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T.H.

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Everything posted by T.H.

  1. T.H.
    Sounds about like how I was! I was diagnosed in August 2009. I got very careful about gluten, very fast, too. I had the allergy tests which only showed a few mild allergies, no other auto-immune problems or other organ issues. I had brain fog, no energy, pain, and nausea, constantly. Dropped weight like mad: I'm 60 pounds down from where I was in August...
  2. T.H.
    Convenience, both in time and in money - definitely in related to the spontaneity side of things. I'm very sensitive to the gluten, so even most 'gluten free' items have more gluten than I can tolerate. I've reacted to gluten-containing soap residue on dishes, best we can tell. It's really pathetic. Add a couple food allergies on to that and it...
  3. T.H.
    Also, re: gluten intolerance? That can mean two things, depending on who you're talking to and how they refer to it. Celiac disease is sometimes referred to as gluten intolerance, which the doc could have tested for (although how accurate it would be while you are off gluten, even for 2 weeks, well...). But if you are gluten intolerant as in 'you cannot digest...
  4. T.H.
    Re: a replacement for popcorn...I may be able to help with that! Well, sorta. If you google popped amaranth, that might help in a pinch if get a popcorn craving and you do find that corn is bad all over. The grain is teeny tiny, but you can pop it a Tablespoon at a time in a hot pan or skillet. I haven't tried it with butter, but the taste is pretty...
  5. T.H.
    I hope the improvements are just spectacular for you! I know for myself, my memory, emotional control, and depression improved significantly on a gluten free diet. I also had joint and muscle pain and that improved significantly as well. On this gluten free path- which sounds a little cheesy, but hey, I'm leaving it in - I've been amazed how many things...
  6. T.H.
    For anyone who wants to add the B12 supplement, this site had a list of companies that are supposed to have corn free vitamins (short list, sigh) Open Original Shared Link
  7. T.H.
    If you're staying away from corn by avoiding iodized salt, then yeah, you'll want iodine from somewhere else. To my knowledge, yogurt and eggs are NOT good sources of iodine. Sea weed and kelp, oh heck yeah, those are great. Fish, that's a good source, too. Also, if you see vegetable and fruits sources of iodine listed (which I've also seen on the web...
  8. T.H.
    ha, oh that's too funny that you ordered the book. From what we've tried, I can tell you that the amaranth crackers aren't too bad, if plain. The teff crackers were a bit dry, but if you added some sweetener and a little moisture, they didn't make bad cookies. My kids can have peanuts, and peanut butter went well with them, too. Teff waffles were okay...
  9. T.H.
    Sympathy hug! My daughter was the same way at 18 months - she needed 4 crowns and 22 fillings! 0.0 We didn't know she was celiac at that point, and her teeth were literally rotting in her mouth, even when she had flouride supplements and no sugar and constant brushing, she would get new cavities every 2 months or so. They were large enough I was the...
  10. T.H.
    Hope the nutritionist will help! Also, a site I found when our family turned out to have multiple allergies was this: Open Original Shared Link When you make a free account, you put in what allergens you have - the list is more than a page long - and when you search for recipes, it will avoid your allergens during the search, and tell you some ingredients...
  11. T.H.
    What does he say eating bland foods will take care of? I was wracking my brain and couldn't think of anything.
  12. T.H.
    You know, there has just gotta be something about going gluten free and what it does to us, I swear! I used to have mouth and joint pain, muscle cramps, low energy stuff all the time - that was my set of celiac symptoms. But I never had any gut issues at all. My son always got the mouth sores. Now that I've gone gluten free, I get the D and GI stuff...
  13. T.H.
    Oh, interesting! Do you know if it has a cellulose capsule or anything else added? I forgot to add sea weed completely. Doh. LOL, and I eat the dulce stuff all the time.
  14. T.H.
    Okay, phew...you've got a lot of advice, awesome! One word on your husband. Does he eat gluten and Do you kiss him? If the answer to both of those is yes, that could be your gluten source. I've done it myself! Also, if he's wondering why washing hands or showering might be a big deal? Ask him how he'd feel if you came home from work coated in raw cow's...
  15. T.H.
    An interesting note on safety of grains. Wheat, rye, barley, oats, rice and corn are the only grains that have actually been rigorously tested for celiac disease safety. All other information on grains and similar plants, last research I read, is based on assumption of safety, but no actual studies. So Teff, amaranth, quinoa, job's tears - none of...
  16. T.H.
    Sadly, I wonder if there really IS a way to handle it with tact. It might come down to a choice between tact and your children's health, and I'm sure you'd choose one over the other. However...one idea for possible easy resolution? This is based on very little information, I'll admit. Just my impression of your in-laws, from your description, seemed like...
  17. T.H.
    When I first started all this gluten-free stuff, I found out pretty quickly that I couldn't have corn. Then it was rice, then buckwheat, then sorghum...the list goes on. Reading on the forums here, it seems like I am not alone in having to avoid at least one other grain on top of gluten. I would love it if all doctors were knowledgeable and completely...
  18. T.H.
    Latest I heard was 'no,' although some people might feel that the risk is acceptable. The change, I understand, is that they no longer have a dedicated gluten free line for their chocolate. They now have a chocolate that has barley in it on the same line, although it is cleaned in between different chocolates, of course. There's a forum discussion post...
  19. T.H.
    If it's not an allergy, then it must be in my head, right? Ugh. I've been talking with friends about my reactions/allergies and such, and a few things have cropped up numerous times. How real can these actually be? No one else has issues with foods that AREN'T allergies, right? If they were, doctors would be talking about them; we'd KNOW. I...
  20. T.H.

    ARCHIVED Foooood!

    T.H. replied to mandaree's topic in Coping with Celiac Disease

    I'd question the LEAP tests, as well. I've heard not so good things about it, sadly. For me, after going gluten free, my body went kinda schizo and started reacting to everything. My docs don't think it's an allergy, but I DO react. However, this type of reaction seems to fade with time, for most people, if they stay away from the offending foods for a...
  21. T.H.
    I had a very similar experience in the Tucson area in Arizona with our own Celiac Guru, LOL. My first Gi was useless. He did the tes, told me it was positive, gave me a dietician's name, and it was adios, T.H. I went and checked with our local celiac group for a GI doctor their members recommended and that's how I found the GI I go to now. HE did everything...
  22. T.H.
    Oh yeah, definitely a change for the better! Stress, anxiety, anger levels all way down. Depression pretty much gone. And I noticed the same...hmmm...mellowing, I suppose I'd call it. Things that I used to get up in arms about are much easier to cope with now, I don't feel as passionately opposed, or rather, even if I have a problem, I feel more able...
  23. T.H.
    Have you checked out Fructose malabsorption, as well? It probably wouldn't be the only problem, but it involves a LOT of foods, fruits, veggies, and grains. Might not be anything, but a quick look at a sample diet would likely give you an idea about whether the problem foods for this condition are problem foods for your little one. The following site...
  24. T.H.
    I felt much worse on a gluten free diet than I ever had on one, though I had a definitive celiac disease test results. My doc said that it's pretty common to have OTHER food issues on top of celiac dieseae, and they often flare up when you go gluten free. Or you notice the symptoms more. A food journal, and eliminating the foods that you seem to notice...
  25. T.H.
    Okay, this one's a bit out there, but what the heck. Have you checked out any homeschooling groups? There is a small sub-group within homeschoolers that involve children who have food allergies/environmental issues that the school wasn't able to cope with well. Some are celiac, some have other issues, but the concept of having to be careful about food...
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