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Everything posted by Mosaics

  1. First of all, you need to change your eating habits for your children. They need to learn to eat right and they will learn by your example. Having to feed children three meals a day should force you to broaden your eating horizons. Your children won't be healthy eating junk all day. I know it is tough to change eating habits, though. I've had a hard time with that, too, although my diet has always been pretty varied. You can get good gluten-free bagels (Kinickinick sp? brand comes to mind). I eat Van's gluten-free frozen waffles for breakfast almost every morning, but you can make things like grits, bacon, eggs, etc. In my experience, lunch is the most difficult meal because I grew up eating sandwiches for lunch. Now if I want a sandwich, I have to bake bread first because I can't stand the storebought rice bread that is available to us. I use the Chebe bread mix and buy it by the case on-line. It's quite a bit different that regular bread, but you get used to it. Otherwise, think ahead and have the makings for simple meals on hand. You probably know this, but you need to have your children tested, too. celiac disease is genetic. Both of my children inherited it from me and three of my mother's four children have it (including me). Even though celiac disease sometimes affects our reproductive systems, it sounds like you don't have those problems, so I wouldn't be too worried about having more children. Just know that you have to maintain your gluten-free diet so that your baby gets adequate nutrients from your body. I had no problems with my pregnancies either and I had healthy babies. But then, my celiac disease symptoms didn't start showing up until after I turned 40. My advice to you would be to just read as much as you can about celiac disease and the gluten-free diet. Celiac.com is a great site for information and it even helps just to read the blogs or discussion forums.
  2. Too Busy

    We've been working on our farm and trying to get the house ready to move into. The remodel took longer than expected, mostly because we found termite damage when we took down the thirty year old paneling and had to rebuild some walls. We hope to move out there permanently within the month and are really looking forward to it. Driving back and forth between our houses is very tiresome...not to mention, expensive! I write about farm life on my other blog. If you're interested, you can click on the link below. Any gardening or animal husbandry tips would be appreciated since this is all new to my husband and me. http://tilemosaics.blogspot.com/ I'm trying to stock up on gluten-free foods because there isn't much to choose from in the small east TX towns around our farm. There is one grocery store, Brookshires, in the closest town (I'm used to having a grocery store within five minutes of my house in any direction). I was pleasantly surprised to find that they stock several gluten-free items like Van's gluten-free frozen waffles, various gluten-free cookies (Pamela's and Mi-Del, for example), and some Bob's Red Mill products. Although, they didn't stock the BRM flour that I like to buy, I can probably request it since they already carry the brand. We plan to raise most of our own food - veggies, meat, dairy - but I'll still have to rely on specialty products for grains. I bought several cases of Chebe and split them up between myself, my daughter, and my son, who has moved out into his own apartment for the first time at age 19. I stocked him up with a load of gluten-free foods in hopes that he'll try his best to remain on the diet without me cooking for him.
  3. The doctor has said that it looks like you have celiac disease. You have the symptoms. Why are you still assuming that you don't have it?
  4. Day 4

    Going on and off gluten so quickly will not make any difference in your tests. You have to have been off gluten for at least six weeks for it to have any effect on your tests. If you are off gluten for an extended period of time and need to do a gluten challenge, you have to eat gluten for several days (maybe weeks, I don't remember). Also, you can have a DNA test which does not require a gluten challenge so that you don't have to go through the discomfort of eating gluten just to see your doctor or be tested. Insist that your doctor test you even though he may object and tell you that "celiac disease is rare".
  5. What's Going On?

    What's up with this new blog format? I don't like it at all. We have a restaurant near us called the Fish City Grill. I had eaten there a few times when they first opened up a couple of years ago, but they had very little gluten-free items on the menu. My daughter went there yesterday and found that they now have a gluten-free menu. She spoke with one of the "higher ups" in management that was visiting from Chicago who has celiac disease herself and she said they are trying to add more and more gluten-free items. Apparently, it's a chain of restaurants so watch for it in your travels.
  6. Me And The Farm

    [quote name='healthygirl' date='May 26 2008, 07:42 AM']A guard donkey? I love it!! It is big, like a mule size, or just a cute little donkey?[/quote] They're cute little donkeys. Not the miniature because they wouldn't be big enough to chase off coyotes, but still kind of smallish.
  7. Me And The Farm

    I've been super busy and haven't had time to make any new entries lately, but hey, I feel compelled to go for 10,000 hits since I'm so close. My husband and I have been renovating the house that we bought (on the 36 acres). We've bought our first goat. He's a character - like a pet dog. We also bought a couple of guard donkeys that don't seem to know they are supposed to be guarding. They are both pregnant and due to foal any time. I'm looking forward to the fuzzy little babies. In the meantime, my son has gotten engaged and I've been planning an engagement party for him for the past couple of weeks. The party is tonight and I have everything ready except for having the meat cooked. He and his fiance wanted a cookout, so that's what we're doing - hamburgers and hotdogs for 35 people. Whew.
  8. There are a couple of other places on this site you can go to for help. The discussion forum where other celiacs talk about doctors: [url="http://www.glutenfreeforum.com/index.php?showforum=6"]http://www.glutenfreeforum.com/index.php?showforum=6[/url] And a list of doctors by state that specialize in celiac disease: [url="http://www.celiac.com/articles/277/1/United-States---Doctors/Page1.html"]http://www.celiac.com/articles/277/1/Unite...tors/Page1.html[/url]
  9. You've got "Michelle" down at the bottom of your post. Is that your name? That's my name, too.
  10. It sounds like you've really educated yourself in preparation for your step-daughter's arrival. I think that's great. It will be tricky having one celiac among a family of non-celiacs. Both of my children and I have it, so I was able to make my kitchen completely gluten-free. My husband eats whatever I buy and cook and he's fine with it. Every once in a while, he'll buy some crackers or a loaf of bread for sandwiches, but that is rare and he is careful not to cross-contaminate. I would be curious, though, as to which side of the family your step-daughter got celiac disease from. Since it's genetic, it's very likely that either her father or her mother have it. If nobody knows, then they should get tested because any of their other children can have it, too. If it's her father (or his side of the family) and you've had children with him, you may have more celiacs in your household that you realize.
  11. Feelin' Groovy

    Well, this is something I had wanted to do while my kids were growing up so that we could learn together. I homeschooled my kids for several years and it would have been ideal to include gardening, etc. in their educations. But my husband, also a city boy, didn't want to do it at all. Plus, he had to be in the city for his job. Now he's more flexible with where he can work and we are expecting an economic crash, so it was his idea to get some acreage and become as self-sufficient as possible. We're both nearing 50 years old and at this point, I rather saw myself as having a flat in Spain with no yard to take care of and relatively carefree. But...here I am, starting a whole new life and fixin' to be an empty nester with my youngest going to university this fall and planning to get married next year. Despite my wish for a flat in Spain, I am enjoying this experience very much. Surprisingly, my husband is loving it, too. He loves getting out there on the tractor, plowing and mowing. He has even tackled the house remodel, tearing out the kitchen with gusto. He cracks me up, though. He is such a city boy that he has never even seen a tick. So he is obsessed with ticks. He's always afraid that one is in his hair. He saw a little hopping bug not too long ago and exclaimed, "It's a tick!" No, honey, ticks don't hop. And he was sure that he had a tick when he felt a little bump on his scalp a few days ago. I had to root around in his hair until I found the culprit...a tiny bit of drywall.
  12. Feelin' Groovy

    Cathy, all the best to you in your new venture. You're lucky to have a husband with farming experience. My husband and I have none, so we're just learning as we go and getting lots of advice from friends. We I planted a garden for the first time in my life and it is exciting to watch the little sprouts come up. We're making good progress on the house and hope to be able to move in some time this summer.
  13. [quote name='KristaleeJane' date='Apr 6 2008, 09:59 AM'][quote name='Mosaics' date='Apr 2 2008, 11:49 AM']We all start out with a lot to learn. I saw on your profile that you are suffering with fatigue. Your doctor will, or perhaps already has checked your blood for B12 levels. If you are low on B12, that could be causing fatigue. You might want to mention it to him, just in case. If you are low, you can get B12 shots to boost you up back to normal. But if you want to take an oral supplement, it is recommended that people with celiac disease take a [i]sublingual[/i] tablet rather than the regular pills that you swallow. The reason being that if you are B12 deficient, that means you aren't absorbing nutrients in the normal manner and if your intestines are not able to absorb nutrients from food, they will not be able to absorb them from a pill that you swallow. A sublingual is a pill that dissolves instantly in your mouth and will absorb into your body rather than passing through it with no effect.[/quote] Wow, I had know idea, here I am pounding the vitamins into me and not seeing any results, where can you get the sublingual tablets, at a pharmacy? Also who gives you the shots, Your doctor? [/quote] I'm not a doctor and am just going by what I've observed, read, and learned from my own doctor, so make sure you do talk to your doctor about these things. It seems that some nutrients are absorbed and some are not...otherwise, I suppose we'd all be deficient in all nutruients. I don't know why or how these things happen. Personally, I haven't been deficient iny any nutrients that I know of. My blood tests always come out normal. On the flip side, my daughter, who also has celiac disease, was severely B12 deficient. That's how I found out about the link between fatigue and B12, she's in her early 20's and was exhausted all the time, just wanting to sleep, sleep, sleep. That's not normal, so we had her checked out. Her doctor gave her a series of B12 shots to boost her levels back up to normal and recommended that she take the sublinguals. It made sense to me. Your doctor can give you the shots and the sublinguals can be bought at pharmacies or health food stores...really, anywhere that vitamins are sold. We get my daughter's sublinguals at Whole Foods grocery store. I don't know if [i]all[/i] vitamins come in a sublingual form, though.
  14. We all start out with a lot to learn. I saw on your profile that you are suffering with fatigue. Your doctor will, or perhaps already has checked your blood for B12 levels. If you are low on B12, that could be causing fatigue. You might want to mention it to him, just in case. If you are low, you can get B12 shots to boost you up back to normal. But if you want to take an oral supplement, it is recommended that people with celiac disease take a [i]sublingual[/i] tablet rather than the regular pills that you swallow. The reason being that if you are B12 deficient, that means you aren't absorbing nutrients in the normal manner and if your intestines are not able to absorb nutrients from food, they will not be able to absorb them from a pill that you swallow. A sublingual is a pill that dissolves instantly in your mouth and will absorb into your body rather than passing through it with no effect.
  15. Feelin' Groovy

    Haven't much to say these days. I've been feeling exceptionally well, so I must be doing something right. We bought 36 acres and are remodeling the house that is on it. We plan to move out there when the major renovation is done and the barn is built. We've decided on a tractor and will be buying it soon. We're going to try to be self-sufficient. The property has a deep water well that supplies the house and all the property with water. We plan to plant a garden as soon as we get the tractor. When we move out there, we'll be getting meat goats and milk goats and some chickens so we'll have fresh eggs. Also plan to get a windmill to generate electricity.
  16. Biopsy, as in endoscopy? No, it doesn't hurt. They'll put you to sleep and you won't feel a thing. As for lactose intolerance...I've read that about 50% of people with celiac disease are also lactose intolerant. However, it often goes away after being on the gluten-free diet. That happened with my son. He had been lactose intolerant ever since he was a toddler. He started the gluten-free diet at around age 14 and after being on it for about a year, his lactose intolerance went away. He can now eat as much dairy as he wants without any problems. Also, if you are lactose intolerant, you don't have to give up dair. You can switch to Lactaid milk (or any brand of lactose free milk). We're so used to it that I still buy it even though none of us are lactose intolerant. When my son was lactose intolerant, he took the Lactaid pills whenever he wanted to eat dairy and they really worked.
  17. I don't think you should be overly worried about infertility. Personally, I do think there is a link between celiac disease and infertility, but, IMO, it is rare. My Mom has celiac disease and had four kids, no miscarriages, no problems. I had two kids with no miscarriages or problems. All children were normal birth weight and healthy (except for celiac disease). And I conceived at the drop of a hat - didn't even have to "try" at all. It was just, "Oh, let's have a baby...OK!" Boom, I was pregnant.
  18. All of your family is gluten intolerant? It should be much easier for you if all of your family is already eating gluten-free. There should be no gluten-containing food whatsoever in your home. Why have it there if nobody can eat it? I keep a completely gluten-free kitchen and anyone who comes to my house eats my gluten-free meals. Sometimes a guest will bring a gluten food, but I make sure that when they leave, they take the leftovers with them. My son, who is almost 19 now, was diagnosed with celiac disease while he was in jr. high. He had the same issues while going to school. He had to take his lunch. I'm certain that he cheated on the diet sometimes while he was at friend's houses, but over all, he tries to stay on it. I know it's was hard when he's at a friend's house and everyone else is eating pizza. They usually didn't give a thought to what he might eat. I'm lucky that most of my friends and relatives try to make sure that there is something gluten-free at any meal that I will be attending. But then, I'm 48 yrs. old and my friends are grown up. All I can say is that you just have to get used to taking responsibility for your own self. You'll have to take food with you to parties or eat before you go. There is almost always something for me to eat at any party I go to, but if it's a situation in which I can bring food, I take a gluten-free dish (or two) to share with everyone. There is a discussion forum on this site for kids with celiac disease. I'm sure they would have lots of good ideas for you. Check it out if you haven't already: [url="http://www.glutenfreeforum.com/"]http://www.glutenfreeforum.com/[/url] Oh, and it really [i]does[/i] get better with time. It just becomes a part of your life. There is also a list of "safe" and "unsafe" ingredients. I suggest you print them out and keep them with you so you can check ingredients. It will be come second nature before long and you'll automatically know what you can and can't have with few exceptions. Here's the link for those lists: Safe ingredients: [url="http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html"]http://www.celiac.com/articles/181/1/Safe-...ents/Page1.html[/url] Unsafe ingredients: [url="http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html"]http://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html[/url]
  19. Back To Gluten

    [quote name='Linnie' date='Feb 28 2008, 06:27 AM']So dont eat gluten and then you will feel better![/quote] I'm sure she'd like to not eat gluten, but I think the issue is that she wants to get tested for celiac disease. If you are gluten-free when you get the blood test, it sabotages the results.
  20. [quote name='darcijj' date='Feb 24 2008, 06:54 PM']Howdy! Your itchy skin is something I can relate too... but for longer than a month I have had a rash like area by my left armpit.. sometimes it is really itchy... put hydrocortisone on it and it stops after a while.. but there is still a "patchy" area, looks like a really big bruise sometimes.. then it turns red and starts to itch again.. You ever have anything like that? It also feels very dry.[/quote] Sounds like Dermatitis Herpetiformus, a common rash for celiacs. When you see the doc, make sure you tell him about the rash. They can actually test the rash. Before your appointment, research a little about dermatitis herpetiformus and be prepared. I've read an article about testing for the rash and I seem to remember there is a certain area of the rash that the culture is supposed to be taken from to get a correct diagnosis. I've been having problems with itchy skin since last summer. I don't have a rash, there's nothing to see, it just itches, especially on my head. The dermatologist gave me some cortisone cream for the itching around my waist area and some medicated shampoo for my head. My body has stopped itching, but the shampoo didn't work. I'm very careful about my diet so that I don't get any gluten, so I'm not sure if the itching is related.
  21. 24 Hours

    [quote name='Safiyah' date='Feb 21 2008, 10:00 AM']I sent an email to Starbucks and asked which of their products were gluten free. One thing she mentioned was that sometimes the blended items, though they themselves may be gluten free, if the drink BEFORE it wasn't gluten free, then maybe that might cause cross contamination. Maybe that was the cause? Safiyah[/quote] Hmm, that may be the case. They always rinse the blenders, but that may not get everything out.
  22. Excellent Recipe

    I made this recipe a couple of nights ago and it was wonderful! It's a salmon topped with crab-cake. I got the salmon part of the recipe from the Dallas Morning News. It called for store-bought crab cakes, which of course, have bread in them, so I looked on www.allrecipes.com for a crab cake recipe that I could make myself and tweak to make it gluten-free. It was super easy to make. The recipe said to serve it with a tartar or roumalade sauce and I usually do have to have some kind of sauce with my fish, but this was perfect without a sauce. CRAB CAKES 1 lb. crabmeat, shredded (I used 1/2 crabmeat, 1/2 thawed, chopped shrimp, which was precooked and frozen) 1 1/2 Tbs. dry bread crumbs (I used Amaranth bread, but any bread would work, plus I used a little more than called for) 2 tsp. chopped fresh parsley 1 egg 1 1/2 Tbs. mayonnaise 1/2 tsp. ground dry mustard 1 dash hot pepper sauce salt and pepper to taste Mix together crabmeat (and shrimp), bread crumbs, parsley, salt and pepper. Beat together egg, mayo, hot sauce and mustard. Combine with crab mixture and mix well. To serve simply as a crab cake, these can be formed into patties, placed on a lightly greased broiler pan or baking sheet and broiled for 10 - 15 minutes, or until lightly browned. Or skip the patty and prepare as described below. CRAB-TOPPED SALMON 4-6 salmon filets 1 lemon half salt and pepper crab cake mixture 1 Tbs. melted butter Preheat oven to 375F. Rinse filets and place on a roasting pan that has been coated with olive oil spray. Squeeze lemon juice over each one, and season with salt and pepper. Spread crab cake mixture generously on each filet. Drizzle with melted butter. Bake salmon on the upper rack for app. 20 minutes. The tops should be browned, but if not, place filets under the broiler for 30-60 seconds to brown.
  23. The Beginning

    [quote name='healthygirl' date='Feb 11 2008, 06:51 PM']Thanks, Mosaics. I can check into it with our insurance plan, but am pretty sure it will be a no go for coverage. I have heard lots of people refer to Enterolabs as well for Celiac panels...not sure if that is the lab you are quoting. At this point I think I am going to see how long my appointment is with a specialist and take it from there. I feel soooo gooood not eating gluten, the thought of going back on it is a real turn off!!![/quote] It's Kimball Genetics and they do genetic testing. You don't have to be eating gluten to take the test. I think it may be a mouth swab. They send a kit to you, you take the sample and send it in for them to test.
  24. The Beginning

    A DNA test might be an option for you. It's done through the mail so you wouldn't have to wait [url="http://www.kimballgenetics.com/tests-celiacdisease.html"]http://www.kimballgenetics.com/tests-celiacdisease.html[/url] I contacted this lab to find out how much their Celiac DNA tests are. They responded back: Thank you for your inquiry. The list price for the Celiac Disease DNA Test is $395. Patients who enclose payment with their sample receive a 10% discount (check or credit card) bringing the price to $355.50. In addition, we offer a family discount. After the first family member is tested at the $355.50 rate, each additional family member (immediate and extended) is entitled to the family discount rate of $316.00 for upfront payment. These samples can be sent in at any time. Your insurance, or whatever Canada calls their plan, might pay for it or reimburse you. I know that some U.S. insurance companies will.
  25. Need Some Help?

    I'm sorry you're having such a hard time. Don't be discouraged, though. For many people, going on the gluten-free diet usually helps many symptoms go away. My sister was diagnosed with RA, but her symptoms went away when she went on the diet. They return if she cheats, though. If you need to take vitamins, look for sublingual ones. They dissolve quickly in your mouth and are absorbed immediately into your body rather than going through your damaged intestines, which aren't likely to absorb the nutrients. My daughter takes a sublingual B12 because her levels were outrageously low. In my experience, the gluten-free diet is only expensive if you feel you must have the speciality items like bread, pasta, gluten-free flours, and prepackaged foods. It's fairly easy to eat healthy and gluten-free without added expense if you stick to things like fresh veggies and cuts of meat from the grocery butcher. I've found that gluten-free brands of packaged cereals are about the same price as the mainstream brands. If you can't afford the gluten-free pastas, sometimes rice is a good replacement and it's cheap. I don't know anything about losing hair, but I remember someone else writing about it in their blog a few months ago. Go to the forums on this site and read what people have to say. There is a wealth of information there and a lot of people with the same problems you have described. I'm sure they can be helpful and you'll more, and quicker response than on the blogs. [url="http://www.glutenfreeforum.com/"]http://www.glutenfreeforum.com/[/url] I have a lot of good gluten-free recipes if you need some help with that. Where do you live? There are celiac support groups all over the country. It might be a good idea for you to get involved with them.
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