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RyanP

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RyanP last won the day on July 4 2018

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  1. RyanP
    Celiac typically manifests as smoothed or blunted villi (which are microscopy little finger-shaped projections in your small intestine). I'm not a doctor (nor do I play one on TV) but I don't think this would show up on a small bowel series. There usually isn't a significant amount of swelling, which is what would appear on the x-ray/CT scan used in the...
  2. RyanP
    Whoa! I would be extremely suspicious of this if I were you. It is basic science that you can't test whether something is gluten-free. Most ELISA tests I've heard of are accurate to a specific gluten content. IE, less than 20 or 10 or 5 parts per million. There is no test that confirms something is "gluten-free". That is impossible to test for. Anyway...
  3. RyanP
    Welcome to the club! (Ok, so it's not always the most FUN club...) but the good news, as you are already finding out, is that you are going to start feeling a lot better! I wouldn't be overly concerned about finding other things wrong when you get your biopsy results. The doctor will typically take biopsies from other locations while doing the endoscopy...
  4. RyanP
    Odds are, if your butchers are serious about their craft, they will either know the answer, or be happy to find the answer for you. If all else fails, have you considered making sausage yourself? If you plan to use it in pasta sauce, you can skip the casing altogether. Just mix up some ground pork and spices, refrigerate it for a day or to two to let the...
  5. RyanP
    I'm not 100% sure for kids, but I for adults there don't seem to be any special precautions that need to be taken with anesthesia. I've had two rounds of it since being diagnosed, and neither one was an issue. I would definitely make sure the ENT doc is aware of your son's celiac disease though. It seems to be fairly typical for nurses in the recovery...
  6. RyanP
    My GI recommended Florajen3. I think they sell them at most drug stores, usually in the refrigerated section. (They're supposed to be kept cold). They seem to be pretty effective for me. I stopped taking them for a month, and definitely felt significantly worse for the last couple weeks of that month. -Ryan
  7. RyanP
    Hi! So, here's some info I've amassed over the years about coffee: -'Decaffeinated' coffee can be decaffeinated any number of different ways. Some methods utilize ethyl acetate to remove the caffeine. That sounds scary, but its a substance that can be derived from fruits, and either way, the end product beans contain essentially no ethyl acetate (we're...
  8. RyanP
    Hi Monica, I've had great luck with Rancho Gordo (www.ranchogordo.com). They only do mail order (or I think they also sell at some San Francisco area farmers markets. They ONLY do beans, and are a relatively small operation. They are a bit pricey, but REALLY good beans, and a lot of varieties you can't find elsewhere. Hope this helps! Ryan
  9. RyanP
    Hi Kate- I was dx'ed a few months before getting married back in 2007. Our honeymoon was the first big trip I took gluten-free, and I have to say it was a bit intimidating. My wife and I ended up going to Kauai and had an absolutely fantastic time. (Since you haven't mentioned it here, I'll skip over the details, but I will say I did not end up getting...
  10. RyanP
    Hi Sami- I'm in Madison as well. I haven't ever been to meetings, but you're in luck as there are two support groups in town: -MAGIC (Madison Area Gluten Intolerance Chapter) Open Original Shared Link -Gluten-Free Badgers-- This is a relatively new group at the university. (Which I think is open to the public). Unfortunately I don't have much info,...
  11. RyanP
    This is a pretty interesting study. I'm curious to see what falls out of it, particularly since there already seems to be some ties between Isotretinoin (aka Accutane aka 13-cis retinoic acid) and inflammatory bowel disease (see the study below). Reddy D, Siegel CA, Sands BE, Kane S (2006). "Possible association between isotretinoin and inflammatory bowel...
  12. RyanP

    ARCHIVED Five Guys

    RyanP replied to K8ling's topic in Coping with Celiac Disease

    I've had really good luck with Five Guys. It is one of the few fast food-type places where the fries are gluten-free and not CC'd (they ONLY serve fries. No onion rings/cheese sticks/etc). At the locations I've been to (Madison and Cleveland), burgers are cooked on one griddle, and buns are warmed on a separate one. The burgers are 100% beef, and gluten...
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