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Mack the Knife

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Everything posted by Mack the Knife

  1. Mack the Knife
    I get vey sensitive to touch sometimes. I am freezing but feel like my skin is burning up and I can't stand even the lightest touch. I actually recoil from my girlfriend in case she tries to touch me.
  2. Mack the Knife
    That's what I thought too. But I haven't eaten out at all for three weeks now and I've been feeling worse. So that's made me think that there must be something at home that's getting me. I live in a completely gluten free household and I've thrown away everything (food, kitchen equipment, storage containers, etc) that were used prior to my diagnosis....
  3. Mack the Knife
    Yeah. The Australian Coeliac Society has decided to endorse products that test under 20ppm because they think our food labelling laws are too strict and dramatically limit the choice available to Coeliacs in Australia. A lot of the major gluten free brands can't be sold in Australia because they can't meet the less than 3ppm requirement. And I agree that...
  4. Mack the Knife
    Crap! My ferritin has dropped back down to 11. My doctor is going to organise for me to get an iron infusion.
  5. Mack the Knife
    That's awesome. I'm seeing my GP tomorrow so I'll ask him about it. I'm not a big fan of the iron injections. They didn't last and I got an iron stain on my butt
  6. Mack the Knife
    Damn! Even salt and pepper? I never though I was super sensitive because I've never had a major reaction. But I just keep feeling bad a lot and I'm starting to think that it shouldn't take this long for my antibodies to return to normal levels.
  7. Mack the Knife

    ARCHIVED Spices

    Mack the Knife posted a topic in Super Sensitive People

    I've been on a strict gluten free diet for 18 months now and I'm still getting sick on a regular basis. My latest blood test came back strongly positive for Coeliac disease so it seems like the problem is that I am getting exposed to gluten somehow rather than some other food intolerance. I am very careful about what I eat. However I do eat out a lot...
  8. Mack the Knife
    The normal Ferritin range is between 50-100. My Ferritin levels was 2 when I was diagnosed. Iron tablets didn't help because my intestines were too damaged to absorb the iron and it was too rough on my system. I had some iron injections recently and after 18 months on a gluten free diet my Ferritin is up to 18... *sigh*. I need some advice too.
  9. Mack the Knife
    If you don't have to pay for the testing and you have only been gluten free for a few months - then you should probably get tested. I have been strictly gluten free for 18 months and I'm still testing positive. My GI was not worried for the first year as he says it's not uncommon for it to take a while for some people's antibodies to return to normal...
  10. Mack the Knife
    My Ferrtin levels and vitamin D are very low. I'm taking supplements and have had iron injections but they're not improving.
  11. Mack the Knife
    I have results but they are not encouraging. I've been on a very strict gluten free diet for 18 months now. I don't cheat ever and I am really careful about cc. However, my blood tests are still coming back strongly positive for Coeliac disease. So that's not good. I don't get really sick but I do feel low-level crap quite a lot of the time. ...
  12. Mack the Knife
    I don't think the Freedom oats are anything special. It's just a marketing ploy to whack a label on something that's wheat free naturally. I don't think they actually have to test the oats to label them wheat free like they do with gluten. If that's the case then they're no better than regular oats. Yeah. I like the Lowan Rice porridge brand. I liked...
  13. Mack the Knife
    Are you sure? I've never seen them. Just because they are in the healthfood aisle doesn't mean they are gluten free. You can't legally label oats gluten free in Australia. How are these labelled?
  14. Mack the Knife
    No. I don't even have the DQ8 gene. I'm one of the 0.4% of Coeliacs who don't have either gene. They'll probably come up with A DQ8 variant if the DQ2 vaccine is successful... but I suspect they won't bother for the very small minority that's leftover.... and that kind of sucks.
  15. Mack the Knife
    Because I don't have the DQ2 gene I'm feeling a little ambivalent about the whole vaccine thing... but that is a little selfish of me. I do think it is fantastic that all their research is paying off and that they are actually getting somewhere with a treatment for Coeliac disease. Kudos to them and all their hard work! I think that by the time it...
  16. Mack the Knife
    In Australia we have a free health care system (Medicare) so we can get tested, biopsied and treated for Coeliac disease regardless of whether or not we have private health insurance. Because Coeliac disease is a chronic condition we can get put an an enhanced healthcare plan as well. This means that we can claim things that are normally not covered by the...
  17. Mack the Knife
    I miss oats too. Especially steel cut oats. I have found this place online Open Original Shared Link and it seems to be the only place in Australia that sells uncontaminated oats. They can't label them "gluten free" because of the Australian labelling laws but that is essentially what they are. I haven't tried them yet because my Coeliac disease is...
  18. Mack the Knife
    It's been over 16 months for me.... And my blood tests are still coming back positive for Coeliac disease, my ferritin and vitamin D levels are still very low and I still have good days and bad days with my guts. But I am much better than I was. I am gradually improving - it's just taking a long time.
  19. Mack the Knife
    And these just got posted up on Youtube:
  20. Mack the Knife
    These are some of the new stories thta have appeared in Australia leading up to this latest announcement:
  21. Mack the Knife
    Here are some more articles about the research: Open Original Shared Link Open Original Shared Link Open Original Shared Link
  22. Mack the Knife
    Try this one. It's a gluten free TV cooking show. If you sign up to the website you can watch the episodes online. Open Original Shared Link
  23. Mack the Knife
    I knew them all before I was diagnosed. We all do same sex ballroom dancing together (our teacher now provides gluten free snacks during class). Three were already Coeliacs, then I got diagnosed, then another friend got diagnosed. I must admit that we probably hang together more than we otherwise would because of the coeliac thing. It's just nice to go...
  24. Mack the Knife
    It's funny you should bring this up. I'm a lesbian and a coeliac and I have four lesbian friends who are coeliacs. We often outnumber the non-coeliacs when we go out to dinner. I don't know any straight people or gay boys with coeliac disease even though my circle of friends and acquaintances include a fair number of both. It's getting ridiculous...
  25. Mack the Knife
    You should also try Hooked Healthy Seafood to Go in Prahran and Fitzroy if you feel like fish and chips. They have a gluten free menu and can do gluten free chips, and fish and calamari in glutne free batter. They have a dedicated gluten free fryer. They also have optional gluten free soy sauce if you want to get the rice and bok choy instead of chips...
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