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stanleymonkey

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by stanleymonkey

  1. stanleymonkey
    Tim hortons now have gluten free coconut maccaroons, certified gluten-free by the Canadian celac association, kept in packets so no cc from Tim bits!!!!! By all accounts they re yummy!
  2. stanleymonkey
    Black tarry stools are usually a sign of intestinal, or colon bleeding, if it happens again I'd take him to the nearest emergency room, he may need blood products. Passing mucous is usually a sign the intestines and colon have been damaged. Think of it as when a cut is healing and you get the white blood cells making it appear a bit weepy. I'd talk to...
  3. stanleymonkey
    Having to go gluten-free turned out to be a blessing in disguise for us, we had to change some of the things we ate, and making them gluten-free meant less processed things, my 4 yr old will eat things that her friends won't touch. We tend to make as much as possible from scratch then we know itvs safe, and she seems to like the food more. Reading labels...
  4. stanleymonkey
    First thing I would ask is how many samples they took. They intestines are long if they took a small amount they likely would have missed damage. I would also ask to see the pathology report for yourself
  5. stanleymonkey
    An X-ray is a good idea, you will quickly know if she is all backed up. My eldest didn't even need that, the doc touched her belly and could feel hard stool throughout her gut
  6. stanleymonkey
    I guess the baby is getting gluten as just because the eldest 2 have celiac does not mean the youngest will, or any of the others. We are expecting our 3rd ndnour immunologist has told us that exact thing. kids are a genetic lottery. My eldest had anaphylactic allergies, my youngest has none. Our girls have not been officially diagnosed, but have been...
  7. stanleymonkey
    Low alkaline phosphates is common in scurvy, which I doubt you have! You may just need more vit c It can also mean low b6, folc acid, or thyroid issues. It can also mean too much vit d, or malnutrition As therevarevso many possibilities, I'd go back to your doc when you get all your results andgetnhim/her to go through them and help you akebsurevyou are...
  8. stanleymonkey
    With miralax, it's important when you start using it to do a 3 day "clear out" our gastro made us give our daughters a double dose for 3 days to get everything out, then a normal dose from there on, the clear out ensured they were shrinking an empty bowel rather than one that is still full of poop.
  9. stanleymonkey
    My eldest had horrific tantrums that would last for hours, some days from dawn to dusk she would lie on the floor crying, only stopping to have diahrrea up to 20 times a day. She would hardly eat, yet she had a huge stomach . She had a rash that we were told was excema, yet never responded to any cream. The skin was burned off her inside thighs from the...
  10. stanleymonkey
    Iron can make you constipated. My kids have suffered from chronic constipation for years. It could be 2 things - she is so backed up she can't feel the need to go as her bowel have been so stretched out, and stuff leaks out. That's what happened to my kids. My eldest had diahrrea 20 times a day so we never thought she was constipated. It could also...
  11. stanleymonkey
    With some individuals iodized salt and iodine can irritate DH. If she can handle dairy and eggs, try increasing those for a few days. Cod is another source also dried seaweed that you get in the little packets at japanese food stores, and at the big grocery stores. Seaweed has a lot of iodine, my kids can only handle a little bit every few weeks without...
  12. stanleymonkey
    There as been recent research at Louisiana state into dominant genes and celiac disease, they have drawn links between certain genes and dominance any Irish ancestry. Our immunologist knows someone who did some of the research. , I'll try and figure out how to post the link
  13. stanleymonkey
    The anti body tests are unreliable in 2 yr olds, that's why our soc told us to make our youngest gluten-free and not even bother with testing. Young kids havevtongave horrific damage to make antibodies even lose to the range they givevforpositive. Our immunologist advised that antibody testing in kids under 5 , she said there are too man false negatives...
  14. stanleymonkey
    My 4 yr old had reflux, it has almost completely gone gluten-free
  15. stanleymonkey
    It may be a resessive allele, you may need 2 of them for it to be dominant therefore having just one and one of another means it is resessive therefore irrelevant. Eg 2.5 and another 2.5 would be positive genetics for celic but 2.5 and 2.6 2.6 is dominant so the 2.5 genetic material has no impact ( don't know if there really s a 2.6 but thought it might...
  16. stanleymonkey
    Our doc advised against a gluten challenge in our then 3 yr oleg as it made her do sick. You need to tell the doc how sick the challenge made him. Ask to be referred to someone who has some knowledge of celiac disease. It will be good for her to educate her withnrhevresearch oh have done, but if you get seen by someone who has knowledge you may get a diagnosis...
  17. stanleymonkey
    Magnesium deficiency can cause cramps as well, when we switched my eldest to calcium plus magnesium her cramps went
  18. stanleymonkey
    2 weeks to get in to an allergist? Wow my daughter had an anaphylactic reaction and it took us 4 months! I'd see as many specialists as you can , gastro, allergist and derm. Our gastro dismissed us as our daughter was didn't have the symptoms he expected, she was constipated and he was adamant that meant she had reflux!????? Our allergist on the other hand...
  19. stanleymonkey
    Is your allergist an immunologist too? Most ped allergists tend to be. If he is I would talk to him about celiac disease as well as the gastro. Our allergist/immunologist was annoyed that we were getting the brush off from our gastro and said based on her symptoms, and a rash wish she was 100% positive was DH, and her dramatic improvement gluten free, if...
  20. stanleymonkey
    It is possible to test negative to an allergen but be allergic. My eldest tested negative to milk, yet she had 1 drop of milk into anaphylactic shock! Skin prick testing and IgE blood testing are not 100% accurate. I also get where you are coming from the allergies vs celiac disease. Our daughter outgrew her milk allergy, and it was such a relief, but...
  21. stanleymonkey
    Magnesium deficiency is a big cause of pain and cra,ping. Our dietician suggested it as a cause for our eldest
  22. stanleymonkey
    Rice pudding with fresh fruit my kids love it. Get the big sacks of rice from the Chinese stores they are cheap, use whatever milk you like. You can make your own granolas meusli we do as our kids Yates change all the time. We always have dried fruit and nuts at home, we just occasionally buy the other bits and pieces. It's ever the same twice. A staple...
  23. stanleymonkey
    Has he fallen recently? My eldest complained of knee pain, and it turned out to be synovitis. How old is he? There is a specific type of fracture younger kids get at the top of their bones, they often complain of knee pain it isn't always picked up on X-rays until a few days later. My youngest on the other hand complains of foot pain when exposed to gluten...
  24. stanleymonkey
    My eldest couldn't handle any formula due to anaphylactic allergies, our doc recommended domperidon for increasing milk supply, it's an antacid I think, they don't know why but in 48 hrs you'll have milk to spare you can adjust the dose, I took lots the first day, less the second, boy was I engorged!
  25. stanleymonkey
    I know it could be gluten, but there is always the possibility of food poisoning, especially if she threw up within 2-8 hrs of eating the hot dog, maybe it wasn't cooked properly. With food poisoning, once you've got rid of the offending item, you would feel better.
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