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dws

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by dws

  1. dws
    I can't tolerate oatmeal either. It really makes me feel lousy, probably the intolerance coupled with the way it expands in your gut. Bulk plus inflamation doesn't feel good. I had the same problem pre diagnosis when my doctor told me to try to add fiber to combat what he mistakenly thought was IBS and I took metamucil. Same feeling as when I eat oatmeal...
  2. dws
    Just curious, what food did you try that got you?
  3. dws
    It is very frustating sometimes trying to figure out what is getting you. And you can get a lot more sensitive over time. I'm not sure it happens to everyone, but it sure happened to me. Someone must be eating all those processed gluten free products out there, but I have to stick with whole foods. I'm going through what seems to be my third uptick in...
  4. dws
  5. dws
    I just had to chuckle when I read your post because it reminded me of my father in law. I've been gluten free for 6 yrs or so and my inlaws live close by so we see them often. He is always offering me a regular beer, pizza, sandwich, etc. He has a heart of gold but he also has severe adhd. He's proven to me over and over again that he's there for me through...
  6. dws
    That's encouraging. Might just have to give it a try.
  7. dws
    Can you tell me more about the study you mentioned? Edit: That's ok, I looked on line and found it. The chances of cc can be high without testing. It's just a shame that some of these asian sources may actually be gluten free and produced in gluten free facilities but we just can't be sure since the info is just not there. Still no answer to the email...
  8. dws
    Yeah, I checked out their website too but could not tell if they produced it or if they were just distributors who obtained it from others who produce who knows what else. They are called Erawan Marketing Co. so they may just buy it from whoever is cheapest that week. I'm not against giving it a try though.
  9. dws
    This subject has been posted before without much response, but I thought I'd give it a try. There is a Thai grocery near my house and they carry rice and tapioca flour as well as potato starch. One brand they carry is Erawan. The owners say a lot of celiacs buy the flours. Has anyone been able to find out about possible cc issues with this or other asian...
  10. dws

    ARCHIVED Cooking Oils

    dws replied to dws's topic in Super Sensitive People

    Oh I understand about cc in foods now. Scraping the gravy was like 4 years ago before I got onto this forum and learned a lot. I now take the same precautions a lot of supersensitives do except the shared household is probably the weak link. I may be non-celiac gluten intolerant based on the testing I have had done and the fact that my symptoms went away...
  11. dws

    ARCHIVED Cooking Oils

    dws replied to dws's topic in Super Sensitive People

    I think the reason I did so well for a couple of years was a lower level of sensitivity than I have now. I started out not very well informed and very exposed to cc due to ignorance. There was no reason for me to do a lot of research at that time because in a matter of a few days of giving up gluten I went from being woken up in the middle of the night...
  12. dws

    ARCHIVED Cooking Oils

    dws replied to dws's topic in Super Sensitive People

    I've been off of gluten for about 6 years. I've been struggling with an ever increasing sensitivity. I did really well for a couple of years at the beginning but have been having trouble staying ahead of the curve since then. We do not have a gluten free kitchen and I am beginning to think tweaking what I eat may be futile as long as there are crumbs everywhere...
  13. dws

    ARCHIVED Cooking Oils

    dws posted a topic in Super Sensitive People

    I know the subject of oils can be a contentious one, but here goes. I was wondering what oils/brands work for supersensitives. From reading previous posts, olive oil seems pretty good, but I would like to use other oils. Has anyone had much luck with any mainstream brands of safflower, canola,cottonseed, soybean oil? ...or even the dreaded corn oil? I...
  14. dws
    Thanks for the reassurance Pondy. I can live with it taking a long time as long as I eventually do get there. I like being active and this has put a big dent in my lifestyle. Might be a good time to explore some more sedintary hobbies while I work this out. If you have a minute, I would like to hear more about how you progressed through range of motion...
  15. dws
    Babsv- they have been giving me ultrasound treatments in pt, but it is the standard type of ultrasound they use in pt for a lot of things. I would be interested in hearing more about the treatment your friend had. I think I'll be ok eventually, but there's definitely a lot of work ahead- and more pain too! I really have been pretty freaked out about the...
  16. dws
    Hello everyone, I had minor knee surgery a couple of months ago-arthoscopic to remove plica and a lateral release. My knee swelled up like a canelope and I developed scar tissue which I am currently going through hell trying to fight thru. My surgeon has never seen such scar tissue problem with the minor arthroscopic surgery and my physical therapist says...
  17. dws
    I've also been trying corn again. I've done ok with Maseca Corn Flour (finer than corn meal). Unlike most corn meal producers/packagers, they do not handle any kind of wheat products. I noted in someone else's posting on another site that they are very honest about not being in control over cross contamination during transportation to their facility by...
  18. dws
    Right now you are frustrated and a little discouraged, but don't give up. Have faith in your ability to adapt. When I look back, I can remember several times when I felt the same way, but I always eventually adapted because I kept trying, though not always with the most positive attitude (we are human after all). I think it helps to realize that you are...
  19. dws
    Carolyn, for some reason I get a unique kind of gut pain when I use digestive enzymes. Not sure it is a gluten reaction. It happened to me when I used Digest Gold and even when I tried Lactaid pills. I have recently been experimenting with Lactaid milk and got the same pain due to the added lactase I guess. Sorry you are having difficulties. You mentioned...
  20. dws
    Thanks Weluvgators, I might just go ahead and give it a try. I did email Pacific Natural Foods and let them know I was not thrilled about the shared lines. Any other responses out there? Is soy just taboo for supersensitives? I noticed that another recent soy topic didn't get many responses.
  21. dws
    I know soy milk has a bit of a reputation for cc. Have any supersensitives had any luck with a particular brand? Other Pacific milks seem to test ok according to what I have seen on another site, but I didn't see anything about the soy milk. I also just noticed on another post that Pacific has a new gluteny product that they produce on the same line....
  22. dws
    Makes me think about my visit to a very famous celiac specialist. He was pretty good, though I did not really learn anything from my visit since he, like other MD's had no idea how to help someone like me who was having difficulties despite what I thought was a gluten free diet. He had a nutritionist who worked with him. When she told me I could eat up...
  23. dws
    I'm kinda wondering why at least a gluten free community has not been established somewhere. Seems like it would have happened already. Sometimes I fantasize about living somewhere like Tonga, living on cassava, meat, and fruit. Of course, then you would have to deal with Giardia which is something the 3rd world is plagued by. But seriously, I probably...
  24. dws
    This topic is a little tongue in cheek, but I find myself wondering if there is somewhere I could move where I would not have to deal with gluten at all. Anyone heard of gluten free communes or communities? I couldn't find anything on the internet. Some third world cultures appear gluten free, but I am sure gluten is reaching those communities more and...
  25. dws
    Yeah, I have tried rice,almond,hazelnut milks. As I have become more intolerant to gluten, these products haven't been gluten free enough for me. I react to well below 20ppm. I guess I am a little confused about lactose intolerance. I have read that once your body stops making lactase, that's it for dairy. I have also read that you can somehow overcome...
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