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Merika

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Latest Celiac Disease News & Research:

Everything posted by Merika

  1. Merika
    Tiffany, If she's in Los Angeles, pm me. Merika
  2. Merika
    Hi Hennessey, What exactly are you looking for? Are you looking for something for your allergic son to eat? As far as i know, glutamines are not from gluten. Just the name is similar. As to whether or not your son reacts to Neocate, that's a different issue....(is that a formula?) My best (and most farout yet) suggestion is to get donated breastmilk...
  3. Merika
    Let me third fourth or fifth everyone's comments on the psych! This is what docs do when they run out of ideas. It happens at all ages. I was 19 when first presenting obvious celiac symptoms, the docs couldn't figure it out, and recommended a thorough psych workup (insert rant here). I was 19 and told them where to shove it Merika
  4. Merika
    Hello, Wow, thank you for everyone's wonderful responses. Really! This has given me lots to think about. Dogear, it's not quite that bad I trust him completely with my food. He even swore up and down along with me when I told him of the Tropicana issue from another post (we drink Tropicana, but always had gotten the "Pure", gluten-free kind.) ...
  5. Merika
    Hi Sarah, I have Blue Cross of CA and they will pay a portion of chiropractic and acupuncture. Maybe Blue Shield does too? I say this because there are nutritionists and natural medicine practitioners who will get a chiropractic license basically for insurance billing purposes. If you find one who does "both" you may get insurance to pay. That said...
  6. Merika
    I'm going to my friend's wedding Sunday evening. It should be great fun It never occurred to me there was a sit-down dinner at the reception until she called about seating arrangement.....I must have missed in on the invite or just really not been thinking. It's a buffet. I know I won't be able to eat anything there, and so am not going to bother calling...
  7. Merika
    Hi Ken, Yep, you need to bring your own food. Maybe cook up a big pot of something Sundays and freeze it in small portions? And bring your own cooler, or ask the caterers to stash it somewhere safe. Personally, I would not eat anything not wrapped or loose in a bowl from craft services. I've questioned the catering truck folks too on sets. They've been...
  8. Merika

    ARCHIVED Dentists

    Merika replied to Jnkmnky's topic in Doctors

    Celiac can cause enamel problems. I don't know the details. When I had dental work done, I asked the dentist for the names and phone numbers of all the drugs and products she was going to use and called each and every one to check if it was gluten-free. She had no problem giving me this info. Even if a dentist doesn't understand celiac, they do understand...
  9. Merika
    Thanks bean I actually should have added doh-slam head on table, but laughing kinda, cause what else can you do? Kasey's mom, Nestle may indeed make a pure cocoa powder And from that, you could make many delicious things......mmmmmmmm..... I wish there were a soy forum or soy website that listed all this stuff, like there is for celiac. It is...
  10. Merika
    I test allergic to dairy (York +1) but eat cheese. I lose weight, get leg aches, and generally feel like crap after several weeks NOT eating it. Milk gives me stomach cramps, and I avoid it. That said, I do not tolerate yogurt well, but I don't get the same reaction as I do with milk. I think I have (an additional) reaction to the acidopholus added....
  11. Merika
    Your ped should be able to run the test. Really, anyone with blood drawing equipment can run it. Get the full (5 test with ttg) panel that Kaiti says. It's simple, accurate, and does not require a lot of blood (5 tests sounds like a lot, but it's all run off the same small blood sample). Even I did it and it wasn't bad - and I'm a complete needle-phobe...
  12. Merika
    I don't know what you should do. But I don't see a GI either, and I feel fine with that decision. I do see my acupuncturist regularly, and she helps with the celiac symptoms. What would a gi do with you? Once they tell you you have celiac, that's sorta it right? And, recent research shows the blood test to be every bit as good, or better, than an endoscopy...
  13. Merika
    Hi Violet, If you are not completely gluten-free right now, and are eating the equivalent of a slice of bread a day (I think), you should get a blood test for celiac. You may have celiac, you may just be gluten-intolerant. Spelt is an ancient form of wheat that has very low gluten levels. It seems you are unsure what level of gluten-avoidance you should...
  14. Merika
    Hi Carrie, We've been gluten-free about the same about of time I went gluten-free in Feb 2004. I definitely have less energy than pre-symptoms. Of course, I was 19 then and 32 now....think that could be some of it But then my 60+ yr old dance teacher can still dance me under the table, so I think I have a ways to go yet (sigh).... Merika
  15. Merika
    Well, gluten and hormones go hand in hand. Is depo the injected bc? Or a patch? Or? I'm assuming it alters your hormones to work. In which case the logical alternative would be a) barrier like condom and/or b)spermicide. You can get straight spermicide at the drugstore in a box and you put it in like a tampon, and you can use it w/o a condom. Obviously...
  16. Merika
    Ack, "mono and di-glycerides"!! I should have also added that soy is "mono and di-glycerides"!! You'll find these in packaged foods such as chocolate sauce, whipped cream in a can, and many many other places. It took me a long time to unearth this one, that's why I'm taking the time to mention it here even though it's not a direct gluten issue. Having...
  17. Merika

    ARCHIVED I Had To Laugh...

    Merika replied to a topic in Gluten-Free Restaurants

    Stephanie, Hahahahahaha, lol Same story here! Merika
  18. Merika
    Bugs, just think of them as a little extra protein, lol Merika
  19. Merika

    ARCHIVED Left Adrift By My Gi

    Merika replied to Jonesy's topic in Doctors

    Hi Maryellen You are not the only 77 yr old woman with celiac. I am very happy for your diagnosis. I know that sounds weird, but it gives you the chance for good health and a better life. I'm 32, but my grandmother was 75 when she went to Mayo Clinic for ongoing health problems and they missed her diagnosis . My mother was diagnosed 2 yrs ago...
  20. Merika
    Hi, The kind I take are by Standard Process Inc and they're called Cholacol. Their HQ is in Wisconsin and are generally sold only through nutritionists/chiropractors/etc but sometimes you can find them in an alternative medicine pharmacy such as Capitol Drugs in West Hollywood, CA (you may be able to order online from them). The ingredients are very...
  21. Merika
    Hi Steve, I understand about the fatty foods not digesting well. It's the same for me. I find a digestive enzyme really really helps. It also allows me to get hungrier sooner after a meal. So, for example, now I eat 2 lunches. One at noon and one later in the afternoon. They're not big lunches, but I can only eat til I'm full. I find myself eating about...
  22. Merika
    Why did they leave oats off the list? Too bad they didn't come up with this study earlier. My grandmother flew there from far away to see "experts" and her celiac disease was never diagnosed. They couldn't figure out what was wrong with her. Merika
  23. Merika
    Hi, Depending on your needs, you may or may not want a diagnosis on your insurance and separately you may or may not want an "official" blood test diagnosis. Most physicians will not accept the results from enterolab. If your child will be attending a typical school and you will need to go in and insist on gluten safety in the future, you will need...
  24. Merika
    Hi Carrie, ummmm...olive oil is really good Merika
  25. Merika
    Hi Shirley, We must have posted at the same time. Your story is a lot like mine. When I first got super sick, the docs couldn't find a diagnosis and said it was all in my head. I knew it wasn't, and my parents were helpful, but there was only so much we could do. So I just lived with it for 13 years. Dh and I have been talking about doing things...
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