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beebs

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beebs last won the day on December 2 2011

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  1. icon Auldtwa reacted to a post in a topic: projectile vomiting when glutened
  2. beebs
    Last time I ate a full gluten meal, 6 wreks after going gluten free, this was 9 years ago, within 45 minutes I was projectile vomiting, then bile, exrutiating belly pains, cold sweats etc, taken to ED. I am very careful with gluten now as I react badly to CC, but don't have that kind of severe reaction to it.
  3. beebs
    So we put him gluten free after the negative bloods, we didn't want to push for a biopsy unless we had a bit more evidence. Belly pains stopped 100% . He has just gone back on gluten for a challenge and yep, belly pains are back with foul stools. I rang the coeliac society, and they said the new test they are working on that would only require 3 days of eating...
  4. beebs
    I have EoE as well! Stupid disease, it really is horrid!
  5. beebs
    You're story sounds like mine, expect my mother took me to specialist for years and they all thought she was "over involved". But yeah, symptoms as a child, always feeling ill, always vomiting, chronic nose bleeds, ulcers etc. I was only after she as diagnosed at 65 that we started looking at me. Hindsight is amazing isn't it?
  6. beebs
    I've since found out that the stomach acid not being able to swallow thing is due to Eosiniphilic Esophagitis. They are co-morbid conditions, and there are a few people on this forum who also have both.
  7. beebs
    I'm not sure why, but red wine seems to be very bad for me. I can't work out why, I am fine with whites, champagne, cider, other spirits. But for some reason, if I have a couple of glasses of red I will puke all night long. I don't think it is gluten related, but I'd love to know why it happens!
  8. beebs
    Yes, I started getting episodes of small bowel intussusception (which is a life threatening emergency) the last time I had it was after going gluten free for 6 weeks and then going out to dinner with friends to a Vietnamese and deciding I didn't want to be "one of those people", so I shared the same food as everyone else, and within 45 minutes I was projectile...
  9. beebs
    I know this is an old topic, but i have both EoE and Celiac as well. No food allergies at all though, my specialists (who are doing clinical trials with EoE) also say they see a lot of people that don't have allergies, but that it may also be caused by intolerances.The weird thing is one of my main triggers for EoE is gluten/wheat.
  10. beebs
    I've never come across a cider with gluten in it. Alcoholic ginger beer however is a different story, I haven't found a gluten free one yet!
  11. beebs
    My 3.5 year old complains of stomach aches multiple times a day every day and it has been going on for months, he has had a negative coeliac panel, but is positive DQ2. Just wondering if anyone else's child has had just stomach ache and they turned out to be celiac? I have celiac, as does my mother, suspected in my (deceased - Bowel cancer at 45) grandfather...
  12. beebs
    I am trying to get into a GI asap for testing of my little boy, who has had issues for years and years. He had a biopsy when he was 18 months which was borderline and not enough for a diagnosis because he had projectile vomitting, bad poos an severe reflux his whole life. Fast forward to now and he has been having chronic belly pains for the last 6 months...
  13. beebs
    Wow, he had a very bloated tummy didn't he. Sounds so much like what my son went/is going through - over the last 4 years.
  14. beebs
    Thansk for your responses, and thanks nvsmom for the info on the marsh scores. Well, I think we are on the right track, the kids have only been gluten free for a week, went to a cafe today and we let DS have a burger, didn't even think about gluten to be honest. I forgot all about it. Within an hour he was white as a sheet and complaining of belly pains which...
  15. beebs
    He is one of the best GIs in the country, so I am reluctant to leave him. But they redid his bloods recently before he was gluten free and they showed up negative again. Which really, my bloods have always shown up negative and I am deffo coeliac - so I don't really trust the bloods anyway. What does Marsh 2 changes mean in terms of coeliac? Can it...
  16. beebs
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