rmmadden
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Latest Celiac Disease News & Research:
Everything posted by rmmadden
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ARCHIVED Unusual Gluten Symptom?
rmmadden replied to jerseyangel's topic in Coping with Celiac Disease
I get that when I'm glutened. I don't ever notice it any other time only when I'm suffering from a gluten slip-up. And, like you describe there is never any pain. I'm just conscious of my heart beating. Merry Christmas! Cleveland Bob -
ARCHIVED Gastritis And Cd?
rmmadden replied to Tangerine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Add me to the list of celiac disease & Gastritis people. I have been gluten-free for 10-months and still have unexplained issues with food that I know is gluten-free. Between trying to figure out other possible allergies, being gluten-free and having gastritis it has been very frustrating. Best of luck to you, Cleveland Bob -
ARCHIVED Hawaii (big Island) & Maui
rmmadden replied to jkmunchkin's topic in Traveling with Celiac Disease
Maui has 2 health food stores that I know of. One is on the main road leading out of the airport heading toward the other side of the island. The other is in Lahaina. They have pre-made dishes for dine-in or carryout. Also, there is a Kobe steak house in Lahaina as well as the places Jen mentioned. Over in Kahana there is an Outback Steak House and... -
I had Celiac & cheating explained to me this way.........It's like trying to say that someone is a little pregnant. You either are or you aren't. If you cheat you won't heal and it just opens the doors to a variety of other problems. It's tough at the beginning but it does get easier. Hang in there! Cleveland Bob
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I posted this info on the forum talking about Bard's beer being recalled.... I found a Chinese beer being imported into the Cleveland Area that is made from Black Rice....Yinpu Beer. The local health food store where I shop turned me onto this in substitute for the Bard's which is off the shelves right now. I Bought and drank a 6-pack of it this past...
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ARCHIVED Bard's Beer
rmmadden replied to Diosa's topic in Gluten-Free Foods, Products, Shopping & Medications
The name of the beer is Yinpu. It is being imported into the Cleveland area and was even featured in an article printed in the Cleveland Plain Dealer. The article didn't mention anything associated with Celiac but the manager at the health food store where I shop is selling it as an alternative to Bards. You can visit their website at www.yinpubeer.com... -
ARCHIVED Scared To Tears
rmmadden replied to bellybattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If I could get thru an endoscopy than anybody can! I am a lousy patient. I'm not kidding. I get woozy and nearly pass-out from needles/blood draws/IV's, etc. It really isn't that bad of a procedure. The worst part is the gas pains and the sore throat the next day. Hang in there & best of luck! Cleveland Bob -
ARCHIVED Bard's Beer
rmmadden replied to Diosa's topic in Gluten-Free Foods, Products, Shopping & Medications
I was told by a manager at the Mustard Seed in Solon that Bard's recalled their beer because of over-fermentation which caused the bottles to explode. He did show me a Chinese Black Rice Beer they carry which I bought and it was okay. It took a little getting used to but it was half the price of Bard's so I'll live with it. Cleveland Bob -
ARCHIVED Is Prevacid Always The First Attempt?
rmmadden replied to ILOVEOMC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that diagnosis is S.O.P. for Dr's today.....It's what they did with me, too. I was the one who insisted after 3-months to try something else and the endiscopy showed the damaged villi. Blood work followed and viola......Celiac Disease. Best of luck! Cleveland Bob -
ARCHIVED What To Serve As A Side Dish?
rmmadden replied to SharonF's topic in Gluten-Free Recipes & Cooking Tips
With a last name like MADDEN I didn't realize that there were other choices besides potato's as a side dish.......lol Remember the scene from Forest Gump where Bubba is describing all the different ways to cook shrimp? Well, in my house it goes like this: Baked Potato's.... Boiled Potato's.... French-Fried Potato's.... Garlic French-Fried... -
ARCHIVED If You Could Eat Whatever You Wanted And
rmmadden posted a topic in Coping with Celiac Disease
I'm watching the Food Network the other night and they were doing a show all about Donuts. Boy, talk about hitting below the belt! it was real hard to sit there and watch all those Krispy Kreme Donuts and think I may never enjoy them again So it got me to thinking (Can you smell the smoke?).......What if you were granted a wish and could eat whatever... -
ARCHIVED Crest White Strips
rmmadden posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I apologize if this question has been asked before......Does anyone know if Crest White Strips (The things you put on your teeth to brighten them up a bit) are Gluten Free? I have a box at home and was wondering if they would "Get me" Thanks! Cleveland Bob -
ARCHIVED Shoping For The First Time
rmmadden replied to heatherh's topic in Gluten-Free Foods, Products, Shopping & Medications
Tinkyada pasta is the best that I have tasted. Look in your local grocery store's organic section (If available) as you should find it there. The shopping can be overwhelming at first but it does get easier. You will learn what taste's good and what is a good price for items as time goes by. Hang In There! Cleveland Bob -
ARCHIVED Bacon?
rmmadden replied to mdono's topic in Gluten-Free Foods, Products, Shopping & Medications
Personally I opt for the Turkey Bacon. It has less overall junk in it (Especially MSG) and is better than eating pork. But, I also understand to each his/her own. Cleveland Bob -
This happened to me a few times. Especially when I was pre-diagnosed and now after I get glutened. I believe it to be the result of gas backing up the digestive track because of poorly digested foods (I was checked out on the Halter monitor to make sure it wasn't cardiac related). I also suffered a few panic attacks in the beginning which got the old ticker...
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Jen, This happens all the time. I've been gluten-free for 9-months now and I still go up-and-down with the symptoms. Everyone is different blah, blah, blah....you know the drill by now. I'm hoping that as time goes by and my intestine's heal more that I can live without celiac disease occupying my EVERY THOUGHT. That being said I honestly don't believe...
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ARCHIVED Going To Las Vegas Help!
rmmadden replied to Firegirl43's topic in Traveling with Celiac Disease
Broncobux, I will be heading to LV in a few months so the list is greatly appreciated....Thanks! Firegirl, One thing I do when I travel is to request from the hotel a mini-fridge for my room. That way I can then go to the local health food store and buy some gluten-free supplies to keep me going (Fruit, Crackers, Cheese, Lunch Meat, Chips,... -
ARCHIVED Tingling In Back
rmmadden replied to rogue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Rogue, I had the back-tingle. It was an almost everyday occurence and it drove me nuts trying to figure it out. All I know is that it went away after I went gluten-free (Not right away) and some healing took place. Now I only get it when I have a Gluten episode. Best of Luck! Cleveland Bob -
Jen, What a great question! I think with this disease it's too easy to focus on the negative. We can't eat this anymore and I'm feeling lousy because I ate that, etc. Lord only knows how much brain energy I've spent this past year constantly thinking about my health. My postives are: I am eating healthier...... I am exercising regularly...
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ARCHIVED Vinegar- No Distilled For Me!
rmmadden replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Home-made salsa is real easy to make and taste's better anyways..... Salsa Recipe: In a food processor start with 4-5 garlic cloves and a large onion. Add in your pepper(s) of choice (How many peppers? It depends on how hot you like your salsa and what type of pepper you use?). If you like it hot add the seeds. If not then omit them. Chop well.... -
ARCHIVED What Can I Do To Feel Better?
rmmadden replied to Jen H's topic in Coping with Celiac Disease
Jen, Each person is different in their reaction but I usually feel better if I take a walk. It helps get my mind off how I feel when I can enjoy the sunshine, hear the crickets, etc. When I really feel lousy I take Pepto Bismol for some relief. Best of Luck! Cleveland Bob -
ARCHIVED Poop/fiber/regularity
rmmadden replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jen, I take Proactazyme Plus from Nature's Sunshine with my meals. I also take liquid Iron and Liquid B vitamins as well. Finally, I too drink lots of water each day. Best of Luck & Happy Labor Day! Cleveland Bob -
ARCHIVED How Do You Comfort Yourself When Glutened?
rmmadden replied to a topic in Coping with Celiac Disease
When I feel lousy I usually try and go for walks to get my mind off how I feel. I also like to listen to jazz or other light music and sleep as much as possible. Finally I rely heavily on my natural magnet belt to ease my aches & pains associated with the bloating etc. Cleveland Bob -
ARCHIVED Poop/fiber/regularity
rmmadden replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
BamBam.......Here is what I have eaten the past few days: Monday, Aug 29th B-Fast = gluten-free Crispy Rice Cereal w/ Rice Milk, 1-Banana, Hot Tea w/ Honey Lunch = 1-Can Bumble Bee Tuna (In Water) mixed w/ Helmann's Mayo, 1-Apple Dinner = 2-Ground Turkey Burgers, Acorn Squash, Quinoa, Green Beans Snack = Gummi Bears Tuesday, Aug 30th B... -
ARCHIVED Halloween Is Coming!
rmmadden replied to musikate's topic in Parents, Friends and Loved Ones of Celiacs
My wife and I have handed out Neon Glow-Sticks/Bracelets the past 3-years instead of candy. The kids absolutely love them and they serve a safety purpose as well while the kids are walking around in the dark. Not to mention that you can get a tube of 100 for about $10.00 versus spending more money on candy. Cleveland Bob