Jump to content

stanleymonkey

Advanced Members
 View Profile  See their activity

  • Posts

    250

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by stanleymonkey

  1. stanleymonkey
    It might take her a while to get used to the different textures and tastes. Gluten can be a bit like an opiate, so the food she is getting is not what her body wants hence the low appetite. Our eldest hardly ate for a while, now I can't keep her full! If you are really worried about her weight here are some suggestions our dietician gave us. Switch back...
  2. stanleymonkey
    Our daughters ped told us gluten intolerance does not make you anemic but celiac disease does. I don't know if he's 100% correct but that's how we got a diagnosis
  3. stanleymonkey
    We are in Vancouver bc children's does all the leg work, we are going to see a respirologist the ENT said it would be quick....hopefully
  4. stanleymonkey
    Ranitidine can make you feel kind of off, my daughter didn't tolerate it well, she was so sluggish on it
  5. stanleymonkey
    With medication lines they have to wash them down really well between lines. They can't afford to have cross contamination of medications as it could potentially interact with another medication, or kill someone. They have to adhere to much stricter conditions than food manufactures, hence the factory that makes buckles being torn apart because of teeny...
  6. stanleymonkey
    The first few times my daughter accidentally had gluten she had no visible reaction, but that doesn't mean damage isn't being done inside. Now even a tiny bit renders her useless for a week. Unfortunately celiac testing in kids is not always reliable, my daughters bloodwork was negative but she is so I'll from gluten that the GI said it could kill her....
  7. stanleymonkey
    We are in canada so everything is done through referrals, so they are pushing things through as fast as they can. We know who we want to see. My eldest saw a gastro so the sibling connection helps speed things up as well. Also thankfully for kids they do a vial blood test for iron. It's just a waiting game waiting for departments to sort out things.
  8. stanleymonkey
    She was aneamic but her last iron levels were really good. The things she spits out 6 months ago she used to eat. After she spits things out she starts crying that she's hungry. pICA was discussed but last time she even licked walls, ate her shoes, her sister, anything was food to her and she ate it! There main reason for questioning EE is regression,...
  9. stanleymonkey
    They want to do a sleep study before even thinking of surgery thankfully. Our ENT is firm on sleep study before surgery. She's lost weight so the allergist will definitely push for an EE investigation. Today she ate scrambled eggs and yogurt, everything else she was given she chewed and spat out.
  10. stanleymonkey
    With young children the testing is very unreliable, our ped told us to stop with the testing route with my youngest and diagnosed celiac based on symptoms, and the fact her sister had the genes for celiac disease. We went through hell trying to find out what was wrong with her sister, and got an official diagnosis of reflux. An official diagnosis can be...
  11. stanleymonkey
    Our ENT was really clued up about EE so hopefully he sends us to a gastro who is. The intern who did our initial consultation had never heard of it. Her tonsils are normal size and the ENT said he won't remove her adenoids until he knows for sure it's obstructive apnea. We already have an allergist, and she knows a lot about EE and she wanted our eldest...
  12. stanleymonkey
    That's awesome. We found a licorice store near us that has gluten free licorice, and makes their own gluten-free waffles, the grind their own flour! It's so nice when you find somewhere safe. We found a 100% gluten-free bakery, everything made from scratching their store, the look on my 4 yr olds face when I said pick what you want, of course being her...
  13. stanleymonkey
    We had an appointment with an ENT on Wednesday and may have found the best doc ever. Our 26 month old was sent to see this doc due to snoring, suspicions of apnea, and regression in eating. We were talking about her other health issues and mentioned she was gluten free because she had issues when she ate it such as constipation, rashes, screaming, and...
  14. stanleymonkey
    If your throat swells you need to get a prescription for an epi pen from your doc As for cleaning I found when I had an all tile bathroo, we are talking walls and floor with a drain in the middle, tide free powder was awesome for cleaning, used it in the toilet as well, wet everything sprinkle it on scrub and rinse, was so much better than any other cleaners
  15. stanleymonkey
    Our GI refuses to test her, he told us she had no issues with gluten,mans no chance of EE even though her allergist said she did. He diagnosed her with reflux, and told us not to change her diet. After her getting even sicker, we cut out gluten. She miraculously got better. We went back to him and he told us off for removing gluten, said if we kept her...
  16. stanleymonkey
    Our daughter had a high eosophinol count and we were told she had an allergy to something and was reacting, our allergist did skin testing and wanted our GI to test for eosophiniloc esophageas ( sorry can't spell it), of course he refused
  17. stanleymonkey
    Corn pasta is also good
  18. stanleymonkey
    Does she snore as well? My youngest started gagging and choking which was surprising as at 11 months she was eating spare ribs with 3 teeth, then at about 18 months had to go back on baby food. She is getting her adenoids checked on Wednesday. I second an occupational therapist, our ped went that path first, they were helpful, there was no issue, but they...
  19. stanleymonkey
    If she was off gluten for a while 1 slice of bread for 9 weeks may not be enough. I don't understand why they won't accept the diagnosis of the er. Perhaps you could get the, to get in touch with your new doctor. It's like being diagnosed with cancer, having chemo, then the new doc saying I see no tumor after your 6 months of chemo so you never really...
  20. stanleymonkey
    Our daughter had an allergy to milk. She outgrew it but we limit it. To help her system we rotate between non dairy milks and cows milk. Try almond yogurt yummmmmmy! We also mix daiya gluten-free dairy and soy free cheese with regular cheese in things. Baking changes the molecular structure of egged and milk so you don't need to worry about baking. ...
  21. stanleymonkey
    You may find when she is prescribed something a pharmacy finds it easier to identify gluten-free name brands than generic.
  22. stanleymonkey
    I joined a Facebook group for Celiacs in my area thinking they would be able to provide support, they know the area, the stores etc. the lady running it has been driving my crazy. Someone asked about tax returns as in Canada you can get some of the money back. I mentioned my experiences with the tax people and she kept going on about celiac this and celiac...
  23. stanleymonkey
    My 4 yr old is very irritable after gluten, I n the other hand get irritable after talking to the GI at our local kids hospital!
  24. stanleymonkey
    You need to see a different doctor. We were told because our daughter was around the 25 th percentile for height and weight and had been since 6 months old she could not possibly have celiac disease or any gluten sensitivity. WRONG! Gluten free she grew 3 inches in 3 months and put on 4 pounds, she jumped to the 50th percentile for height and has stayed...
  25. stanleymonkey
    Our daughter is 4 but we have taught no ingredients no eat. She isn't afraid to tell people I have to ask my mummy first. The only person she readily accepts food fromis one of her aunts who totally gets it, and calls if she's unsure. One thing that might be worth doing for things you buy and send to school, is to make a sticker that says wheat and or...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.