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T.H.

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Everything posted by T.H.

  1. T.H.
    I had someone reply to a post of mine in the forum that might address just this topic! I'm not sure what the research was, but the poster told me that recent studies that were trying to look at damage vs. reactions, in celiacs, found no correlation. Some people had severe reactions to gluten, some people didn't, and it didn't seem to indicate how much...
  2. T.H.
    I don't know that I've quite been through this, but...something connected, possibly? I can share, anyway! :-) I was slowly heading towards vegetarianism - I was eating chicken, but little to no other meat, after slowly phasing out the others. My husband was doing the same. That all changed once I went gluten free. Now, if I don't eat meat, I'll be very...
  3. T.H.
    For the most part, I do best without taking vitamins except from my foods. If you were looking for vitamins, I would pick out a few different gluten free brands and alternate with them. Taking the same brand every day, all the time, as a celiac person? It's a good way to develop an allergy to some of the ingredients in the vitamins, unfortunately. However...
  4. T.H.
    So sorry to hear you're having trouble! My thoughts would be this: 1. If you had such severe malabsorption, it makes total sense that you would gain weight now that it's gone. You're body HAD to have already gone into starvation mode, and from what I understand, it'll stay there for a while. Your body conserves better, uses less calories, because it...
  5. T.H.
    It definitely sounds like food issues of some kind, oh yeah. And if it's celiac disease? Folks with this gene are more prone to OTHER food sensitivities and intolerances, so I'd second the food journal. If your little one is intolerant or sensitive, as opposed to allergic, there's no other way to figure it out EXCEPT the journal. They don't have reliable...
  6. T.H.
    My brother had no visible damage, but the biopsy reported pretty extensive damage. However... According to my doc (most of his patients are celiac disease folks), children's intestinal damage can be very 'patchy.' Not consistent throughout, like most adults are. So it's very easy to miss the damage, even with a biopsy. Second thing: if you have...
  7. T.H.
    My daughter had enormous dental problems as a child. No sweets or juices, but by 18 months old, she already had 22 cavities, and we were like you. We used flouride and brushing and such, and she would still get about a new cavity a month. It was awful. She was just diagnosed last year, after she turned 11 years. My son had the short stature and pudgy...
  8. T.H.

    ARCHIVED Should I Even Bother?

    T.H. replied to StephE's topic in Doctors

    I think you should probably keep searching for a good doctor, if you can - but I'd troll the local celiac groups, see if they have anybody they would recommend. The reason? 1. about 20% of adult diagnosed celiacs regain their full digestive abilities. Most of us will be vitamin deficient and need supplements to actually get enough vitamins. But you need...
  9. T.H.
    I only got diagnosed last year, and I had kind of assumed that people would have the same sensitivity to gluten, if they had celiac disease. It's only been over the last few months, when I've been talking to other celiac folk in person, that I realized that a lot of other people do not seem to have to do what I'm doing. I was following all the advice:...
  10. T.H.
    If it helps in talking to your family: the current recommendation, based on current research, is that ALL members of your family that are within 1 degree of separation from the celiac person should be tested for celiac disease(parents, siblings, children). This is because the newest research is showing that if you take a population who are 1 degree separated...
  11. T.H.
    OH, regarding your middle daughter! Has she checked out fructose malabsorption? It involves veggies, grains, and fruits that cause gut issues, and it's not inherited, but seems to be caused. They don't know everything about how it gets started, but there does seem to be a correlation between it and people who have had gut problems, like IBS and celiac disease...
  12. T.H.
    It IS genetic, but at the same time, it's increasing in the population, so doctors aren't quite sure how that's working. However, if you have any family history of auto-immune disorders, specifically MS, diabetes, Hashimoto's disease, or hypothyroidism, that can put you in a higher risk category. There's definitely a chance he could have it. And even...
  13. T.H.
    Sadly, you've pretty much hit the nail on the head: the only way to make sure it's safe is to call the company. The 'made on equipment/in a room that also processes wheat' is actually a completely voluntary label on the part of companies - no legislation about it - so they never have to put that on the label at all. We're forced to ask about it. :-( ...
  14. T.H.
    Migraines could be a reaction to food that's not an allergy, but just a sensitivity. Kind of like your gluten experience - just because the test hasn't found an allergy or disease that's causing an issue, doesn't mean the food isn't affecting you. Many people I've met who are sensitive to peanuts get migraines from them, myself included. When I've had...
  15. T.H.
    Oh, I'm so sorry to hear that he is having a hard time! First, as an aside, have you been tested for the disease, too? there's a 1 in 22 chance that you have it, if your father does (my father was diagnosed, and 3 of the 4 family members we tested afterward came back positive, even though none of us had symptoms). On to your father - when I was diagnosed...
  16. T.H.
    Just some ideas to pass along, that might help. To help explain why it's a big deal: I've compared it to diabetes before, since that's so well known. It's helped, sometimes, if I kept it simple. I basically said this: --celiac disease is not an allergy, or a sensitivity. Celiac disease is an autoimmune disease just like diabetes. --both diseases involve...
  17. T.H.

    ARCHIVED Need To Vent

    T.H. replied to miaryan's topic in Coping with Celiac Disease

    Congrats on the happy gut, but sorry about the headaches! Just a thought - have you checked out any other food issues? I never knew I had any, but AFTER I went off gluten, I suddenly started getting food issues. Peanut products gave me migraines, citrus gave me earaches, sugarcane made me feel like I was so exhausted I wanted to collapse. Maybe something...
  18. T.H.
    Oddly enough, your name made me think of something you might want to add to your test list! :-) parasite infections: they can cause all sorts of gut issues, they can be affected (positively and negatively) by what you eat, and a lot of doctors don't test for them. If you had one along with other food issues, I wonder if that might help explain some...
  19. T.H.
    You might be able to offer this service to companies as well as individuals. I was at a Whole Foods grocery store recently and they had just added a 'gluten free' consultant to their employees. She went through all the items in their store, knew what all their gluten free stuff was, gave a 'gluten free' tour once a month for the store - it was great, and...
  20. T.H.
    Just for another idea aside from gluten withdrawal? It could be another food that you're eating more of. I know when my daughter went off gluten, we increased some foods that she hadn't eaten as much of before: corn, rice, etc.... After the first month, she was feeling worse, especially mood-wise. What we've discovered is that if she gets more of...
  21. T.H.
    First - it'll be okay, promise! :-) Yes, it's freaking overwhelming at first; you have to read all these labels and research and that, frankly, sucks. But once you figure it out, it's very do-able. You learn some new recipes, get a few different products, and life goes on about the way it did before except now you get to add 'check your food' to the place...
  22. T.H.
    One thing I read, when I was doing the same thing to my kitchen, helped me a lot in figuring out what and how to clean. It said: think of gluten like paint. You can't steam it off, you can't sterilize it off, you have to scrape and scrub it off. Stainless steel, you can probably scrub if there's not corners that you can't get into. Wood - I sanded...
  23. T.H.
    What timing! I just found a site that does exactly that - lets you search for recipes while avoiding allergens - like three days ago! They have about a page and a half of allergens to pick from, so they likely have all your allergens you need to exclude. It's here: Open Original Shared Link Millet and quinoa are fine for gluten-free diets. Breathing...
  24. T.H.
    I'd second the fructose malabsorption as a possibility. We've been checking into that recently. Sue Sheperd in Australia is a good resource on the most recent information about that on the web right now (this condition is very new; the test for it has only existed for 2 years now! So many docs don't know a lot about it yet). There's also a gazillion different...
  25. T.H.
    At first, label reading consumed most of my time and felt like the hardest thing. THEN it was trying to find recipes we could use. And I would say that the latter has continued, especially as we've become a family with multiple food issues, too. Trying to find stuff that took all allergies and issues into account was a very time consuming process. I would...
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