
WhenDee
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by WhenDee
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It's interesting to me how defensive people get about their coffee! The same site that mentions his degree ALSO states that the university was accredited when he received his degree, and lost its accreditation 15 years after his graduation, after an administration change. But it wasn't Cherniske who convinced me. It was all that pesky science he used...
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ARCHIVED Blue Bell Ice Cream-Definitely Not Gluten Free
WhenDee replied to chelsya2011's topic in Gluten-Free Foods, Products, Shopping & Medications
I thought I was getting mystery glutenings all the time, too. But it turns out I have secondary food sensitivities to foods I was suddenly eating a lot more of. Sometimes these mimic gluten in my body's response. A recent gluten convert should not be eating dairy anyway, or Should at least be limiting it. Either way, I think you should look into other... -
Right now I am reading a really interesting book called Caffeine Blues. What has gotten my attention is how frequently the author goes back to auto-immune problems being exacerbated or even CAUSED by excessive caffeine. It works two ways - caffeine exhausts your adrenal glands so that your body either can't respond to allergens or over-reacts. It also...
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ARCHIVED Frustrated With Nausea!
WhenDee replied to sandsurfgirl's topic in Coping with Celiac Disease
Other things to consider.... I was having terrible nausea and recently found out through testing that I have secondary allergies to corn, milk, and a couple of other things. In my case it was the gluten-free cornflakes for breakfast that were making me sick every day. If it is your meds, talk to your doctor about necessary they are, and whether... -
This is not about me, but rather the "friend of a friend". Unfortunately I don't have much more information than what I give you here. A young teenaged boy who was formerly very athletic developed severe neurological problems. Now he has to use crutches to walk. He has been tested for everything under the sun. The only thing that came back positive...
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ARCHIVED Purposely Glutened
WhenDee replied to glutenfreemamax2's topic in Coping with Celiac Disease
You are getting some really interesting replies from people who apparently have much worse gluten problems than you do. I will liken this to my problems with dairy. I KNOW that it gives me gut problems & acne. Is my face clear right now? NO. I have about five knots on my face because I just CAN'T HELP MYSELF. And this morning even the dog ran away... -
ARCHIVED Am I Getting Worse Because I'm Reading Too Much?
WhenDee replied to GlutenFreeNewB's topic in Coping with Celiac Disease
This happens! When I first took gluten out of my diet, the most minor exposure would send me to the bathroom for an entire day, plus I would have a migraine. This from a woman who spent sixteen years with constipation and bowel obstructions! I've been gluten-free for about a year now (it flew by!) and now it isn't nearly so bad. Getting glutened makes... -
Dear God! Why are so many of us continuing to spend time with such soul-crushing people??? Life is too short to spend this way. The world is full of WONDERFUL people. Make some new friends and remove these awful people from your life!
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Hi - this is more of a report than a request for help. I had just submitted a note to the site letting them know I haven't been able to log into the forums for weeks now. Right after sending it, I wondered if the problem was my browser. Lo & behold... I opened up the long-abandoned Internet Explorer & the forums are working FAST and I was able...
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You're in the angry phase, that's what is wrong with you! I was happy to be well when I found out that I thought I would never have an "angry" phase. Wrong! I got glutened at a restaurant and the frustration took over for a while. Eating bread or something straight-out would have made me too sick, but I took lots of chances and did gluten myself by mistake...
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ARCHIVED Hard To Believe What Ive Become
WhenDee replied to jasonD2's topic in Coping with Celiac Disease
I noticed the lactaid, and noticed the "leaky gut" thing in your signature, and I am going to ask if you've thought of going dairy free. Celiac's is caused by a immune reaction to a PROTEIN. My daughter had a reaction to cow's milk as a baby - it was not to the lactose, but rather to a protein in it. Lactose-free didn't help her (we tried that first... -
ARCHIVED Did Your Blood Test Come Back Negative?
WhenDee replied to Prezwilson15's topic in Coping with Celiac Disease
Hi - I just replied to you about the hair loss! Just realized both topics were you. I've never been tested. After years of being told a million different things - IBS, hormonal problems, HYPOCHONDRIA (that is my favorite, told me by a doctor who suggested that if I just went on Prozac I would stop trying to make myself seem ill, AHEM) - I had a deep distrust... -
ARCHIVED Did You Have Hair Loss From Celiac?
WhenDee replied to Prezwilson15's topic in Coping with Celiac Disease
My hair was much thinner before I found out, and grew very slowly. It's healthier now & grows pretty fast. Also, I had vitamin D deficiency. My doctor was stumped and insisted I take a huge supplement - and said I needed to be outdoors more often. I was already outdoors for 1-2 hours per day! My body just wasn't processing it properly. I'll be tested... -
ARCHIVED Anemia And Headaches?
WhenDee replied to WhenDee's topic in Parents, Friends and Loved Ones of Celiacs
Hmmm... How frustrating! I'm in the same boat. It is difficult, isn't it? My diet is such a problem, and during the weeks we did gluten free for her it was really hard. Socially it would be a nightmare for her. I will have her tested, and see where that goes... -
ARCHIVED Testing After Gluten Free?
WhenDee replied to WhenDee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmmmm.... these are interesting replies. I have a "yay" and a "nay". It's very frustrating to be somewhere where the medical care is so lacking, that is for sure. Biopsy is out here, because it isn't uncommon for people to just die from such ordinary procedures here. My daughter needs to be tested, so I may go ahead & do it anyway, just to see.... -
Thank you for all the funny replies. I'm glad you all noticed my sense of humor... yes, still keeping the humor going. And after several days of dairy free, I haven't had a single new bump. That is pretty thrilling. It's a blessing to not have "silent" food problems, it really is. When you know that eating something is going to do something REALLY...
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There's so much to reply to here! 1 -- If your blood test was so positive, why on earth do they want you to keep eating gluten until they do the endoscopy? Why are they doing it at all? I thought that was a last resort for people who were testing negative. My radar is pinging & wondering if someone is trying to run up the insurance bill... I hope a...
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ARCHIVED Dairy Intolerance After Being gluten-free For A Year?
WhenDee replied to melikamaui's topic in Parents, Friends and Loved Ones of Celiacs
I know it would be hard on you (and on him!) to recheck this, but don't discount the possibility of an everyday common stomach bug! I remember from my daughter that it takes two weeks to rid the body of milk proteins entirely, so you'd have to wait that long, but you could check him after that. It would be worthwhile, I think, to be sure. Dairy is a big food... -
ARCHIVED Any Side Effects After Going Gluten-Free?
WhenDee replied to Mummyto3's topic in Parents, Friends and Loved Ones of Celiacs
The only thing I can think of is that they'll seem hungrier at first, because bread is very filling. But for kids it's far healthier to be eating fruit, say, rather than a junky processed floury food. The worst side effect is on mom: how to prepare for packed lunches, snacks, play dates, birthday party replacements, and other social events. Those are the... -
Are you willing to drive a short way? We had good experiences with Dr. Winston. This is where my husband had surgery, and also his father. It is near I-45 and FM 1960. Open Original Shared Link
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One of the best parts of going gluten free for me was figuring out that dairy wasn't the problem, and that I could have milk in my coffee again! Ice cream! Wooooo! For the sake of health and feeling my very best I've gone nearly vegan, except for the dairy. But lately I noticed that my acne has gotten worse and worse despite the much improved diet. Some...
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ARCHIVED Testing After Gluten Free?
WhenDee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm sure this has been asked before, but apparently my searching skills aren't very good. We have to have my daughter tested, because she may have silent celiac's (nearly silent), and I was thinking of also being officially tested. I can't do a challenge because I would get so sick, but it would also be nice to have an official diagnosis after so many... -
I'm sorry for your frustration, and for a difficult situation coming up. At first I remember thinking, "I'm not going to let Celiac change my life!" then getting sick over and over until I will hardly eat anything out. It isn't worth it! People really want to be helpful and make you eat something, and search around for something you can eat, and it's hard...
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ARCHIVED Breath Holding Spell
WhenDee replied to AMom2010's topic in Parents, Friends and Loved Ones of Celiacs
I can't speak to the seizures, but try not to worry about the breath holding. It is a type of tantrum, and the more attention you give it, the more she will try it. I've seen all kinds of things, from a girl who would gag herself and throw up, to my own daughter wetting her pants on purpose in protest when she was three. A pediatrician warned us once about... -
Hi all.. I'm a celiac mom, with a possibly celiac daughter. I'm posting our current experience, in case anyone has any helpful comments! This summer I took her gluten free, and when we challenged her, nothing seemed to change. All the reasons I had for checking her are more longterm problems, really. I spoke to my doctor about a blood test to start, and...