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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by padma
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ARCHIVED Labeled gluten-free But Really Not
padma replied to big red's topic in Super Sensitive People
As you read through this section you will find lots of references to product names that should help. You will also find the sources of where gluten "hides", like maltodextrin. Some processing plants use wheat flour on their conveyor belts and don't have to list it in the ingredients. Chips and candy (chocolate) fall in this category. By reading, you'll find... -
ARCHIVED Another Possibility Of Why Our Food Is Contaminated With Gluten
padma posted a topic in Super Sensitive People
Open Original Shared Link In a July 27, 2011 notice, the office said Jirah Milling and Sales Inc., of Ormstown, was no longer authorized to market organic products or use the Canada Organic logo (the logo that would now be recognized by the U.S. and the EU). Plus, another Texas case: Last year, a Texas businessman, Basilio Coronado, was convicted... -
Hi. It took some research but here is the ingredient list I found: ToxicFree® Ingredients Stabilized Oxygen, (Sodium Chlorite)* Infused in Distilled Water, Sodium Cocoyl Glutamate (Mild Cleanser). *Stabilized, double bond, active oxygen. Created by processing Sodium Chloride (table salt). Free from synthetic stabilizers and preservatives. I don't ...
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ARCHIVED Fda Seeks Comments From Super-Sensitive Celiacs
padma replied to U Gluten Free's topic in Super Sensitive People
The Fasano study eliminated the super sensitives in their statistical analysis because they couldn't finish the study they were so ill. That kind of skews the stats that the FDA/Big Food Corps is basing their numbers on. Not trying to freak out anyone, especially the new people who are trying so hard to get well. I wish I had had someone in my first... -
ARCHIVED Does This Look Like Dermatitis Herpetiformis To You?
padma replied to MerrillC1977's topic in Dermatitis Herpetiformis
Another thing to eliminate in testing ourselves is skin care products that have chemicals in them. I have DH AND I am very sensitive to most company products. There is a great website to check the safety of skin care products: ewg.org/skindeep . You simply put your product name in the box and click and it gives you the rating for the product. I get a consistent... -
There are some excellent evaluations and discussion on The Canary Report about respirators and masks. There is a search box at the top corner where you can put the word mask and you'll get all the threads about them. I have one for driving around diesel fumes and on airplanes. It is a life saver. I haven't noticed I need one for gluten since I stay out of...
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ARCHIVED High Fructose Corn Syrup & Corn Byproducts
padma replied to CNV2855's topic in Super Sensitive People
There is another unknown in this corn issue... most corn is now GMO. There are European studies showing problems with the GMO's showing up in mommies blood and babies blood. There is a great video on You Tube by a doctor at UCSF about Fructose and its effects on the body. Even if you don't understand the details, it becomes clear that we all should not... -
ARCHIVED Cross-Contamination Realities- Grits
padma replied to Finally-45's topic in Super Sensitive People
Chinese food has been off my list for a long time. Too risky. Even "wheat free" soy sauce usually has some wheat! Ugh! Eating in a cafeteria that is not committed to be gluten free is dangerous. The chef can stir one pot of gluten with a spoon and use the same spoon in another "gluten free" pot. The same goes for tortillas in Mexican food places. I... -
I rarely will eat any salad dressing at a restaurant. If you look at the labels of most salad dressings you will see soy sauce, maltodextrin, MSG, soy protein... all can have gluten. And, of course, the cross contamination is a big problem. If a restaurant tosses their salad in a bowl, that bowl is usually used for salad with croutons. I have had waiters...
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ARCHIVED Just Glutened Myself Alot On Purspose To Identify Reactions
padma replied to shayre's topic in Super Sensitive People
Hi. Just reading your gluten challenge made me queasy. You must remember that you have done what is the standard for testing... eating plenty of gluten food daily for at least 2 months. Since you are tolerating the test, maybe you should stay on it and then be officially tested in 3 months. It sounds like you are the type of person that needs that kind of... -
ARCHIVED Fda Comment Period Open For 20 Ppm Standard For Gluten Free
padma replied to padma's topic in Super Sensitive People
Thanks for finding this. It is excellent. Note that the FDA research has found that 1 ppm is what is recommended by researchers. Here is their summary: Summary: The FDA has developed an internal report which recommends a -
ARCHIVED Fda Comment Period Open For 20 Ppm Standard For Gluten Free
padma replied to padma's topic in Super Sensitive People
This is accurate thinking. The skewed stats ARE being used to set standards. I find it interesting that I would write a long post about this subject, in great detail and only a small portion (from the middle) of it showed up in the email to everyone on this thread, This is what they posted: " read one of the studies done about levels of tolerance for gluten... -
I went to www.ewg.org/skindeep and put my products into their data base to find out if they contained any carcinogens or hormone disruptors. I want to be safe from those as well as from gluten. I have very sensitive skin. I think I get a rash sometimes from gluten. I know I do from chemical exposure. I recently found a totally chemical free, organic line...
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ARCHIVED Fda Comment Period Open For 20 Ppm Standard For Gluten Free
padma replied to padma's topic in Super Sensitive People
I forgot to add this info that the CDF sent to me: Celiac Center -
ARCHIVED Fda Comment Period Open For 20 Ppm Standard For Gluten Free
padma replied to padma's topic in Super Sensitive People
I spoke with a receptionist at the Celiac Disease Foundation about this. Their position is that 20 ppm has been "proven" to be ok for most celiacs. I told her I get ill from 20 ppm. She said I was in a small minority. I told her I was aghast that the organization that is suppose to be my representative in the world and be fighting for my rights would support... -
ARCHIVED Fda Comment Period Open For 20 Ppm Standard For Gluten Free
padma posted a topic in Super Sensitive People
Please go to: Open Original Shared Link Here is my comment: Feel free to use any part or all of it. Document ID: FDA-2005-N-0404-0135: Food Labeling: Gluten-Free Labeling of Foods; Reopening of Comment Period I am commenting on the FDA regulation for defining "gluten free". 20 ppm is too high for many of us with celiac. Gluten Free needs to be... -
ARCHIVED Thoughts On BHT And Gluten Free Chex Cereals
padma replied to txplowgirl's topic in Super Sensitive People
Hi. Sorry you are feeling so punk. You can get excellent info on MCS from TheCanaryReport.com Lots of good threads there. I don't go in bakeries any more. Too much wheat dust in the air. Our sensitivity to gluten is a different mechanism than the MCS, which is triggered by a nitric oxide irregularity. Dr. Martin Pall has studied this and a number of doctors... -
ARCHIVED On The Topic Of Buying Fruit/veggies
padma replied to Newtoitall's topic in Super Sensitive People
First, as politely as possible, if someone wants to debunk what we experience, they should give good references, otherwise, it turns this into a Rush Limbough diatribe. Wine gives me celiac reactions. I am not allergic to grapes. There IS research showing there is gluten in wine, so where is the MYTH? Cut it out! This section of the forum is for super sensitives... -
ARCHIVED Reacted To Something Labeled "gluten Free"
padma replied to ssryan's topic in Super Sensitive People
I am a hyper sensitive celiac and have found that many premade foods that are "gluten free" are not. Since being in this group I am learning enough to be mostly symptom free, but all of the times I have reacted is to something packaged. I think it might be that they are made in factories that are not dedicated or that the food is shipped and stored in close... -
ARCHIVED On The Topic Of Buying Fruit/veggies
padma replied to Newtoitall's topic in Super Sensitive People
Sorry, I couldn't find your little post. I came across an article about wine and gluten. Wine in oak barrels has gluten in the "paste" used to seal the staves. In Europe, they have a standard that wine can not have more than 200 ppm! Wine in most stainless tanks has hydrolyzed wheat protein to clarify the wine. I quit drinking all wines after I read that... -
ARCHIVED On The Topic Of Buying Fruit/veggies
padma replied to Newtoitall's topic in Super Sensitive People
I was raised on a sweet potato farm and none of the farmers, including my family, used any cover crops. Cover crops are expensive and in many places will not grow in the winter. Yams are planted in CA in April and May, if the rainy season is past. No time for a cover crop. Someone made a comment about wine. Not seeing it on this thread. I found out wine... -
I am so sorry you are feeling so bad. That is a clue it IS gluten. Hope you can rest and be in a clean environment for long enough to get balanced out again.
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ARCHIVED I Hate When We Have To Make Decisions Because Of Our Disease
padma replied to T.H.'s topic in Super Sensitive People
Sorry you are having such a tough time with your trip. I have been there myself and it isn't much fun. It is one thing to travel with kids and have regular issues and another to be hungry. I try to find restaurants that have plain meats and plain vegetables. I had dinner tonight and had plain fish and plain beans and I am still well. It was an Italian restaurant... -
ARCHIVED On The Topic Of Buying Fruit/veggies
padma replied to Newtoitall's topic in Super Sensitive People
I wash my veggies, but never peel them. That is where most of the nutrients are. If we keep our immune system strong with gluten avoidance and supplements like aloe, mangosteen, all organic foods instead of taking in all the pesticides and herbicides inside the food, then we should stay healthy. I just found some new supplements that I just received: www...