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MsCurious

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Everything posted by MsCurious

  1. MsCurious
    Hey Raven, I understand your personal frustration with my comment above, but let me address that so as not to confused you or anyone else. Research doctors will tell you (and Joseph A Murray, head of Celiac Research at Mayo Clinic in Rochester, MN told me this specifically) that genetic testing really has very little value in determining/diagnosing celiac...
  2. MsCurious
    You really don't need to know anything about genetics to gain some peace of mind from having your kids tested. Basically, the two genes associated with Celiac (confirmed... no questions asked) are DQ2 and DQ8. You should have your kids tested for them for one very simple reason. If they do not have either of those genes, the likelyhood of them ever developing...
  3. MsCurious
    I have nothing to add... RebeccaLynn .... other than... YOUR PICTURE MAKES ME DIZZY!!!!!!! LOL
  4. MsCurious
    Butter is dairy!
  5. MsCurious
    Butter is dairy!
  6. MsCurious
    If it makes you feel any better, people have posted on here that they don't give up anything. They have stuffing and gravy at Thanksgiving, and pumpkin pie, and birthday cake on their birthday, and waffles for breakfast, etc... So, just think of it that way... you don't have to give up everything, you just have to learn how to cook differently... with different...
  7. MsCurious
    The answer to those first two questions is ... yes and yes. Inflamation could be caused by NCGS (non-celiac gluten sensitivity) or there are other things that could be going on. There is some breath test thing they can do (used to do) but it was a day long test, and very costly for doctors to perform, apparently, so I don't think they do it much anymore...
  8. MsCurious
    OMG! ... The doc didn't do biopsies because with the naked eye... "it looked fine"? I'd get a hold of the head honcho and let them know what happened, and tell them you expect a biopsy at NO additional charge, to do what he was supposed to do in the first place, and that you want a different doctor of your choice to do it. That's just nuts! Sorry... I get...
  9. MsCurious
    Hi Flor, I might be able to shed some light on your genetic question but FIRST... I would address the issue of your son and gluten-free diet. First, you didn't say if he was showing any symptoms, and if he is I would DEFINITELY get him tested before going gluten-free. Secondly, I would NOT take him off gluten before having him tested by a physician...
  10. MsCurious
    Yikes! burdee, I read this post of yours with interest the other day, and since then have looked up a few things, including tests my doctor has scheduled, and my last TSH. I'm thinking I need to find a new internal medicine doctor. My new GI is the one who scheduled the new tests! My TSH from a year ago last fall was 3.85. According to what you're saying...
  11. MsCurious
    I think its a great idea for you to take some solid research from a well respected medical research team or journal, specifically if it relates to you and your symptoms. I made a list (sort of a timeline) of all my symptoms over the years, and took that with me. That way I didn't forget things that were important, and it kept me on track. The first idiot...
  12. MsCurious
    It's really a non-issue, regardless this person is DQ2 positive.
  13. MsCurious
    Allergy to wheat and intolerance to gluten are two entirely different animals. You can have zero wheat allergy and be gluten intolerant or celiac. You can also be allergic to wheat and be celiac or gluten intolerant. And, yeah that doesn't sound all that bad, at least you can have cheese! I'm jealous!
  14. MsCurious

    ARCHIVED Dr Said Not To Eliminate Gluten

    MsCurious replied to kayc's topic in Doctors

  15. MsCurious
    I think you're in very good hands at the celiac center, nuttmegs17. I would trust that they know what they are doing, and as long as you tell them about the 3 weeks gluten-free, they will know how to test and what to have you do to make sure they get a true diagnosis for you. Sounds like you're really on the right track with a good doctor now!
  16. MsCurious
    Have you ever noticed issues with dairy? This will cause huge bloating and gas, also.
  17. MsCurious
    Her symptoms don't sound very silent to me... IBS is miserable. I think lots of people that get diagnosed with fibromayalgia and IBS are really celiac, and don't have those two issues once they go gluten free. It seems since doctors didn't know a THING about celiac ten years and more ago.... they "tried" to put other illness labels on people who are just...
  18. MsCurious

    ARCHIVED Dr Said Not To Eliminate Gluten

    MsCurious replied to kayc's topic in Doctors

    Welcome, Doctor... and I hope you're feeling much better! First...thanks for joining our discussion and telling us you're a doctor. Quick question for you... Do you have any suggestions for how we can get our "uninformed" doctors to read up, or learn or take us seriously? It seems many of them are insulted, or just make people feel like they're crazy rather...
  19. MsCurious
    BRAVO annegirl!!!!!! That's exactly right! Good for you... you keep making yourself better! I posted a couple of articles oth the "prediagnosis" forums and when I found them I wanted to SHOUT THEM FROM THE ROOFTOPS! Please PLEASE please... read them... they were written for YOU! Enjoy the read... it will validate you! University of Maryland School...
  20. MsCurious
    Yep if what you originally posted is correct, you would be DQ2.2 positive.
  21. MsCurious
    Hi sprklechica07, First off... welcome to the forums. Secondly, you have showed up here like probably 98% of us... terrified, or frustrated, or confused, or scared, or all of the above, and THAT is completely normal. I would say this... fear is compounded by the unknown, so I would suggest reading as much as you need to, so that you understand...
  22. MsCurious
    I kind of don't think I have thyroid issues... but then again I have NO CLUE what kind of symptoms that causes. Ugh... I guess more research and studying is in order. I have never had eczema, but my brother and sister both do... one of them also has other celiac related issues. Yeah, that figure was 98% undiagnosed... now its down to a whopping 97%...
  23. MsCurious
    nuttmegs17, I'm SOOOOOO happy that you found a good GI!!!!!!! YAY! Finally something is going right for someone with a doctor that knows more than the people here! That's very good news for you! Thanks for sharing your positive experience! And, yes, hopefully you'll be feeling FABULOUS real soon!
  24. MsCurious
    Thanks cassP, I have no clue about anything related to thyroid.... and *crossing fingers* ... hope I really never need too learn much about it, at least relating to me! Apparently, my GI thinks there's a reason to check things, though. Personally, I think I'm gluten intolerant, and most likely NCGS. (not sure if I have celiac, but I know I don't have severe...
  25. MsCurious
    ME TOOOOO! My testing starting end of January and won't be over until mid April... at least IF its celiac disease or NCGS. Keep us posted on your progress! Good progess reports always give me hope.
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