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Marz

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About Me

Started having GI problems 3 years ago. First symptom was histamine intolerance, found that I couldn't eat avo, tomatos, spinach and especially chocolate without getting a sinus infection/cold.

Second symptom was food intolerance. I found 1 to 2 days after eating chicken, egg, turkey and goat cheese, I would get severe diarrhea and cramps.

However even after eliminating these trouble foods, I still had random and frequent diarrhea attacks.

The last straw was constant nausea, bloating and burping/reflux. I also started having panic attacks and chills/fevers at night accompaning the diarrhea. After a scope and an initial IBS diagnosis, I went gluten free for a week and noticed a huge improvement. I then insisted on the IgA anti-gliadin blood test, which came back negative. TTG IgA test a few weeks later was also negative.

All symptoms gone after a few weeks gluten free, and accidental glutenings brought back all symptoms rather badly, so in spite of negative tests I'm convinced I'm gluten-intolerant. In addition, a few minor neurological/psychological issues cleared up much to my relief.

To date still gluten free and now also soy free.

Glutening symptoms that started *after* going gluten free - dermatitus herpatiformus-like itchy rash after accidental trace glutenings, joint pain, depression/tearfulness, mouth ulcers, insomnia.

  1. Hi there forumers, It's been a long time since I last posted, and thought I'd add an update to how I'm doing. I'm still as sensitive to gluten as ever - although my stomach symptoms when I get glutened are generally mild, brain/mental issues are still severe. I'm now tolerant of soy, I can eat soy-based products without any issues, whereas...
  2. Marz

    ARCHIVED Gluten Ataxia

    Oh hey, I just another look at this article, and the lady on which it was based commented an update on her progress. She also left her email, if anyone would like to contact her. Great news is she's slowly getting better! Open Original Shared Link
  3. Something you might want to try - the nightshade family of veges used to make me horrendously nauseous a year or so ago. And it used to start 2 hours or more after the meal, so I never made the connection until I gave up my lunch salad and the nausea went away. When I examined my food journal I noticed the pattern. Even now and then a big salad with lots...
  4. My symptoms deal with both C and D, so I usually take 1 or 2 Magnesium complex tablets for a few days after the D has stopped to try avoid the inevitable cramping/bloating/C that follows Other than that, I've also tried Ibuprofen, and sleeping extra to sleep through the worst of it. In fact I usually pass out anyway because I get exhaustion/dizziness...
  5. Marz

    Celiac Remission

    Hi Skylark, This topic is quite interesting to me. I actually have a colleague that insists he was severely gluten intolerant (And was avoiding all gluten as it made him very sick). However, he says, after a few years as a vegetarian (and gluten free because of said symptoms), he returned to eating wheat and found he was "cured". He encourages me to...
  6. We're seriously thinking of immigrating to New Zealand, so trying to get as much info as I can about gluten-free options. Looks like Coles and Woolies are the best, are they in NZ as well as Aus? Looking forward to making a big move
  7. My stainless steel stuff is fine, I did get rid of non-stick pans and cutting boards. Are you sharing a toaster with gluten bread? Someone in the family double-dipping knives into jam or butter containers? Pet food - possibly handling pellets and then some other food item? I had to clean drawers out carefully and fridge doors - somehow a lot...
  8. So around 30 min to an hour after I had a cappuccino from the cafe at work, my stomach started exploding. With fears of food poisoning, I contacted my hubby who said he was fine from our shared lunch. The coffee at work has usually been fine, maybe a bit of discomfort but nothing like this! I suspected the worst... And asked a colleague that was in...
  9. Glad you found a new friend May she give you many years of joy and love!
  10. Oh my god Raven, I'm so sorry I started crying when I read your post, that's such a tragic thing to happen... Is there anyone you can talk to or rely on for some support until you get through the grief? And yes, pets are family, don't let anyone tell you otherwise, it's just a pity they have such a short time with us.... Sending you lots of hugs, hope...
  11. There are laws in place, but it's pretty much "self-regulated" which makes me very wary Some new labelling regulations were put in place the last year or two, and companies had until March 2011 to comply. Some companies just went with "Not suitable for people with celiac disease" which upsets me greatly as they didn't have wheat/gluten listed before...
  12. Oh man, that sounds bad So sorry you got hit badly, hopefully now she realizes how sensitive you are and looks out for you better? Hope you feel better soon...
  13. Nothing like a bit of unintentional glutening to remind you every now and then that "Yup, definitely gluten intolerant..." The worst part is I checked all the ingredients carefully, and everything looked fine, they even mentioned "maize flour" so I thought they were nice to use a gluten-free starch for once. And I was in a rush.... never ever be in a rush...
  14. I think of it as "gluten poisoning" because it's not unlike real food poisoning :/ I would also use the word "contamination", don't see anything wrong with that "Glutening" is probably the kindest way to phrase it, if people are really that sensitive about the details. They wouldn't want to hear about the result of a glutening then I take it - also...
  15. Well done Sammy It can take a while to heal, but you're already seeing improvements so you must be on the right track! I think the hardest part was starting the diet, staying on it once you've got the hang of it is easy in comparison. Most people don't even try, and suffer with their symptoms rather than trying out the diet. Also - I found that I...
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