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Mack the Knife

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mack the Knife

  1. Mack the Knife
    Hi Sammykins. I have blood test and biopsy proven Coeliac disease - and I don't have either the DQ2 or DQ8 gene. So it is possible. But if you are off gluten and feeling better then you should stay off gluten. It's not worth making yourself sick again just for a definite diagnosis.
  2. Mack the Knife
    Open Original Shared Link
  3. Mack the Knife
    Australian Coeliac disease expert Dr Jason Tye-Din is interviewed in this radio show. His interview starts at about 24:25 mins. Open Original Shared Link
  4. Mack the Knife
    Dr Jason Tye-Din (a world-leading Coeliac disease specialist) and Dr Sue Shepherd (a dietician who specialises in Coeliac disease) are interviewed on the Australian radio station 3AW. Open Original Shared Link feed://www.3aw.f2.com.au/Podcast/Feeds/66.xml
  5. Mack the Knife
    I'm from Australia too and I have no idea why you didn't react to the wheat here in Australia. We certainly have a high rate of Coeliac disease here. In fact our diagnosis rate is higher than the U.S.. Australia has a massive wheat industry, so you were probably eating wheat that was grown in Australia - not the usual GM patented wheat grain that you might...
  6. Mack the Knife
    It took me more than two and a half years on a very strict gluten free diet before I really started to feel better. Some people just take a while to heal. My specialist says it is not uncommon. The one thing I probably should have done differently was be a bit kinder to my intestines while they were healing. I should have ditched coffee and alcohol and...
  7. Mack the Knife
    Orgran bread mix can be made as vegan bread. I've tried it that way and it is quite nice. But it does taste better when you add the egg and milk powder. I think that Silly Yaks bread is vegan but you need to check that because I'm not certain.
  8. Mack the Knife
    I'm not sure about the gene thing. Genes come in pairs so nobody has just the HLA DQ2 gene (except for a few people who are double DQ2). The researchers are saying that the vaccine will benefit 90+% of celiacs so I think this means that you just have to have the DQ2 gene and it may not matter what the other gene is. I am one of those rare celiacs who doesn...
  9. Mack the Knife
    I have posted this link in the Publicity and Publications forum but I just realised that it probably belongs in this forum. Sorry for the double posting. This is an interesting video of a public lecture about the latest advances in coeliac disease research that was held in Melbourne Australia last month. Some of the world's leading experts on coeliac...
  10. Mack the Knife
    Article from The Age April 10 2012 Open Original Shared Link
  11. Mack the Knife
    The MCG in Melbourne has gluten free pies and the members area has gluten free beer. they also have a Spud Bar which has lots of gluten free options. Rod Laver Arena sells gluten free pies during the Australian Open.
  12. Mack the Knife
    There used to be a few health food shops in Melbourne that carried a very limited range of Lara Bars. But they all seem to have stopped selling them recently. I wasn't a fan to be honest. They were very dense and sticky. I always need to drink a litre of water after eating one to wash it down. I eat Carman's Fruit Deluxe muesli bars which you can get...
  13. Mack the Knife
    Yeah. I think you should let your daughters go trick and treating - and then they can come home exchange their loot with you for an equal amount of gluten free candy. Then you can keep the candy they can't eat and give it away next Halloween. Maybe give you daughter some gluten free candy to take with her though so she's not tempted to cheat during...
  14. Mack the Knife
    What about Deeks? That gluten free bakery in Canberra. Do they do burgers? I believe that Burger Fuel and Lord of the Fries both offer gluten free buns now. I don't know about their cc awareness though.
  15. Mack the Knife
    The bun is the most easily solved problem. Grill'd use a conveyer belt toaster (which is always COVERED in crumbs - so they just need to put your bun on a piece of baking paper when they put it through. I don't think the meats will be a problem there. Most of the veggie burgers contain gluten so maybe check that they don't cook them on the same grill...
  16. Mack the Knife
    Grill'd have no idea about cc. Stay far, far away from them. Not only do they us the same toaster, but they also use the same spatulas to spread the toppings on gluten-free and non-gluten-free buns and double dip continually. They also hold the non-gluten-free buns over the toppings containers while they spread them. I've seen them do this and watched...
  17. Mack the Knife
    Don't forget that The Irresistible Gluten Free Fod Show is on next month. They always have a big range of products. Open Original Shared Link I'm going to go and sample food until I make myself sick. Last year they had gluten free Wagon Wheels. Fantastic!!!!
  18. Mack the Knife
    I'm in a similar situation. I've been on a strict gluten free diet for 18 months and I'm still feeling sick. I am really careful to the point of paranoia so I'm pretty sure I am eating completely gluten free. My levels were 120 when I was diagnosed and have dropped to 81. But now they're not budging. I'm going in for a scope soon to check what's going...
  19. Mack the Knife
    Only about 50% of adults have complete intestinal healing after 2 years on a gluten free diet. But you should be showing definite improvement by now.
  20. Mack the Knife
    It usually takes 3-6 months for blood tests to come back as normal after starting a gluten free diet. Sometimes it can take up to a year but kids do generally recover faster than adults. But I wouldn't worry about three days. Just put him back on gluten until you finish the testing.
  21. Mack the Knife
    I went to NZ earlier this year for the Asia Pacific Outgames in Wellington and it was awesome. Australia is pretty good at gluten free but NZ is even better. I had no problems eating out gluten free. Most cafes had gluten free bread options (even in the small towns) and I was even able to get gluten free pancakes at a few places. The gluten free options...
  22. Mack the Knife
    Are you at a private school? It sounds like it. They're probably worried that you are going to mess up their academic pass rate. No. They definitely can't expel you for being sick. Especially not if you have an official diagnosis. Have you been getting medical certificates for the days you have been absent? Probably not if there have been a lot of them...
  23. Mack the Knife
    This has happened to me too. My Ttg was 120 when I was diagnosed with a positive biopsy. I got tested again after 12 months on a strict gluten free diet and it had only dropped to 75. Now after 18 months it has crept back up to 81. Apparently it is not unusual for it to take a while for levels to return to normal but 18 months is too long. So I am jumping...
  24. Mack the Knife
    My girlfriend eats a bit of gluten outside the house not much because she's wheat intolerant. We are very careful about kissing if she's eaten gluten. I've checked the cat food and kitty litter. I do ballroom dancing so I probably occasionally dance with people who may have just eaten gluten but not on a regular basis.
  25. Mack the Knife
    Well, it's possible that they might. My problem is that I'm taking a long time to get my Coeliac disease under control. After 18 months I'm still testing positive which means my intestines haven't had a chace to heal and therefore can't absorb iron properly yet. But I think you should go with the infusion or a series of iron injections and get your...
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