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Luddie

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Latest Celiac Disease News & Research:

Everything posted by Luddie

  1. Luddie
    Hi all, Very interesting topic which I'm now really tuned into. I've been on celiac diet for several years now, in earnest for about 2. Take lots of vitamin/mineral supplements prescribed by my doc. Checks blood every 6 to 9 weeks to make sure all is okay. About 7 years ago, before I found I had celiac, I was dx with a huge goiter wrapped around my trachea...
  2. Luddie
    I agree, the longer you're doing this the easier and better it gets. Yes, eating out is almost impossible, but so be it. I'd rather feel good all the time. One thing I'd suggest when you're starting out on this journey. Don't think you can safely use foods labeled "gluten free" as many have substances in them that will bother you. Some of the gums that are...
  3. Luddie
    Several years ago I read a book by an endocrinologist from California named Diana Schwarzbein. She has an interesting personal history and she got interested in endocrinology and thought she would be involved in esoteric, exotic diseases but after graduation, landed a job at a diabetes clinic (if I recall correctly). She worked there for some time and was...
  4. Luddie
    Hi Ollie's Mom, You're right to point out that most nutritionists and doctors would not suggest a diet such as yours (or mine, which is very similar). I keep forgetting that my doc and his nutritionist are different! His practice teaches that heavy grain consumption and the use of vegetable oils in cooking are not good ways to maintain health. I, too, have...
  5. Luddie
    I've seen the movie. I agree the science seems sketchy! Yes, we are omnivores and should eat a variety of foods, including the offal of animals that people used to eat (not that I do)! It's a very extreme diet and in my humble opinion, dangerous. Talk to a nutritionist about it and see what she says!
  6. Luddie
    I've come to the same conclusion about the possibility of finding the "answers" in my lifetime. But, I'm still plugging away at eating as gluten-free as I possibly can. My doctor is even more of a stickler on other things, too, like certain foods that are heavy on latex (I'm allergic as are many people apparently), and especially on the balance of Omega ...
  7. Luddie
    I agree, but try to find a doctor who understands nutrition and supplements (with blood tests to back it up for good measure). Most doctors have a rudimentary working knowledge but some really have dived into studying it. My doc tests for LOTS of different things, the usual stuff, too, and as much as I hated getting blood draws, I'm really glad he does. I...
  8. Luddie
    If you get fish oil, make sure you get the triple strength otherwise you are really getting more omega 6s than you want to. We get enough of that in our regular diets, and we're usually short on the omega 3s. Triple strength is a better balance. Also, flax seed oil used to be considered a good source of omega 3s, but my doctor says current evidence has shown...
  9. Luddie

    ARCHIVED Freaked Out

    Luddie replied to varthurs's topic in Coping with Celiac Disease

    Over the past 3 years I've had all varieties, and found that when I was taking too much fish oil I had a problem. I have been on many elimination diets, causing all sorts of bowel issues, and finally decided (in addition to no gluten) to again do away with eggs and dairy and solanaceous vegetables (joint pains). I've also added -- very slowly at first --...
  10. Luddie
    ....mind you im still having a hard time trying to figure out what to have for breakfast cause alot of times my guts no not really want anything thats so solid i have to try and find a nice soft soothing filling breakfast so i have alot of investagateing to do in the breakfast feild so im off to do some searching have a great day everyone
  11. Luddie
    Wow is right. that is quite a list. I'm similar but have found that I tolerate hominy grits. I know, corn gluten is not usually suspect but I don't want any kind of gluten (can't eat rice apparently). I think when they make the grits the gluten is destroyed by the process. anyhow, maybe that's one thing you could try. I do use butter and salt on them. MMMM...
  12. Luddie
    How can I locate old postings which I really want to read again and even respond to. (Hope this is the right way to do this!) Luddie
  13. Luddie
    Me, too! I was wondering what I had done wrong and was looking at others to see if they had a warning bar also and they didn't. Now I understand that when they look at mine they don't see a warning bar (mine isn't green so I guess I'm okay!) Luddie
  14. Luddie
    Hi Erin, I live in the Columbus, Ohio area. I'm not sure about the protocol on this forum for giving you information (i.e., my name or doctor's name). Anyone know if it's okay or how to do that privately? Wouldn't want to do anything that's not squeeky clean. Thanks! Luddie
  15. Luddie
    Hi all, Reading these posts gives me hope (and scares me a little, too!). What foods do you suggest I drop back to as "safe"? I've been eating corn grits, with salt and real butter on them, along with 1/2 and 1/2. Occasionally an egg. Some simple meats like beef patty, or steak, or once in a while lamb, and potatoes. I had been on an elimination diet and...
  16. Luddie
    I should challenge him on that, but he's also busy with raising three kids and a time consuming job, so I don't think that's in the books right now. He does try to make substitutions for me when I let him. I'm actually interested in your own description of the things you can't eat! I'm really at a dead end, and although my doc is trying to really help...
  17. Luddie
    Hi all, Yeah, I've not been able to figure out why people get so upset about it. After all, I'm the one who can't eat certain things. My son is a wonderful cook and "wishes he could ask us for dinner again". Not in a mean way, certainly, but still implies that if I tried a little harder not to have food issues life could go back to some sort of "normal....
  18. Luddie
    Actually, no, I'm not in Chicago. I'm in Ohio, and my MD is here, too, associated with the University in an Alternative Medicine practice. So, no direct "translation" of care for you there in Chicago. But keep asking questions, as practices do add things from time to time. It must be really frustrating to be dealing with this for a child. It's hard enough...
  19. Luddie
    My doc has a nutritionist on staff with him and also does monthly workshops for his patients with her to help us learn about the "new way of eating" that we celiacs must do! This doc is now my primary care physician, too, as the other one I have been seeing for years never, ever thought about my having celiac disease. I guess in kindness I must say I didn...
  20. Luddie
  21. Luddie
    This, plus a gluten-free diet for 6 months--- and I am seeing a lessening of symptoms. It's slow, but better. My fingers are crossed.
  22. Luddie

    ARCHIVED Grr...

    Luddie replied to Roda's topic in Coping with Celiac Disease

    I'm wondering about my 13 year old grandson who has had(constipation) problems his entire life with really bad consequences on the lower colon (abnormally distended). He did live in Australia for several years and the docs there do approach things a bit differently than here. Since January he has had a peculiar rash. Yes, he's been to his pediatrician, Got...
  23. Luddie
    I don't want to throw cold water on your scones, but some celiacs can't handle ANY grains, and there is more and more evidence that some of the gluten in other grains makes us react like the gluten in wheat, rye and barley do. And some grains that are said to be gluten-free may not be. So be aware of that. I tried to eat some gluten free muffins (they were...
  24. Luddie

    ARCHIVED Grr...

    Luddie replied to Roda's topic in Coping with Celiac Disease

    Hi All, I have three kids, one of whom also has a father with juvenile onset diabetes. He's had intestinal polyps removed (he's nearly 50)and I've been bugging him about getting tested for Celiac, or at least telling his doctor that I have it. He poo-pooed the idea for about a year, but finally did mention it to her. He claims she tested him for celiac...
  25. Luddie
    IrishHeart, are you taking any B vitamins? Check with your doc on that. I take several Solaray B-75s now and the tingling in my toes and fingers has stopped. My toes feel almost back to "normal" -- no tingling or numbness. My "burning knee" has also improved. Might be better control of my gluten intake, but might be the Bs. I still have pains, now, but...
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