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stanleymonkey

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Everything posted by stanleymonkey

  1. stanleymonkey
    Betty Crocker makes a great gluten free chocolate box cake mix. We had it and didn't tell anyone and no one noticed! As he has an allergy, get your doc to write a letter to th school outlining his allergy, and his recommendations, and include a letter from yourself outlining what you need the school to do. Talk to his teacher, and the principal. As overwhelming...
  2. stanleymonkey
    I'd keep taking her to the er when she is bad, it may make them bring the gastro to YOU! If they suggest the gluten free diet, make sure they know the gastro said no till he has seen her. They will like lynhave a gastro down there pretty quick! While we were waiting on tests for our daughter she was really ill, and they sped up our initial visit from 5 weeks...
  3. stanleymonkey
    We were told our daughter just had toddler diarrhea, turns out she was realllllly backed up the diarrhea was just leakage. But it was the same kind of response, she's growing she doesn't look like a starving child, so she's fine.
  4. stanleymonkey
    Our allergist said that she wished our daughter had been sent to her first, she would have diagnosed celiac on the spot with the rash (she said by looking at it it was very likely DH), her symptoms and her positive genetics, and given that pretty much all her health issues disappeared gluten free including anaphylactic allergies. Celiac is an autoimmune...
  5. stanleymonkey
    Testing in young kids can be very hit and miss. My 4 yr old was tested at age 2 she had the full panel everything was negative apart from the genetic test. My 2 yr old was tested a few months ago, only thing that showed up was aneamia that was slow to respond to iron supplements. Thankfully our ped said given her sisters reactions, and genetics, and the...
  6. stanleymonkey
    We taught our daughterno ingredients no eat, so if she sees no ingredients on something she refuses to eat it even if we offer it to her! She started preschool at 2 1/2 and we told her no food from anyone other than mom and dad, and she has never accepted anything. I think the age when a child is old enough to be an advocate for themselves depends on their...
  7. stanleymonkey
    If you need prepackaged snacks just to keep n hand for emergencies try enjoy life, free of the top 11 allergens,
  8. stanleymonkey
    We were told me eldest could not possibly have any issue with gluten because she was following her growth curve, she wasnaround the 25 th percentile for height and weight, both her dad and I are on the shorter side so they said no issue, gluten free she grew 3 inches in 3 months! And hit the 50 th percentile. Growing doesn't mean damage isn't being done...
  9. stanleymonkey
    I know it may sound. Bit mean but there may be a silver lining to this... Your daughter will probably remember how I'll the cookies made her. This may be the perfect opportunity to explain that the gluten made her so I'll, that is why it is very important that she only eats food you send her with. She may be sad at not getting the treat everyone else had...
  10. stanleymonkey
    Our daughters allergist uses skin prick tests but explained they aren't always accurate, your skin isn't your gut. Our daughter had a small hive for milk and a low igE blood test, but one sip of milk and she was a mess. The only true way to know if you are allergic to something is by ingestion. Talk to yor allergist about an elimination diet, and a food...
  11. stanleymonkey
    When my 4 yr old gets constipated she gets reflux and complains of right sided pain, something to do with the change from small to large intestine being in that area her GI said(if I remember rightly) and if you are really backed up, nothing can go down, so it has to come up It's good you can tolerate oats, if she has oatmeal she's regular as clockwork!...
  12. stanleymonkey
    That's the thIng they are not poor, their income is at least twice ours, Because we live with my inlays we have to be careful ot to rock the boat, but they seem to think everything is theirs! They even took one of kids tops because they liked it and hadn't seen our eldest wear it for a while, needless to say the next time we were at their house I just took...
  13. stanleymonkey
    Does anyone have a relative like this? We live with my husbands parents. His brother and wife come round for dinner at least once a week and NEVER bring anything, and even take the leftovers for THEIR kid for daycare. They always ask us to take things to their house though. Now they have decided to have an Easter egg hunt at their house. They want everyone...
  14. stanleymonkey
    My daughter tested negative for everything under the sun, despite having diarrhea 20+ times a day, no fat on limbs but huge belly, thinning hair, nails not growing, horrific rashes that didn't respond to treatment, odd behavior Our original diagnosis was reflux, and to cut out juice (which she never ever drank) and dairy ( which she had an anaphylactic reaction...
  15. stanleymonkey
    My then 2 yr old had what we were told was excema, no creams fixed it, gluten free did. Her behavior was odd, she was scared of the stairs one day! That stopped gluten free. We're still,working on the bed wetting, but 2 1/2 yrs of chronic constipation have made it hard. I've read a lot of people on here mentioning anxiety as a symptom. Our youngest didn...
  16. stanleymonkey
    Nay inside is good, I think they now have a soy free
  17. stanleymonkey
    We usually mix almond and coconut flour with a little bit of rice flour, and rice chex crunched up, gluten free rice krispies work well too, we marinate the chicken in lemon and then egg, flour mix, egg, flour mix If you bread it twice it comes up crispier( my father in law owned a Chinese restuarant for 20+ yrs and said secret to crispy even coating is...
  18. stanleymonkey
    She has had a positive genetic test and grew 3 inches and put on 4 pounds in 3 months gluten free. Our original gastro wanted a scope to rule out or rule in celiac but because the gastro deptbat hospital say no, that's the end of everything, no diagnosis, no chance to find out what is really going on, which sucks as her dad has Crohns and it would be nice...
  19. stanleymonkey
    Our daughter is starting kindergarden in September, and we are very nervous. My husband and I are both teachers, so even thoug people tell us it will be okay we know the reality when you have so many kids in a class. Our main concern is a lack of diagnosis, just our experience. Age around 26 months sent to gastro for chronic diarrhea losing lots of weight...
  20. stanleymonkey
    she may not be happy st first, but be assured she won't starve. My 3 yr old would only eat rice the first few days gluten free, then decided she was hungry, and now we can't keep her full. We've worked with a dietician due yo other health issues, and she made the suggestion of not putting food on her plate, but the food in the middle often table and let...
  21. stanleymonkey
    guys don't stop growing on average until 21, girls 18 as they usually hit puberty earlier, so fingers crossed!
  22. stanleymonkey
    they are in b.c too, in fact we have a box in the cuoboard
  23. stanleymonkey

    ARCHIVED Coming Appointment

    stanleymonkey replied to dani nero's topic in Doctors

    take any old test results with you prepare a list of questions you want to ask, I got to see the head of department for my daughter and I wish now I'd prepared because there were things I never for to ask a family history if there are autoimmune conditions - on my husbands side there is crohns, hypothyroidism, hyperthyroidism, anaemia and our pediatricians...
  24. stanleymonkey
    hemolyzed is the most common reason for lab results bring rejected do yours aren't completely reliable because of this so he should run them ALL again also hemolysed blood can be due to anemia , an autoimmune (!) condition, or plain sloppy lab tech's
  25. stanleymonkey
    remember lots of handwashing,just in case it is a bug, I glutened my 3 yr old, I felt awful, I cried with her when she was in agony hugs from Vancouver
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