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M0Mto3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by M0Mto3

  1. M0Mto3
    I can understand your fears. If DD was not my last child I would be scared to give my kids gluten, too. With all that she went through I don't know if it would be worth it. I like the idea of waiting until he can communicate to you how he is feeling. If you start now you may end up playing a guessing game to try to figure out if there are symptoms. ...
  2. M0Mto3
    My LO is 18 months old. She also had similar symptoms to your LO, including the huge drop in weight %ages. I would not discount gluten even if the test comes back negative. We know that gluten is my daughter's issue and her bloodwork is negative. She is a totally different baby without gluten. She also reacts pretty violently now when she does get exposed...
  3. M0Mto3
    My LO started with issues just from the gluten that was passing through breastmilk. The info your ped gave you is not correct. Her weight gain issues started before the introduction of solids. Her initial reaction to rice cereal (due to cross contamination) was open sores on her bottom. We did not pinpoint gluten until she was 10 months old and had dropped...
  4. M0Mto3
    Just wanted to wish you good luck tomorrow!
  5. M0Mto3
    I read a while back that baby wipes are gluten free. I can't tell you where I got that information, but I know I looked into it and they were gluten free.
  6. M0Mto3
    If it is a true allergy you can do the skin testing. Most of the time in young children it is a protein intolerance. This is known as Milk/Soy Protein Intolerance (MSPI). There is no test for this. Also, if there is an issue with gluten and the intestine is currently in the healing phase there is a good chance that your LO will not tolerate dairy.
  7. M0Mto3
    My 18 month old drinks Almond Milk. It actually has more calcium than Cow's Milk. I give her the Vanilla flavored because she needs the calories (she is only 20.8lbs). I have never had a daycare question giving my child the milk that I provide. Not sure if you want to do that, but it is a great alternative to Cow's Milk.
  8. M0Mto3
    My middle son struggled with constipation and a daily probiotic did the trick for him. He also did not sleep well when he was constipated, but he did not have night terrors. My daughter (who has gluten intolerance) was failure to thrive from her issues with gluten. It doesn't sound far fetched that your daughter might have it. It might be good to get...
  9. M0Mto3
    My 18 month old was failure to thrive from her gluten issues, so I have also tried hard to give her a high fat diet. So (please do not judge, it has been a painful road watching my baby waste away) she eats french fries, potato chips, gluten free chicken nuggets, hot dogs, bacon, anything I can put peanute butter on, gluten free pizza (either homemade or...
  10. M0Mto3
    I just commented on your other post. Pediasure is dairy, so that may be making her issue worse at this point. I will just share my daughter's symptoms of Celiac's, but I know that it isn't the same for everyone. She was dropping off the charts for weight despite eating a TON of food. She had no energy and was having developmental delays because of it...
  11. M0Mto3
    I think that you should talk to your ped about seeing someone for feeding issues. Has she always not eaten much or is this new? Is she acting ill? Is she having a lot of bowel movements or frequent urination? If she is not eating much during the day it wouldn't be surprising that she is waking up acting like she is starving. I would really work on her...
  12. M0Mto3
    Her reflux/constipation issues sound similar to my son's. I ended up putting him on a probiotic every day and that cured him of his constipation. He was bouncing back and forth between constipation and diarrhea when on Miralax, also. When he was constipated he would not sleep well and was miserable all around. As far as we know he does not have issues...
  13. M0Mto3
    If you have a pretty good pediatrician, you may even be able to convince them to do the bloodwork for Celiac's Disease. They may be sensitive to gluten without having Celiac's, but if they did have it you would definately have an answer. Regardless it sounds like it may be worth going gluten free even if they tested negative. My daughter's biggest issues...
  14. M0Mto3
    My 17 month old is also very picky. She does like yogurt, gluten free mac and cheese, french fries, hot dogs, fruity pebbles and cocoa pebbles cereal and bars, fruit (all kinds), gluten-free pancakes (I use the Gluten Free Dreams mix), gluten-free chicken nuggets (Wegman's grocery store has their own brand) and lunch meat. I am hoping that her pickiness...
  15. M0Mto3
    Glad to read your update. I think that you did the best thing. Any damage is bad and hopefully she will be better once gluten free. My 17 month old also looked like her belly was so distended by the end of the day when she was on gluten. Hopefully your little one will get healthy soon!
  16. M0Mto3
    Yes, my 17 month old has been tested and she tested negative. She had been gluten free for 3 months and went on a gluten trial for 2 months. Although her bloodwork was negative she was quite symptomatic and the GI doc agreed that she has issues with wheat. The ped and I agreed not to push it any further because she had failure to thrive because of gluten...
  17. M0Mto3
    I am fairly new to this as well. My 17 month old is gluten intolerant (Celiac's is very hard to diagnose in very small children). I am starting to get anxiety over things like crumbs and using flour to bread chicken. Right now we feed her different meals (she is also a picky eater), but I don't know how long this is going to last. I think we just need...
  18. M0Mto3
    Although it is tough to keep her on gluten, it is better to do it now. My little one is at the point that she may never get diagnosed. After a 2 month gluten challenge (which she did not tolerate) she still had negative bloodwork. Now, she is gluten free and healthy. I know that I would never put her back on it. She got a speck of gluten in her almond...
  19. M0Mto3
    Your daughter sound very similar to mine. She was born at the 50th% for height and weight. By 10 months old she was 50th% for height and down to the 5th for weight. She is not diagnosed. Her ped intially did not do all the bloodwork. Then, she referred to GI. When she saw him it had already been 3 months of gluten free. He wanted her back on gluten...
  20. M0Mto3
    My second son (non-celiac) struggled with constipation since I weaned him from breastmilk at 1 year. I finally (after being on tons of meds) took him off the meds and put him on just a probiotic. He has gone basically every day since (over a year ago). Maybe a probiotic will restore the normal flora to her poor little gut to help get her back on track...
  21. M0Mto3
    So sorry to hear that you didn't get any answers from the doc. I know I shared this with you before, but I did put my little one through the gluten challenge and the only good that came out of it was that the dr's saw how awful she did on it and they believe that she can't tolerate gluten (or at least wheat). I think that you have to just trust your...
  22. M0Mto3
    Just out of curiousity, how old is your husband? Three years ago my husband was diagnosed with Type 2 diabetes for about two days. His doctor realized pretty quickly that he actually had Type 1 and was still in the honeymoon phase. In other words, he still had some insulin producing cells, but within a few months these were completely killed off. When...
  23. M0Mto3
    Praying you do get some answers. Many times as the gut is healing from gluten issues there are other intolerances that may eventually go away. The other thing to look really closely at is cross contamination. Including condiments that may have crumbs in them, the toaster, old pots and pans, etc, etc. It takes months for the antibodies to build in the...
  24. M0Mto3
    If your son has never been off gluten, then I don't know that you would have to follow that statistic. You said he is gluten lite. If he has always been consuming gluten then he didn't have any period where he would have stopped reacting to gluten. When you are totally gluten free you heal the damage that had been done by gluten. So, if you go back on...
  25. M0Mto3
    I may not be the best person to describe this, but I am going to try. IgA is a type of antibody. The total IgA level is tested when bloodwork is done for Celiacs to determine if the person creates enough antibodies to do the IgA type of antibody testing. Any IgA testing on your daughter would not be valid because she is IgA deficient. So, in order to...
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