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stanleymonkey

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by stanleymonkey

  1. stanleymonkey
    I'd find another dentist, we go to a group who are fantastic, one of the first questions they asked was if she had allergies. We told them she was being investigated for celiac another checked everything! And even though she has grown out of her latex allergy they still use latex free gloves just in case. Every visit they ask if there have been any changes...
  2. stanleymonkey
    and now she has started with random nosebleeds, the dietician said take to the emergency department at the kids hospital, but everything we go for anything they tell us she has a virus, her baby sister had a bad allergic reaction, and was covered I. Hives that disappeared when they gave her benadryl birthday apparently was a virus too!
  3. stanleymonkey
    I would tell the school this is a general leaflet and then explain your sons reaction, reinforcing g that everyone reacts differently to gluten (just like food allergies, seasonal allergies, food intolerance), that's what we did with my daughters school, and they were very willing to listen and always ask how she is feeling. she got glutened a few weeks...
  4. stanleymonkey
    they can't give us reason for her swelling, we go back to gastro at hospital in march, to seethe doc who told us in no uncertain terms she has no gluten issue(which she definitely does), and shards and hugs would solve all her issues our family doc and nurse had a feel around and asked if she would respond to pain in the area, we had to tell them we didn...
  5. stanleymonkey
    birth 2.88 kg 3 months. 5.65 kg 6 months 6.74kg 9 months 7.5 kg 12 months 8.1 kg 24 months 11.9 kg 27 months 11.4 30 months 12.5 32 months 12.9 36 months 12.5 37 months 12.9 her belly measured round the belly button pre gluten free 56cm , after gluten free 44 cm I'll try and figure out how to post pictures because the pictures say it all...
  6. stanleymonkey
    okay here's a brief history hope someone who has been through all of this can help us figure out what is going on its about my 3 yr old anaphylactic allergies to milk and eggs allergic to penicillin en clarifying soy intolerant had lots of tummy troubles, rashes, behaviour issues, joint pain sent to gastro gastro 1 - ran ful, celiac panel, thyroid...
  7. stanleymonkey
    my little monkey had rice noodles, chicKen, roasted parsnips, kale, and hummus
  8. stanleymonkey
    our daughter had positive gene test but everything else was negative, the GI at the children's hospital said that meant she had absolutely no issue with gluten and her tummy problems and rashes were nerve damage, we went gluten free and all her issues disappeared
  9. stanleymonkey
    give it try, my daughter never slept, now gluten free she sleeps 11 - 12 hrs straight
  10. stanleymonkey
    our dietician suggested chicken, skin on, and fried! and butter/margarine to everything
  11. stanleymonkey
    if you don't want him to have milk at day care, tell them water is fine. you can make sure he gets the calcium he needs at home.
  12. stanleymonkey
    my hubby has crohns and daughter has celiac. I've seen how miserable it makes them both, once you get rid of the bacterial overgrowth hopefully you'll be able to concentrate in eating the right things to help your hut heal. My hubby had a bowel resection at 15 and had his gallbladder removed a year ago. If you do what the gastro says and dieticians regarding...
  13. stanleymonkey
    my 3 yr old has gluten free pomegranate granola, rice chez, hemp hearts, cranberries, raspberries, ground flax and almond milk all mixed up in a bowl or gluten free waffle with toffutti cream cheese
  14. stanleymonkey
    try lax a day, its active ingredient is p.e.g 3550, non addictive and a stool partner rather than laxative. When our daughter gets bad we have to do a double dose for 3 days to clear out what is backed up and then a single dose daily for at least 3 months, works lime charm with no side effects well apart from the 3 days when the whole world seems to escape...
  15. stanleymonkey
    if she has had constipation for a while it might be worth talking to a gastro or even a paed about a bowel maintenance programme. It involved giving her p.e.g for 3 months, and things like making her go and sit on the toilet at regular times (it downs't matter if she goes or not), and a diet with fibre and water spread throughout the day. It really helped...
  16. stanleymonkey
    trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else back to the docs to gloat and ask to have the lump checked
  17. stanleymonkey
    I'm a teacher and I banned sanitizer in my classroom, the over use over hand sanitizer is like the over use of antibiotics! I taught in the middle east, and most kids who had nannies were sterilized every time they touched something, crazy huh? to the OP, I'd try cutting out all dairy, caesin can be a big issue even for people who aren't celiac. The body...
  18. stanleymonkey
    eating everything can be a symptom, when my daughter was at her worst and not absorbing much she would eat us out of house and home, even eating things she would normally turn her nose up at. We manger to get her to eat spinach and shrimp, now she is on th road to recovery she tells me she doesn't like the taste!
  19. stanleymonkey
    our daughter needed to gain weight and is gluten dairy egg and soy free. We were told to add vegan margarine to as many foods as possible,e, fatty meats, leave the chicken skin on and let her eat it, fry it if possible. tahini is great dip for veggies. Make smoothies with coconut milk and your favourite fruits, add a little coconut oil for extra fat....
  20. stanleymonkey
    my 3 yr old does it, we have to poke her other her out of it
  21. stanleymonkey
    our daughter has positive genes, negative on every blod test , had them taken 3 times in 8 months, but doing amazing gluten free, she still gets stomach aches and weird bm's and keeps telling me that her tummy hurts and there are bad things in her tummy, going back to gastro soon if it doesn't stop. we were told she is too young for crohns at 3 , but her...
  22. stanleymonkey
    get in touch with the celiac foundation they can tell you, also call midmain community health clinic 604 8733666. The nurse Amra is awesome, tell them you have celiac and need a doctor, or even ask to see Amra and get her to tell you the best doc, she found us the best pediatricians in the whole of b.c who in turn found us the best gastro
  23. stanleymonkey
    check the substitutes are dairy free and gluten free, also soy may be an issue if you have dairy issues rice milk is good, if you use it for baking you may need to add a tiny bit more fat to the recipe as there is a lot less in rice milk than regular dairy our daughter is celiac and has anaphylaxis towards milk in any form, we use silk soy and almond...
  24. stanleymonkey
    and glutino brand pretzel and bread sticks.....sooooooo good, no-one in our family noticed the difference
  25. stanleymonkey
    enjoy life brand has cookies, cereal bars, cereals, they are guaranteed top 10 or is it 11 now? Allergen free, we give them to our daughter who is celiac, and has anaphylactic milk and egg allergies and she loves them. The stuff is sweet, so we tend to break it in to portions
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