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JenniLu

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JenniLu

  1. JenniLu
    The paleo dietary movement says that quinoa is bad. It punches holes in the microvilli and causes "leaky gut syndrome". I've read this about quinoa in a few different places. I don't know how accurate or scientific the paleo diet is. I still eat rices and some legumes, but other grains I leave alone. Open Original Shared Link
  2. JenniLu
    Trouble with potato salad is that you can't really make a meal out of it if you had to. This Tuna-Bean salad Open Original Shared Link OR this Shrimp-Rice salad Open Original Shared Link can be complete meals.
  3. JenniLu
    I don't know about Johnsonville anything. They have msg or similar (hydrolyzed veg protien, autolyzed yeast) in every ingredient label I ever read. I'd get some all natural sausage from the butcher.
  4. JenniLu
    I love this Buckwheat Bread recipe. For one thing no Xanthan Gum, which does not agree with me at all. It's easy, like a quick bread-no yeast. I don't know what you would substitute for the egg whites however. Open Original Shared Link
  5. JenniLu
    Xanthan Gum. It's in almost all gluten-free baked goods. It gives me terrible indigestion / bloating. I have no tolerance for the slimy stuff.
  6. JenniLu

    ARCHIVED I'm Scared

    JenniLu replied to Poppi's topic in Coping with Celiac Disease

    I know what you mean. I did NOT want to be baking bread at this time in my life! We have some great bakeries in our neighborhood, too - sigh. Store-bought, gluten-free baked goods really suck and they're expensive. I hate paying all that money for lousy products or spending all my time baking gluten free goods that aren't that great. We don't eat bread...
  7. JenniLu
    I'm now experimenting with guar gum. I've been reading labels and avoiding Xanthan gum for a long time, way before going gluten free. I tried it again when I started Gluten free diet and just can't tolerate it. It causes awful indigestion and naseau. Nasty stuff.
  8. JenniLu
    I have a lot of problems digesting Xanthan gum, so most gluten-free bread and baked goods make me sick. I have a couple of recipes for buckwheat bread, banana bread, and pizza crust with no Xanthan gum that I can eat without ill effects. Otherwise, I can't eat gluten-free bread because of the Xanthan gum.
  9. JenniLu
    A GI doctor can run tests for celiac disease. Look for one that treats and specializes in celiac. We found that tests for gluten sensitivity were inconclusive. I had to put my kids on gluten free diet until their symptoms went away, then reintroduce the gluten back into the diet. When they got sick again, they were diagnosed with gluten-sensitivity.
  10. JenniLu
    Make sure it's not something more sinister, like stomach cancer.
  11. JenniLu
    Quaker makes yummy little rice snacks in different flavors. ( My son's favorite snack. ) He also likes plain rice cakes with Nutella. There's gluten free summer sausage, beef sticks, and turkey sticks. Trail mix with nuts and dried fruit, even m&m's-they would also keep nicely.
  12. JenniLu
    I just wrote a post on the autoimmune book. Here is the website for the Upper Room in Minneapolis, where Dr. Conner, the functional doctor has his office and there is more information there: Open Original Shared Link
  13. JenniLu
    I've been reading the book (free download) from this doctor and I'm thinking maybe getting tested this summer. He seems to be very thorough with his testing and looks at all of the symptoms together....but I'm no expert. I like the idea of "functional" medicine anyway. He is out of Minnesota, but he can consult and order the tests long distance. Open...
  14. JenniLu
    My son had HSP when he was 14. A long drawn out episode. Prednisone didn't work, so he took injections of methotrexate. At the time he had to deal with painful intermittent stomachaches from the HSP and the metho. The HSP went into remission 14 months after the first onset. Off the meds, he had 3 good months followed by 3 more months of illness/weight...
  15. JenniLu
    Yeast extract, like MSG, often contains free glutamic acid. I avoid autolyzed yeast, hydrolyzed vegetable protein, & MSG. Not because they contain gluten, but because of the free glutamic acid. MSG can make you feel ill too, if you are sensitive to it. I can tell the difference anyway.
  16. JenniLu

    ARCHIVED Cinzetti's?

    JenniLu replied to glutenboy's topic in Gluten-Free Restaurants

    My recently diagnosed 15 year old is in the same boat. He doesn't cook or read food labels. He really has no idea which foods may have gluten hiding in it. I called the restaurant ahead of time told them he needed to eat Gluten Free and that he needs help choosing items that are safe. They are going to have the manager go around with him. They have gluten...
  17. JenniLu
    When my son started complaining of stomach aches his grades plummeted (he'd been in the gifted program and taking honors classes) He was finally diagnosed with celiac, but teachers are not empathetic. I think they think he is lazy. Fight for your kid and listen to how they are feeling. The pieces will eventually fall in to place.
  18. JenniLu
    Celiacs that I know also had lactose intolerance too, but were able to reintroduce dairy again after being symptom free for several months.
  19. JenniLu
    According to Dr Green, Director of Celiac Disease Center at the Univ of Columbia, in the book "Celiac Disease: The Hidden Epidemic" 2010 : Celiac is about the shape of certain HLA genes. He says "Therefore, in order to get celiac disease, you have to have to have HLA-DQ2 or -DQ8. Genetics are essential in predisposing, but not determining. He also says...
  20. JenniLu
    https://www.celiac.com/articles/22043/1/Is-DGP-Serological-Test-the-Wave-of-the-Future-for-Celiac-Disease-Testing/Page1.html Good article on the IgA / IgG tests
  21. JenniLu
    From my reading if certain genes HLA-DQ2 & HLA-DQ8 are not present then the trouble is not celiac, but it could be a wheat allergy or wheat intolerance. It looks like the tests for the celiac autoimmune anitbodies, EMA IgA & TtG IgA, were negative also. Allergic reactions may show up as elevated eosinophils. Also I ran across this "Increased...
  22. JenniLu
    Open Original Shared Link Read this article about "leaky gut" and if you haven't had the genetic HLA-DQ test, you could try that next.
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