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Mizzo

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Everything posted by Mizzo

  1. Mizzo
    another one: Fruit smoothies with Soy/rice milk and add a little gluten-free granola crunchies on top
  2. Mizzo
    What about the Chex gluten-free cereals, or gluten-free oats, Cornbread with jam, Grits with eggs, Canadian bacon or Sausage with fruit, just a few idea's
  3. Mizzo
    gluten-free since April and.. Took 9+ weeks before stomach ache free completely. Now normal daily stools, no belly pains, and a voracious appetite. I can tell when she gets gluten because: 1.She gets emotional , quick to temper and crying jags that are inconsolable: lasts 1 day 2.Poop gets mushy, sometimes diarrhea and sometimes light green in color...
  4. Mizzo
    The Ultimate Guide to Gluten-Free Living compiled by Celiac Disease Center at Columbia University. This was recommended by the nutritionist at Children's hospital, the book gets updated and published every year. $20 at Amazon It has a grocery shopping section listing gluten-free brands by category and fits in my purse. Maureen
  5. Mizzo
    If I had to explain it to 2nd graders,which by the way my daughter is going to be in 1 week I would say: Celiac disease is an Autoimmune disorder : THAT MEANS.... When a person with Celiac eats a food with Wheat, Rye, Barley and "Oats" in it, they have a reaction in their intestines. The body cannot digest Gluten and fights it. This can cause belly...
  6. Mizzo
    Just a comment. I got my Celiac 101 from Children's hospital as well and we were told that only certain Soy Sauce were gluten-free, we were not told to avoid all of them. The fact that the same hospital told you something different bothers me. I would think Children's hospital of all places should be extremely clear about their nutrition talks. Thank...
  7. Mizzo
    I spoke with a woman last night at a Celiac mtg who said in her intro to Celiac packet (3yrs ago ) It said Distilled vinegar that's in nearly every ketchup and mustard is not gluten-free safe. I mentioned I have been using Heinz with no problem which has distilled vinegar and is on my safe list. Anyone hear of this or is her info outdated? PS, We...
  8. Mizzo
    We use both La Choy soy sauce and San J Tamari with no problems. There is a Teriyaki sauce from Premier Japan which is gluten-free but we have not tried it.
  9. Mizzo
    According to my Celiac handbook the following are gluten-free Bone suckin sauce Buffalo wild wing sauces (not Asian zing or Teriyaki flavors) Cattlemans's Dinosaur barBQ Kraft: Bulls-eye Chick n rib garlic Hickory Original Sweet & Sour Thich n Spicy Lea & Perrins: Marinade for chicken Traditional Steak Sauce Worcestershire ...
  10. Mizzo
    I just got back from a 5 day campout but I had access to electricity so it was easier. Day 1 you seem ok for , Day 2 can be sandwiches you premade or PBJ on Udi's bread there for lunch. Udi's bread stayed good for us in the cooler for our 5 days. so you could do sandwiches many of the days. Canned tuna, chicken, salmon, crab, whatever can be added...
  11. Mizzo
    Are you real camping or do you have access to fridge or electricity?
  12. Mizzo
    Anyone know if Campfire brand marshmallow are gluten free?
  13. Mizzo
    My girl was also being treated for same colon problem with Miralax for off and on over a year, with the occasional flushing with Milk of Magnesia . Finally we went to a GI had the scope and found Celiac. If your DR will order it it will rule out or confirm many different problems. It's a simple procedure for the kiddo's , much tougher (anxiety) on us...
  14. Mizzo
    Unlike the majority of Celiacs, my girl was not underweight but in the 95th percentile on wt and ht before the diagnosis. which is one of the reasons for it taking so long to get the correct diagnosis. She has been gluten-free since mid April and suddenly in the last 3 weeks has gained 4 lbs. This may be cause for a happy dance for most parents but I have...
  15. Mizzo
    The absolute hardest part for me was the time before the scope, so I feel for you. I had to feed gluten filled foods to my most likely celiac disease child and then wait. UGHH!!!!!!!! It took over a year to get to the test because of non being diagnosed properly, therefore saying to myself its only 1 more week got me thru it. The test itself was a...
  16. Mizzo
    CC is always an issue in a non gluten-free environment. My Examples: My girl got cc with tongs at a family BBQ, and that was with CONCERNED family being careful, but oops forgot to use separate tongs and yes an mild stomach ache did occur ( just with tongs.) I let her play with play dough, not thinking the CC a big deal as she is 7 and doesn...
  17. Mizzo
    what would you have packed for him if he was not diagnosed? what does he like? There are hundreds of mainstream substitutes that are gluten free . My celiac disease girl was diagnosed in April and with just one small glitch I made it thru 2weeks of girl scout camps pretty easily. we can offer sub's if we know what he likes.
  18. Mizzo
    Emily, If you explain that you have a celiac disease child to the manager and ask that your order is done and put aside for you 1st thing in the morning after cleaning I bet they will do it. I am finding just how accommodating people will be if asked. If they say no, no loss.
  19. Mizzo
    Hi. I couldn't tell at day 5 what was and wasn't causing belly aches . My celiac disease girl still had continuos pains for 2 weeks solid, then it eased up on the length but didn't stop completely until around week 9. Anyhow an average day would be: Breakfast: Chex, Trix or Envirokids cereal and milk or pancakes or yogurt with hard boiled eggs...
  20. Mizzo
    I replaced only fairly scratched teflon pans and all my wooden utensils, kept my plastic and silicone. I also replaced my toaster and my knife block. I kept the knives just replaced the holder. I wasn't sure if I should replace the colander so I just use one specifically for gluten-free pasta which is pretty much all we have now anyways.
  21. Mizzo
    My understanding is: There is no gluten in Oats. Oats are consider cross contaminated because they are grown in the same fields as Wheat , Rye and Barley.
  22. Mizzo
    Actually I asked my local stop and shop to carry some specific items and they ordered some of them and put it in their organic section with most of their other gluten-free foods. Also my local health food store is usually willing to order any product so long as they have a relationship with them already. I still haven't got Namaste flour but I will keep...
  23. Mizzo
    You should always read the packaging. However, blend flours and recipe packages typically do add it, but things like Brown rice flour or Tapioca starch or Potato starch etc.. do not.
  24. Mizzo
    IMO: I use Pamela's pancake and muffin mix and I think it's ok. I have tasted muffins made with Namaste flour and think it's much better. However I cannot find it. If you do I would suggest trying the Namaste first. The baker told me she substituted her reg flour recipe cup per cup with the Namaste. It was a yogurt muffin recipe, and they were 3 days old...
  25. Mizzo
    If it doesn't have to be candy a gluten-free breadstick will work and be edible. Schar makes an Italian breadstick that is thin and tasty. My daughter is on wk 2 of camp and although I had constant contact in regards to cookout day, dessert time and build your own trail mix event etc... things did not go 100% as planned and my daughter missed out on...
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