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stanleymonkey

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by stanleymonkey

  1. stanleymonkey
    where are you in Canada? In bc It is covered, I'm stunned it's not covered elsewhere, especially as there are more Europeans out east
  2. stanleymonkey
    I'dstill go see a gi if he asks him go put your son back on gluten, tell him what gluten does to your son.
  3. stanleymonkey
    tofutti cream cheese is gluten free and daiya cheese is also
  4. stanleymonkey
    if your mom is in bc tether to join mid main clinic on main street in Vancouver, we travel from inc to the clinic because they are so nice, agency daughter had a severe allergic reaction and they contacted allergist that day and got an lei pen for her without making us just wait for a federally an allergist ask for doctor McKnight or Joubert, they are great...
  5. stanleymonkey
    mg daughter is back on gluten for resting and some of her rages..wow is all I can say...my husband keeps saying its a normal 'terrible 2 ' moment, well he did until he saw a 3 hour meltdown when she put get shoes in the wrong feet! my sister in law tells anyone who will listen how horrible my child is we told whole family what is going on and surprisingly...
  6. stanleymonkey
    we are in Canada too, and we are debating whether to get a biopsy for my daughter, habeas all the symptoms and our to feels at the very least she is gluten intolerant, but we are unsure what to do as you mentioned......tax break....and also would extended medical cover meds that need to be gluten free without a formal diagnosis, and would schools help us...
  7. stanleymonkey
    ask your dietician about omega 3 vitamin d and calcium supplements, as our daughter can't have dairy she suggested those to make sure she isn't missing out on anything as for the milk, if he won't drink the alternatives try soy yoghurt, or even a flavoured milk and over a few weeks mix it with unsweetened almond and I bet in 2 weeks time he'll be drinking...
  8. stanleymonkey
    there are other great ways to get fat, our daughter has an anaphylactic reaction to dairy, so we have had o be creative. if he wants chicken fry it with the skin on, add vegan margarine to everything, most vegan cheese and margarines are also gluten free, we use fleichmanns, and tuffuti brand, tahini is great source of fat, use it as a dip
  9. stanleymonkey
    weight for dome reason seems to be their guiding light. If your other daughter cf sweat text was questionnaire I'd ask for it to be done again
  10. stanleymonkey
    I'd ask for allergy test and cf test to be redone. Did she have the sweat test? Our daughter is having her cf blood redone even though she had a negative sweat test because they want to double check as with most tests at 2 they are so unreliable. Also what about tb?it is mire prevalent these days it not the first think in the doctors mind;-)~
  11. stanleymonkey
    has she been tested for cystic fibrosis? that was the first thing our daughter was tested for as she has had diahreea pretty much constantly from 13months (she's now nearly 3) i think it is alos an autoimmune disorder, and it was explaine to us that chest issues are not always the first things to appear, and not all kids are failure to thrive
  12. stanleymonkey
    our doc said growth isnt always a good indicator of celiac, even though our daughter put on a pound and grew 3 cm in a month he still oredered a full celiac panel as he said not all kids are the stereotypical pot belly and stick limbs we were always told maybe our daughter was going to be petite but her 8 month old sister is the same size she was at 13 months...
  13. stanleymonkey
    apart from the tummy troubles she is as strong as an ox, we get a cold for a month, she gets it for a day the only real thing that has changed with gluten free is her bread and cereal
  14. stanleymonkey
    we are waiting for genetic tests to see if our daughter has Celica disease or a gluten intolerance. Based on her symptoms gastro says if it is positive celiac disease if negative glutennintolerance. after all , blood work and stool samples were taken we went gluten free....now on day 3 our main issue is behead 2 huge very loose cream coloured stools, then...
  15. stanleymonkey
    my daughter has the same and then it changed to green and grainy, the pale and string like, we are going to contact her gastro if it is like this tomorrow, we are hoping it is just her system detoxing itself
  16. stanleymonkey
    we are waiting in test results but gastro says she is at the very least gluten intolerant she is dairy free, she has an anaphylactic allergy to milk and eggs today she had a green grainy foul stool we just don't know what to do, have appointment at children's hospital in 3 weeks, no point in going to emergency, for the last year and half they just kept...
  17. stanleymonkey
    about 6 months ago and it was fine, all her blood tests show nithing is wrong with her
  18. stanleymonkey
    did your child have a kind of 'clear out' after going gluten free? 24 hrs in and she's had 2 huge very soft and very pale stools that she wasn't able to hold in they also had a very metallic smell sorry for reposting my computer has predictive text....and..well......it's not as smart as it thinks it is!
  19. stanleymonkey
    did your child have a kind of 'clear out' after going gluten free? 24 hrs in and she's had 2 huge very soft and very pale stools that she wasn't able to hold, theyalxo Haskins ora metallic smdll
  20. stanleymonkey
    in need of hug!! started gluten free today for my 2 yr old who seems to understand and is being very brave..i however am having a tough time. we are going to have her all natural foods as much as possible, but we were looking for treats to keep at pre school for unannounced b'days, it ws hard enough with her anaphylactic milk and egg allergies, now this...
  21. stanleymonkey
    could also be milk in donut, a rash after nursing is how we figured out my daughter was allergic to milk
  22. stanleymonkey
    is there another hospital you could go to? Take a copy of the labs and tell them he isn't getting better.
  23. stanleymonkey
    I known make an awesome chocolate cupcake eg and dairy free, the egg and dairy free has been since she was 7 months old, so its all about the gluten... She'll get over it, she's young enough
  24. stanleymonkey
    well, we went back to the gastro as Abigail was miserable. They are redoing the full celiac panel, plus CBC, iron and bit d, they are going to check for tapeworm. Also genetic testing. If the genetic test comes back positive its going to be classed as celiac disease, if not then non celiac gluten intolerance . We want the gene test as my husband, one of...
  25. stanleymonkey
    ANYONE HAD SCOPE AT BC CHILDREN'S? HOW LONG DID IT TAKE FOR A REFEAL, WE WERE TOLD A MONTH IT'S A MONTH AND STILL HAVENT HAD A DATE
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