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BlessedMommy

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Latest Celiac Disease News & Research:

Everything posted by BlessedMommy

  1. BlessedMommy
    After my hospitalization, he just said, "Stay away from gluten, but small amounts probably won't bother you." (as if, a person who has just had a TIA and been unable to speak correctly really wants to see what threshold of gluten could cause that again )I'm not sure how much he really knows about things, although when I first brought in my photos of my...
  2. BlessedMommy
    My decision at this point is that we're going to order genetic testing. If my daughter doesn't have the genes for celiac, we're not going to bother with the whole discussion with the doctor. If the leading celiac researchers say that it's not possible to have or develop celiac without the D2 or D8 genes, then I'm going to consider that a "rule out" tool....
  3. BlessedMommy
    I'm probably going to have a conversation with my doctor about reintroducing gluten or doing gene tests. *sighs* Really not looking forward to this one....my doctor is a real minimalist, which is good in some senses, but I strongly doubt that he will want to order celiac testing, especially with kids who are basically healthy, other than eczema. (my daughter...
  4. BlessedMommy
    squirmingitch, just curious how did you get a DX months after going gluten free? Was yours just a fluke or do lots of folks get DH DX'ed without eating gluten? I'm guessing that after over 4 years of being gluten-free, I would have slim to no chance of getting a DX, but I'm curious anyway.
  5. BlessedMommy
    We ended up going to BD's Mongolian Grill on our trip. Yum!
  6. BlessedMommy
    This wedding was a small low key wedding and the food was coordinated by the groom's sister. I ended up just munching on the snacks that I brought along and no one really looked at me twice, because: 1) my snacks were similar to the appetizers at the wedding 2) I had to run in and out a lot with my toddler.
  7. BlessedMommy
    Do you wash the bags after use? Or are they disposable?
  8. BlessedMommy
    I would like to buy a small toaster for use on road trips, since rather obviously, I can't use any toasters at any place that I stay. Does anybody have a recommendation for a good quality, but very small toaster?
  9. BlessedMommy
    Are all punches and juice gluten free? I went to a wedding today and I actually ended up eating or drinking nothing at the reception (other than water from their water pitcher) just to be safe, but I considered pouring a glass of punch. Is it safe to drink juice/punch without reading ingredient lists?
  10. BlessedMommy
    So, IrishHeart, did you go the blood test and endoscopy route or did you pair your symptoms with your double D2 genes and then try the gluten-free diet? (Just wondering, based on your sig?)
  11. BlessedMommy
    Looks like according to University of Chicago, celiac can't develop without the D2 or D8 genes. So it does sound like they could be used as a rule out tool.
  12. BlessedMommy
    I agree that gene tests are not diagnostic, but it sounds like they might be a "rule out" tool?
  13. BlessedMommy
    They are not gluten free in the sense of being 100% free from contamination or sneaking things on the side and also they eat things that should be gluten-free but that haven't been verified as gluten-free. So they are probably closer to "gluten light." But even being 95% gluten free isn't going to work for blood testing, since you have to eat gluten...
  14. BlessedMommy
    It also occurred to me...there is a very celiac knowledgeable doctor not very far away from this. This doctor will sometimes diagnose celiac without the normal tests, in certain situations of extreme symptoms, etc. (probably genetic testing too, I'm guessing) I wonder if I should go to this doctor and see if I can get a celiac diagnosis from her and then...
  15. BlessedMommy
    but our doctor really doesn't know a lot in this area and I really don't think that he will be very helpful. After I had my gluten induced TIA, he told me to stay away from gluten, but that "a little bit probably won't bother you." I would like to work towards pursuing a DX for my 7 year old daughter because there's not a chance in the world that she...
  16. BlessedMommy
    I like Seventh Generation products. Their baby lotion and their baby shampoo/body wash are both gluten free and say so on the label.
  17. BlessedMommy
    I totally understand your excitement! The VitaMix was one of the best kitchen investments that we've made. Since we make most of our food from scratch, having quality tools is very helpful.
  18. BlessedMommy
    Yes, it is a relief. It's so much easier to cook when I'm not worrying about CC the whole time. Easier on my hands too! (I used to be constantly washing my hands when making my husband's work sandwiches!)
  19. BlessedMommy
    It's so nice to have a supportive community to provide feedback! I've learned so much since coming here.
  20. BlessedMommy
    I think that some places with names like that can have safe food, it just depends. I've heard good reviews of Old Spaghetti Factory and Olive Garden. And yes, we're going to Akron, OH, so there are definitely other options. They have an Outback Steakhouse there and up further north, closer to Cleveland, there's a California Pizza Kitchen.
  21. BlessedMommy
    One unlikely place where gluten hides is in salad dressings. Fillers, thickeners, vinegars, and soy sauce. Always verify gluten-free status of salad dressings before using.
  22. BlessedMommy
    Also, if you have cast iron pans, putting them in a self clean cycle of the oven (which gets up to 900 degrees) will burn off any gluten. Then re-season them and they should be safe for use. Don't forget waffle irons! It's pretty much impossible to get the gluten off of a used waffle iron. Flour sifters should also be replaced.
  23. BlessedMommy
    It is great! And muffins would be a great idea, you can definitely do glazed muffins!
  24. BlessedMommy
    Yikes, I just read through a whole bunch of reviews about Macaroni Grill cooking and preparing gluten-free pasta/food very sloppily, to the point where people found whole wheat pasta mixed in with their gluten-free pasta. There was even one review stating that they often bring out gluten pasta when you ask for gluten free and one person was rushed to...
  25. BlessedMommy
    This is one of my favorite baked doughnut recipes. I make it gluten-free by substituting gluten-free flour mix for all the flour and I also make it dairy free. I made up several dozen of them and took them to a fall festival and people really gobbled them up! One kid commented that they tasted better than the regular fried doughnuts. http://www.preventionrd...
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