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lbsteenwyk

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    I am a registered dietitian who works extensively with celiac patients. I'm heavily involved with 3 support groups, one adult group that I direct, another that I serve as nutrition advisor for, and the local chapter of R.O.C.K. My father has DH and my 4 year old daughter has CD, diagnosed by symptomatic improvement on the GF diet.
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  • TinaMarie

    TinaMarie

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  1. My 4 1/2 yr old takes takes her own snack every day. We attend a preschool in which all the children provide their own lunch and there is a no food sharing policy; so that works out well. They do provide snack, however, and it's almost always gluten. We always bring our own, even if the school snack does not contain gluten. The coop arrangement makes...
  2. I'd say the "basic" is her original rice mix: 2 parts rice flour 1/3 part tapioca starch 2/3 part potato starch I always use brown rice flour in this mix. I prefer the 4 bean mix for most recipes, especially conversions; but I still use the rice mix in some of my recipes. I keep both mixed up in my refrigerator.
  3. Research in 2003 showed that 1 in 22 first degree relatives will have celiac disease. That means if you have celiac disease your child has about a 20% chance of having the disease as well. I know a woman who has 7 children - all tested positive for celiac disease through blood work.
  4. The Manna from Anna (they've changed their name to Bread by Anna or something similar) makes 2 loaves in a bread pan in the oven or one large loaf in the bread machine. It is expensive, but truly an excellent bread. I use the Gluten-free Gourmet Bakes Bread all the time; some of my favorite recipes: Sweet Potato Cranberry Bread, pg 112 - I don't...
  5. You can purchase gluten-free oats from: Open Original Shared Link orOpen Original Shared Link. Our support group has made bulk purchases from both companies and our members have been using their products without problems. Of course they're not cheap; both companies will do special pricing for you if you have a large enough order.
  6. Blood tests for celiac disease in children under 2 years are highly unreliable; your son should still have the full panel, but expect them to be negative or inconclusive. You will probably get a more accurate diagnosis from a duodenal biopsy. I see you have a ped GI appt monday; make sure the GI knows what he's doing - he/she should be geting 4-8 biopsies...
  7. The FDA requires that the source of HVP and HPP be disclosed. Sometimes this disclosure is in the "contains" statement at the end of the ingredient list. Or it may be listed directly after the ingredient. Most HVP/HPP comes from soy, but it can come from wheat. MSG is gluten free.
  8. There is an active celiac support group in Charlotte. Here is their website: Open Original Shared Link Please note that Dr. Peter Green a well-known celiac expert will be speaking on May 13. Last year they had Ivor Hill speak and I went to hear him. Unfortunately, I won't be able to attend Dr. Green's talk.
  9. My guess is this was a TTG - the most accurate test for celiac disease. Different labs have different normal/abnormal parameters, so it is best to confirm with your doctor which tests were done. You should get a copy of the lab results for your files anyway.
  10. Welcome to the board! Good for you for being so assertive with your child's physician! Doctor's can be quite hard-headed, but your case illustrates that they certainly can be wrong, especially when it comes to celiac disease!
  11. With a positive test in your son it is quite possible your daughter has celiac as well. Tests can be inaccurate, especially in children under 2, so I would not discount celiac disease based on her test. It's unfortunate your in-laws aren't on board with this. What does your husband think about putting her on the diet? Your in-laws may have a more positive...
  12. Centrum Multivitamins are gluten-free.
  13. Bakerprincess: Welcome to the board! I have a 4 year old daughter who is also quite thin, though not as thin as yours. My daughter weighs 36 lbs and is 42 inches tall. Just in the past 6 months she has gained 6 lbs. Like your daughter, she is a VERY PICKY eater. I have torn my hair out trying to get her to eat more. Here are some of the things...
  14. We chose a daycare where all the kids bring their own lunch and they have a policy of no food sharing. We have never had a problem. They do provide morning and afternoon snacks for the kids, but I provide my child's own snack. Having a different snack has not been an issue. I allow my child to have juice at snack time. My advice is to find another daycare...
  15. This is regarding the yogurt question - Many people with newly diagnosed celiac disease are lactose intolerant, simply due to malabsorption caused by the celiac disease. When the intestine heals, the lactose intolerance may resolve too. So, I would take your son off dairy for 3-6 months and then reintroduce dairy slowly. Start with lower lactose products...
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