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WhenDee

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Everything posted by WhenDee

  1. WhenDee

    ARCHIVED Need Advice

    WhenDee replied to Jack V's topic in Coping with Celiac Disease

    Hi Jack... Just wanted to offer a cyber >>hug<< and offer my empathy for your situation. My celiac symptoms started very early in life and I didn't figure it out until I was nearly 32 years old (just a few months ago). No one in my family would have done a single thing to assist me, either. Add to this the fact that my accumulating symptoms...
  2. WhenDee
    Yeah, I got sick on a Mars-brand candy bar that says in one place on the package that the only potential allergen is nuts - then in microscopic print in a fold says, "processed in a facility..." I am extremely anti-Mars EVERYTHING now.
  3. WhenDee
    The USA is SO FAR BEHIND when it comes to food laws. I live abroad now & the stores are full of foods from all over the world. The very, very best seems to be Australia/New Zealand. You want fun food labeling? Try to figure out labels that are 100% Arabic and made in a country with NO packaging laws whatsoever. YAY.
  4. WhenDee
    Any reply you get here that isn't signed with "M.D. specializing in pediatric Celiac..." should be taken with a grain of salt. When I was first coming off gluten I found that homemade smoothies made of fresh fruit only helped SO much - as did fresh juice. I would feel so good after drinking either one, as if my body had been starving for nutrition and...
  5. WhenDee

    ARCHIVED Does Anyone Feel Good

    WhenDee replied to ikayak's topic in Doctors

    Before I knew I had Celiac's I tried the Eat to Live "diet" (I hate to call it that) from Dr. Fuhrman's book of the same name. I had figured out it was something in my diet, was desperate to feel better and thought I had tried everything else, and I couldn't imagine anything more restrictive than vegan. What I found is that I felt FANTASTIC eating that...
  6. WhenDee
    *Raising hand* I was sick for 16 years. It took an overseas move and becoming deathly ill with what they thought was a really serious stomach bug. I was on prescription fluids (the kind you would only get in a hospital if you were in the USA) and a pharmacist told me to do a strict elimination diet. Rice only for three days, then a slow introduction, one...
  7. WhenDee
    In the few days before I was finally diagnosed I was on the couch calmly waiting to die. I was so sick I didn't care anymore. In my case going gluten-free cleared up so many physical & emotional problems that my long-suffering hubby - who has seen me try EVERYTHING to figure out what was wrong - went from being a huge cynic to my #1 supporter right...
  8. WhenDee
    I forgot - I don't have 10 approved posts yet so I can't edit to add... When I get "poisoned" and my body can't get straightened out, I go back to eating rice and raw salad veggies only. Usually for at least 1-2 days. This is what I had when the doctor though my celiac's was a serious stomach bug, and it sorted me out really fast. But when I have gluten...
  9. WhenDee
    Honey, I've been gluten free for six months - six months! - and the other day I ATE A CRACKER. I was making peanut butter crackers for the kids & just put one in my mouth. I realized what I had done just as I swallowed, then sat there in a total panic about whether I should try to make myself throw up. So it's been five days now & my tummy is still...
  10. WhenDee
    This is so interesting. I've had this problem forever. I used to get tons of sores in my mouth, and it always felt like the inside of my mouth was peeling. (Gross.) I am certain I don't have HPV or Herpes A. In my case it was my toothpaste. Going gluten-free helped, but I changed to a natural toothpaste that I have to order online (Tom's) and it helped...
  11. WhenDee
    A celiac friend told me her doctor didn't want to gluten-load her to do the testing. "You don't need this diagosis on your insurance, anyway". I found out I was celiac after moving to the middle east and getting so sick I had camped out on the couch and was waiting to die. What started as a slow elimination diet (starting with nothing but white rice for...
  12. WhenDee
    I will be hoping for you that you find what I have found: such a huge relief from symptoms that it outweighs your sadness. Look this one up for sure, but I *think* I read that if you follow a gluten-free diet, all cancer odds drop to normal or close to normal. I have found that going gluten-free has forced me to confront the unhealthiness of my overall...
  13. WhenDee
    I have one IRL Celiac friend, and hives are her primary symptom. So the short answer is YES. Definitely. And it isn't anything to take lightly - she told me that if you have hives and you get chilled, your blood pressure can drop dangerously.
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