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lilu

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Everything posted by lilu

  1. lilu
    Wow. Given the current economy and how hard jobs can be to find, that's a tough one. I think at the very least he should start wearing a mask at work to avoid inhaling flour. If it's a local place, he could talk to the owner about creating some gluten free menu options. Still, as pizza is my favorite food, I think were I in his shoes, I'd ultimately have...
  2. lilu
    No, no, no... Please do not give him gluten! From an addiction perspective that's like giving an alcoholic a little bit now and then to take the edge off. Giving him gluten now will only prolong the withdrawal. From a celiac perspective, additional damage will keep happening if you do this, which will result in a longer healing time and greater injury. ...
  3. lilu

    ARCHIVED Lunch Ideas

    lilu replied to staci002's topic in Coping with Celiac Disease

    So, suggestions on what to bring FOR lunch... There are some good frozen gluten-free meals available if you have a microwave. EVOL bowls, Amy's bowls and some other products, Glutino frozen lunches to name a few. You can also bring dinner leftovers (which is what I try to do). I freeze them for a couple days first so I'm not eating the same meal two days...
  4. lilu
    You can do this and we are all here to help! Recipes, tips, how-to-starts, shoulders to cry on, success stories to inspire, tales of mistakes letting you know you're not alone. Living with others who aren't gluten free, or keeping a gluten free home, related illnesses and other food intolerances. Whatever you need, just ask. It's here! Best of health...
  5. lilu
    Can't help but notice that it sounds like you were eating a lot of processed foods. Maybe I misread? Anyway, if you have been, then you should know that even "gluten free" foods may still have some gluten in them. Depending on the agency they were certified by, they can still contain somewhere between 6 and 20 parts per million. While this amount seems...
  6. lilu
  7. lilu
    Re: body products, etc. I wondered about this too at first, and ran into several contradictory statements... Yes, you do need to avoid external products with gluten; no, it's just what you're eating that matters; yes, you should avoid gluten containing products, but only things like lip gloss and toothpaste; no, avoid all gluten containing products; on...
  8. lilu
    1) GI docs can go either way... They can be very knowledgeable or not. It's kind of a roll of the dice. Also, they tend to look at test results as the defining criteria. The problem with this is that if you are not in an advanced disease state your blood work and/or biopsy may come back negative. Do the testing, but prepare yourself for negative results....
  9. lilu
    One thing I have found helpful is to provide them with MEDICAL information. Unfortunately, it seems that those who don't want to believe in the strict adherence required also don't put a lot of weight in information from sources such as blogs, forums, etc. When I've come across this kind of attitude, I find whipping out the "official" guns can help. Here...
  10. lilu
    I don't know if you have Albertsons, but where we are they carry a lot of Schar products
  11. lilu

    Hubby's coming home from a LOOONNNGGG business trip tomorrow! Yay! I' took the opportunity while he was away to REALLY make our home Gluten Free - cleaned out the kitchen, new toaster, new utensils, new bakeware. Then I used all that wonderful new stuff to whip up some gluten free goodies! Homemade croutons, snack mix, bread, all the things I know he's been missing on the road!

  12. lilu
    I had an issue with my doc not knowing what tests to order, and so I took the list of tests and contacted the lab directly to see if they offered the tests I wanted and if so, what the CPT-4 codes (insurancese for 'the common number id's of the tests) were. I bet you could contact the lab your doc uses and get the same info. It takes a bit of work, but I...
  13. lilu
    Wow! Great ideas! You know, you can also make chex mix gluten-free... Just omit wheat chex and increase rice and corn chex to offset. Use gluten-free worcestershire sauce, Glutino or Snyders gluten-free pretzels, and rice cracker bits instead of bagel bites. Instead of "season salt", I use an organic herb blend called Herby (Frontier Organics, gluten-free...
  14. lilu
    I'm proud of you too! Big accomplishment!!!
  15. lilu
    I don't have any good advice or wisdom, but I wanted to send you hugs and hope anyway! It's a journey...
  16. lilu
    I am so sorry this happened, and please don't blame yourself. Part of the benefit of a gluten free home is "knowing" you can eat anything at home safely. This was just an unfortunate set of too many weird situations happening all at once. As far as anything to help, the only thing we've found that provides a little relief is very light eating, lots of...
  17. lilu
    The August/September 2011 issue of Living Without has a travel article about San Francisco w/ restaurant and food recommendations. The recommendations include: Daily Grill in Union Square (noted as the only restaurant to currently hold GFRAP certification (gluten free restaurant awareness program) Farallon - also near Union Square - notes staff is...
  18. lilu
    I don't know if it's the caffeine or not. I know that COFFEE has a high level of cross-reactivity to gluten antibodies (the antibodies mistake coffee for gluten and you basically can get symptoms of glutening). not everyone's body reacts this way to coffee, just some. I'd bet that's your situation, Sara. Josh - As far as diet Pepsi goes??? I can only say...
  19. lilu
    Dave_KC, That must be really tough. My first instinct would be to just go Gluten Free at home all together. This way there would be no chance of cc at home. I know toddlers pick up everything, touch everything, and often then taste everything. It can be very challenging to keep her out of the gluten, and away from gluten contaminated surfaces, and keeping...
  20. lilu
    Ha ha ha ha ha ha! thank you for give me a great belly laugh! Love it!
  21. lilu
    Even if he is not celiac, his developing symptoms do suggest gluten intolerance. Since this condition has only recently even been recognized, there isn't any information (other than anecdotal) that gluten intolerant people are doing permanent harm to their bodies (like celiacs do if the eat gluten). I wouldn't be surprised, however, if research down the road...
  22. lilu
    Ok, we don't have a mixed house, so I'm going off the cuff here, but how about planning 4-5 different meals you enjoy, cooking them up on a weekend, and then storing them in single servings in the freezer? This would allow you to: 1) have a full meal (I often find if I'm tired and cooking for just me I'll just throw together any old things) 2) eat with...
  23. lilu
    And remember, current estimates indicate for every 1 celiac, there are an additional 5-8 (depending on which research and/or opinion you read) non-celiac gluten intolerants! Just because bloodwork comes back negative, doesn't mean this protein isn't a problem for your system. Trust your gut! Literally and figuratively!
  24. lilu
    Dear KP, I am very happy for you that you don't currently have the disease. May I ask, did you do genetic testing? If you had the genetic tests and know whether or not you carry your father's celiac gene, you can then have a better idea of your future risk and also potential risk for your future children (at least with respect to your contribution! )...
  25. lilu
    Just did the at home gene test. The instructions were very clear and easy to follow. I used the Prometheus MyCeliacID. I am also interested in looking into GlutenPro's CeliacSure IgA tTg home test. It's already been approved in Canada, advertises results as accurate as lab test, and is currently in FDA approval trials being supervised by Dr. Daniel Leffler...
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