahoo groups for adults in your area? In my location, the ROCK group isn't very active, but there is a metro-area yahoo group that organizes potlucks, meetings and dinners. I think it would be beneficial for her to meet anyone, including adults, with Celiac Disease so she doesn't feel so different. Also, the most...
  22. Beth03456
    We have also found gluten-free rice crispy treats to buy at Whole Foods. They come in that all-important shiny wrapper that our pre-schooler considers important. We send them as emergency treats to school.
  23. Beth03456
    My son was 3 at diagnosis and is coming up on a year of being gluten-free (yay?). He was tested at 6 months post-diagnosis and his IGA-TTG was back in the normal range. However, he still poops a lot during the day - usually 3 times. They are solid and generally normal looking, so I assume its normal for him. We have never taken him off milk, as his doctor...
  24. Beth03456
    My non-Celiac Kindergartener didn't like sandwiches except peanut butter which isn't allowed, so I used to just send in yogurt, crackers and fruit for her most days. I also send her pasta with sauce in a thermos sometimes. She didn't want a lot of variety like I would. My Celiac pre-schooler likes sandwiches. We were making bread from scratch, which...
  25. Beth03456
    My son was diagnosed at 3 and was at the 5% for height and weight. He did gain some weight in the six months following, but he is still close to the 5%. He is about 29 lbs. The GI doctor thought that he may just be small, as my husband and I are both short, and that he is therefore just following his genetic destiny versus having an additional disorder...
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