
Chakra2
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Chakra2
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ARCHIVED Did Any Of Your Kids Have Negative Bloodwork But Positive Biopsy?
Chakra2 posted a topic in Parents, Friends and Loved Ones of Celiacs
I am concerned about possible celiac disease in my 2 year old. I went gluten free with myself and my son in January looking for food allergies (not knowing about celiac disease) and later learned that I have had symptoms of celiac disease or gluten intolerance since infancy. My genetic test was positive for DQ2. After 7 months gluten free (with great results... -
ARCHIVED Joint Inflammation
Chakra2 replied to MarkR555's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some people (like me!) find that nightshades cause joint pain, in addition to gluten. Pain that I had for years and that I always thought was running-related vanished on a gluten-free, nightshade-free diet. I do avoid soy, corn, and dairy too but with accidental experimentation I've found out that gluten and nightshades are the big problems for me in terms... -
My GI doctor recommended "Celiac Disease for Dummies" and it mentions male and female infertility and period problems several times in no uncertain terms. I was skeptical about this particular book but have actually gotten a lot out of it. Might be helpful if you're trying to learn more. Good luck !
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ARCHIVED Help! Unexplained Scary Symptoms.
Chakra2 replied to JessicaW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jessica -- those do sound like scary symptoms. I now think I have had celiac disease my entire life, but after the birth of my first child was when my symptoms all of the sudden snowballed. Many were like yours. I later found out that it is fairly common for pregnancy and childbirth to trigger and/or aggravate autoimmune diseases (like celiac disease). I... -
ARCHIVED Joint Pain Testing
Chakra2 replied to Darn210's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That stinks about your joint pain. I have had joint pain since I was 13-14 (33 now). Back as a teenager I was told that I had pain because I was a girl who played sports. Over the years I would occasionally go back to doctors about it and was always told that it was inevitable as a runner. At age 27 I had knee surgery to try to address the pain. Didn't help... -
ARCHIVED Missed Periods, Anxiety, Milk Of Magnesia...
Chakra2 replied to India's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't have any real ideas but just wanted to send encouragement. I've been gluten-free since January too and my health is definitely still a work in progress. Anxiety is one of my gluten symptoms. I don't know much about Milk of Magnesia but gluten contamination could be affecting your mental state. Corn causes serious neuro problems for me too. Not sure... -
ARCHIVED Constipation...
Chakra2 replied to ToriMartin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My mom raves about psyllium husks. She gets them in capsules at Whole Foods. They were mentioned several times in the book The Most Effective Natural Cures on Earth, I noticed recently. Good luck! My poop issues vascillated back and forth between the 2 extremes and going gluten free immediately stopped the D but I still have to pay attention to fiber and... -
ARCHIVED Am I On The Right Track?
Chakra2 replied to jakeynogluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jakey -- just wanted to say best wishes. Your symptoms sound upsetting and I do hope this path leads you towards health. I am 33 and had decades of GI symptoms including gut pain, irritability and depression, fatigue and joint pain. I went on an elimination diet looking for food allergies in myself and my toddler after his pediatrician told me eczema, diarrhea... -
ARCHIVED 10 Months Gluten Free And Still Not Recovered
Chakra2 replied to gary'sgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
With that list of foods you don't tolerate, I hesitate to ask this but what about soy and corn? Those 2 foods cause me GI and neuro symptoms and it really helped once I got rid of them. Many of my favorite vitamins and supplements had to go. Also, it sounds like you are very careful at home. Do you get to eat most of your meals there? I find that even... -
ARCHIVED Where Do I Find Gluten Free Toothpaste?
Chakra2 replied to Rdv22222's topic in Coping with Celiac Disease
Love my Tom's of Maine toothpaste! I took awhile to get used to the taste but I've been using it for years now. I have a gluten-sensitive toddler, too, so I found California Baby soap, shampoo, conditioner, lotion and sunscreen in the baby aisle and I like their stuff -- very clearly labeled gluten-free. I get Tom's at Whole Foods and California Baby at WF... -
ARCHIVED Is It Normal To Still Feel Nauseous/stomach Pain After 2 Weeks Gluten Free?
Chakra2 replied to cctaylor01's topic in Coping with Celiac Disease
It sounds like some of your symptoms are improving but others are not, right? That can be so frustrating. I'll pass on my general chronology of feeling better in case it might help. The basic message is that feeling better on a regular basis took a long time for me. At 2 weeks in I still felt rotten every day, even though some of my symptoms were already... -
ARCHIVED Suggestions For Toddler Party
Chakra2 replied to precious831's topic in Coping with Celiac Disease
Ice cream popped into my mind. Maybe because it's 100 degrees where I live! My 2.5 yr old loves the Tempt hemp milk vanilla flavor. It's gluten, dairy, and soy free. At summer camp, we used to have an ice cream night with toppings like "dirt" (crushed Oreos) and worms (gummies). Maybe there are gluten-free/df/sf versions of those? Happy birthday! -
ARCHIVED Colic And Projectile Vomiting
Chakra2 posted a topic in Parents, Friends and Loved Ones of Celiacs
Discovering that I have some kind of gluten sensitivity has caused me to look back over my entire health history and say, "Ohhhhhh, that's what that was!" My mom tells me that I had colic and daily projectile vomiting for months as an infant. Is that a symptom for any of your kids? Did your doctors pick up on it? I was born in 1976 so it seems like my pediatrician... -
ARCHIVED Diagnosis After Age 60
Chakra2 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn... -
ARCHIVED Sleep, Kids, And Gluten
Chakra2 posted a topic in Parents, Friends and Loved Ones of Celiacs
My 2 yr old is in the process of trying to figure out a diagnosis (gluten sensitivity vs celiac). He has GI symptoms but the issue that really got me started looking into all this was sleep. He was still waking 4-5 times a night at 18 months. I asked my pediatrician if it could be food-related and he said no, but I felt like I was seeing a connection and... -
I only have one child (age 2) but he and I both have gluten issues. I don't have much advice about avoiding CC in your situation, but I did want to mention that my son's GI symptoms improved after I did some things that seemed kind of extreme to me at the time. Now I won't argue with the results! I switched all of his and my bath products, diaper cream, etc...
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I am so sorry you're dealing with all of that. Just wanted to mention to a fellow H-towner that I love my nutritionist. Dr Cynthia Tait at Whole Health Associates near downtown/River Oaks/Montrose. She sometimes tells me VERY different things than what my doctors (and especially pediatrcian) tell me but her advice has worked for me when other things have...
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Dear Coffee, As you know I never drank much of you during the week. But on the weekend at brunch I would have a couple of cups right alongside my pancakes, French toast, or breakfast tacos. Who did I blame for all the symptoms that inevitably followed such a feast? You! For years I thought you were the problem and I wasn't afraid to say it to your face...
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ARCHIVED 1 Month Gluten Free - Still Some Hiccups
Chakra2 replied to IveGotEffinCeliac's topic in Coping with Celiac Disease
I'll chime in with another "it takes awhile" comment. My GI symptoms improved immediately going gluten free, but the other symptoms (brain fog, the blues, fatigue, joint pain) took much longer to clear up. It was 5-6 months before I felt remotely okay for more than one or two days at a time. The things that helped me, I think, were time to heal; eliminating... -
ARCHIVED What's The Science Behind Celiac Soy Intolerance?
Chakra2 posted a topic in Coping with Celiac Disease
I have read about why some celiacs have trouble digesting dairy at first -- you need the lactase from the tips of the villi. But why are so many gluten-sensitive people also bothered by soy?Is there a similar anatomically-based reason? Also, I'd love to know if/when/how anyone was able to reintroduce soy. I was vegetarian for 19 years (now pescatarian... -
This might not be your issue, but there are several gluten-free foods that cause me stomach pain: dairy, soy, corn and rice. Nightshades (potatoes, tomatoes, eggplants, peppers) cause me severe joint pain, but not stomach pain. Celiac disease does bizarre things to your intestines -- it could be that, even without GI symptoms, its caused you to have an intolerance...
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ARCHIVED 5 Weeks Gluten Free
Chakra2 replied to LauraBeth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm sorry to hear you're still not feeling better. For what it's worth, I remember still feeling crummy at 5 weeks. My GI symptoms were improving but I still felt enormously fatigued. Eventually I eliminated dairy, soy, corn, some nuts and nightshades (based on allergy testing and my own experiments) and that helped. As my gut slowly healed, I started to... -
ARCHIVED Anyone Try Naet? (I.e. Allergy Elimination)
Chakra2 replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A while back I found some old threads on this site about NAET. They were all from a year or two ago but had some interesting info. I have not ever tried it myself but am pretty curious about it. That stinks that you didn't notice results. Chakra2 -
ARCHIVED How Quickly Do Blood Tests Normalize After Going gluten-free?
Chakra2 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just curious what people's experiences have been with this. My levels were normal after 5 months gluten free. My 2 yr old hasn't had his bloodwork done (waiting on appointment with his GI doc). Would kid's levels return to normal more quickly than an adult's (assuming good compliance with the diet)? Chakra2 -
ARCHIVED Make Up And Lotion
Chakra2 replied to nickim's topic in Gluten-Free Foods, Products, Shopping & Medications
I use California Baby lotion for myself and my toddler. I like the calendula cream for my face and the everyday calming lotion for body. I'm not crazy about the scent though so I add a few drops of essential oils to it. I like that it's clearly marked as gluten-free (and dairy, soy and nut free) and I can find it easily (online, Target, Whole Foods). I was...