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MsCurious

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Latest Celiac Disease News & Research:

Everything posted by MsCurious

  1. MsCurious
    It makes sense to me... and is very good information that I will keep in mind when I finally get to go gluten-free. Your post grabbed my attention because of the hives thing. My dad (who I think might have gluten issues) has hives that almost seem chronic and he is on meds for them, but once again, meds treat the symptom and do not get to the cause and resolution...
  2. MsCurious
    Thanks for the thoughts.... very valid and wise. Just hope "self diagnosing" wouldn't overlook cancer or something that I have no medical knowledge to diagnose.
  3. MsCurious
    THANK YOU!
  4. MsCurious
    Thank you! I'll use this as a basic start to my shopping list when I go gluten-free. Reading this makes it all seem so painless! Fresh fruits, veggies, and unprocessed meats, along with bisquick gluten free ... just about covers everything.
  5. MsCurious
    WOW... I'm so amazed at what I'm learning here! Half a DQ2 gene? I know there are some places that are up on the research and some (like mine) that are still back in 1970. I know my gene test was sent to Quest, which doesn't reassure me much. I've not read much good about them. And when I got the results call from my doctors assistant, she couldn't even...
  6. MsCurious
    So sorry you're going throught all this... not fun! I have no idea, but it sure sounds like celiac or gluten intolerance. You know, sometimes I think doctors and researchers would be leaps and bounds ahead if they'd read sites like this, with real people that have real, and consistent issues that are all sounding the same, over and over and over again. You...
  7. MsCurious
    Raven, do you know which tests are the ones they "should" do? I'm thinking I need tests that are not necessarily celiac tests, but gluten intolerant... because that's what I think I am. I don't have the dermatitis stuff, nor do I have vomiting, mostly the GI stuff and fatigue, headaches, low vitamin D, low cholesterol (which is great..but can be caused by...
  8. MsCurious
    Oh, wow... really? Thank you so much for telling me that. There's so much I don't know...and obviously so much THEY don't know. I wonder how I go about getting the right tests.
  9. MsCurious
    Good grief! No wonder its making us all so sick! (sheesh,I wonder if that's what's making our dog sick) Thanks for the info Cass.
  10. MsCurious
    Thanks Cypressmyst. A lot of the things you talk about here are things I have been trying to sort through. You said you're getting tested for more things... so does that mean you're on gluten right now? Did you have to go back to it for the testing? How did you get tested for NCGS? Did your doctor suggest it, or did you have to twist doc's arm to get the...
  11. MsCurious
    Raven, reading this brought me to tears... For me, for you, for so many that suffer and don't know where to begin, or how to make sense out of all the medical terms and tests and things. I've been trying to figure out if I should even bother with the medical world and just go gluten-free for myself. So that's what I'm struggling with right now, but last night...
  12. MsCurious
    Guess I was so excited to find that I didn't have celiac disease, and then it hit me... I still have the same issues to face every day. I know I've read research info that said there is a test (maybe more than one I don't know) for gluten intolerance (aside from celiac testing). Has anyone had this? If so can you tell me what test it is, or any information...
  13. MsCurious
    No Biopsy...Still waiting for DQ numbers, but from what I can "guess" based on what the medical assistant said, it wasn't DQ2 or DQ8.
  14. MsCurious
  15. MsCurious
    Sorry, I got so excited to know it wasn't the kind of sensitivity that turns your "shag carpet villi into tile" that I forgot the post was pretty much informationless. Yeah, I posted test results in a different post but here they are: TISSUE TRANSGLUTAMINASE IGG 0.40 <0.90- Index TISSUE TRANSGLUTAMINASE IGA 0.42 <0.90- Index (negative...
  16. MsCurious
    So, its looking like its NOT celiac disease! YAY! But knowing that doesn't make the symptoms go away. So, I'm thinking it still could be NCGS. Do any of you have experience with this? What is the likely next step? I'm guessing, elimination diet? Any help or insight you can give me as to how the next chain of events should unfold, would be most appreciated...
  17. MsCurious
    Well, hopefully that's changing rapidly! As you can see from my post above this one... there is evidence "out there" that the doctors and researchers are finally realizing that NCGS IS real. I have soooo many questions!
  18. MsCurious
    Well, hopefully that's changing rapidly! As you can see from my post above this one... there is evidence "out there" that the doctors and researchers are finally realizing that NCGS IS real. I have soooo many questions!
  19. MsCurious
    Thanks! I'm seeing more and more about NCGS (non-celiac gluten sensitivity) and I'm starting to think that's what I have. Couple more days for test results and then probably gluten-free diet, once doctor gives okay ... and yes, hopefully I'll feel much much better! I hope they figure all of this out real soon, so EVERYBODY can feel better! This is definitely...
  20. MsCurious
    Did some further checking on the internet and this is part of what I found: DQ2 & DQ8, the two major types, are present in 90-99% of people who have Celiac disease. They are also present in approximately 35-45% of people in the U.S., especially those of Caucasian race of Northern European ancestry. The prevalence in the U.S. of Celiac disease is 1...
  21. MsCurious
    Mayo Clinic gastroenterologist and celiac disease specialist Joseph Murray, M.D just sent me an unexpected email, which really says a lot about what they do and don't know about Celiac. I sent a thank you note to him, for making a professional lecture video directed to other physicians, regarding Celiac Disease. I sent it to my doctor to make sure he knew...
  22. MsCurious
    ADORABLE BABY!
  23. MsCurious
    From what I've read, it does rule out Celiac. HLA-DQ2 and HLA-DQ8 are always present with Celiac, but you can have those genetic markers and NOT have celiac, but then you do have the possiblity of developing it. You can have non-Celiac gluten sensitivity/intolerance without those two genetic markers and they have associated other markers with this. From what...
  24. MsCurious
    Ugh! So much to learn! It seems there's hidden gluten EVERYWHERE! How did you all figure it out? Does anyone have suggestions for comprehensive lists? Thanks!
  25. MsCurious
    Oh, thanks...that's good to know! Honestly, there is so much the doctors DON'T know ...and it seems people that deal with this in their every day lives have a better handle on it. I can't believe how much research facilities are finding out that they didn't know just in the last year, from what I've read. That leads me to believe there is a boatload of very...
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