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Ollie's Mom

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Everything posted by Ollie's Mom

  1. Ollie's Mom
    I totally understand your concerns regarding your doctor. I have my fingers crossed for you, though. I hope he did indeed take a number of biopsies, and I hope you finally get an answer.
  2. Ollie's Mom
    Ummm... Why are you supposed to eat gluten, and THEN get the "vaccine"? How is that supposed to work? That's like getting the measles vaccine after you've already had the measles?? I wouldn't do it.
  3. Ollie's Mom
    Since you just cut back on your meds, I'd give your body a week or two to find a new equilibrium. It could just be headaches are a withdrawal symptom of those meds. Or you may have accidentally been cross contaminated (easy to do, especially when first starting the diet). I know headaches can be a drag (I had a headache or migraine constantly for years),...
  4. Ollie's Mom
    I was really careful when I was pregnant (both times)... Made all my food myself. Aaaaand... My baby brain made me buy the wrong kind of soy sauce at the grocery store. I gluten ed myself several times from the same bottle, and thought I felt like crap because of the pregnancy. Hubby asked one day why we had soy sauce with wheat in it... I couldn't believe...
  5. Ollie's Mom
    It was the statement that feeding a child a gluten-free diet and making sure they aren't deficient in vitamins and minerals is a tough balancing act that should only be done under professional supervision that got me. My doctor doesn't know the first thing about diet and nutrition, and the few dieticians I've met weren't much better. Anyone following...
  6. Ollie's Mom
    I must respectfully disagree with your doctor. Cereal grains are fortified because otherwise they provide little nutritional value. My 2.5 year old is gluten-free and dairy free. His dinner last night was pork roast, mashed sweet potatoes, broccoli and green beans. Desert was pineapple, blueberries, and a homemade gluten-free peanut butter cookie. That...
  7. Ollie's Mom
    If your doctor thinks the blood test is accurate, why is he saying a retest is required? If the doc will diagnose on blood test alone, or blood test with positive response to the diet (including a decrease in antibody levels after being on the gluten-free diet) I'd put her on a gluten-free diet right away. And if the doc won't diagnose and she continues...
  8. Ollie's Mom
    I've had much success with hotel restaurants on my work travels. I explain my food limitations, and often they'll make me scrambled eggs and plain roasted potatoes for breakfast since I can't eat their continental breakfast (and I usually get envious looks from other guests!). For lunch, a salad with oil and vinegar on the side, topped with plain chicken...
  9. Ollie's Mom
    There are a number if us here who are "self diagnosed". We know gluten makes us feel awful, and know we feel better without it. Some of us (including me) wouldn't be able to do a gluten challenge to get an official diagnosis anyway. Just a trace of gluten and I'm violently ill for 24 hours, and feel like crap for days after that. My personal opinion is...
  10. Ollie's Mom
    I think it is already too late. I didn't watch the video, so I'm not sure if this gets touched on, but now farmers are dealing with "genetic pollution" Where the pollen (and therefore inserted genetic material) is being spread by insects / wind to what are supposed to be non-gmo crops. Soon, seeds everywhere could be contaminated with all sorts of genes...
  11. Ollie's Mom
    I only eat cauliflower when it's in season. Same as asparagus. So for many months of the year, I don't have even a trace of these foods. When they're back in season, I can eat them no problem. My husband has gone months eating gluten free, then eats it again if he's out with friends or craves fast food. He does this no problem. But.. I can't touch...
  12. Ollie's Mom
    Re: the "gluten allergy" thing, I often say to others that I and my son are "allergic to gluten" because it makes people pay attention. Then instead of them thinking it's not really a severe issue (which they sometimes assume if I say "intolerance), they treat it like a big deal (which, really, it is). So sometimes the use of the incorrect term is intentional...
  13. Ollie's Mom
    I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.
  14. Ollie's Mom
    Oh wow. I feel so bad for you. I wish I could call your doctors and yell at them for you. Is there a specific reason you need a formal diagnosis? Would you be willing to live life knowing gluten makes you ill, but not have a definitive diagnosis? I discovered at age 28 that my chronic D (tmi but my food would come out undigested about 2 hrs after...
  15. Ollie's Mom
    I second this. One of my symptoms of being glutened is acne on my face and back. The really deep, painful kind. they last for weeks and weeks. Awful reminders of an even minor slip up on my part.
  16. Ollie's Mom
    Argh, the doc had you put your little guy on a gluten-free diet *before* the endoscopy? for the best chance at a positive biopsy, he would have needed to be on a full gluten diet leading up to testing. Will the doc diagnose based on blood work alone, regardless of biopsy result?
  17. Ollie's Mom
    I lost weight for the first three weeks or so, in spite of being ravenous and eating as much as I could. And I was very thin to start with. Then my weight stabilized.
  18. Ollie's Mom
    My son was getting tons of "mystery" fevers. Sometimes as high as 103+. They all disappeared after we removed gluten from his diet. A fever just means your immune system is ramping up a response to something. It doesn't necessarily means that something has to be viral. Sounds to me like the gluten challenge confirms a gluten issue. I think the fact...
  19. Ollie's Mom
    Wow.. Just wow. I would look for another doctor who would diagnose based on symptoms and resolution of said symptoms on the gluten-free diet. I am with the PPs - I can't imagine any doctor being willing to subject a toddler to such severe reactions and hospitalization by giving the child the thing that the doctor already knows makes that child sick. It is...
  20. Ollie's Mom
    I know the daycare is saying they're being careful (and I am sure they're trying) but trust me, your daughter is definitely being exposed to cross contamination. If there are other kids in the same room eating gluten foods, there are crmbs everywhere. And my son has been known to snatch bits of crackers and cookies off the floor and pop them in his mouth...
  21. Ollie's Mom
    Sure. I don't work for or own any of these places, so we're all good I guess. :-) Riz Restaurant - on bayview Ave just south of eglinton. Pan Asian cuisine. This is my favourite place. They really cater to those requiring gluten-free food. The plates actually say "gluten free" right on them. They even have an all you can eat gluten-free menu. Gluten...
  22. Ollie's Mom
    I also live in Toronto and just wanted to say, to any American neighbours reading this, that although OHIP does have limitations, I am content with the medical services available to me and my family. The lack of coverage for celiac blood tests is one of those aggravations, but it is one I'm happy to live with given the overall pluses associated with our...
  23. Ollie's Mom
    Are you in Canada? Smarties in the US are like Rockets candies in Canada.
  24. Ollie's Mom
    Maybe it is my own ignorance regarding the Jewish faith, but wouldn't even Orthodox rabbis allow some latitude to those who have a medical condition? I have some Muslim friends, and they do not need to fast during Ramadan if they have a medical condition that would make fasting worsen their condition. I just assumed all religions had the same sorts of...
  25. Ollie's Mom
    To me, it looks like the doc was screening your daughter for ulcerative colitis, and the "ANCA" test result was abnormal (with a note saying 50-70% of patients with ulcerative colitis have abnormal ANCA values). But I'm not entirely sure her result was abnormal, or if they just put that note on the lab results report. I did a quick Google search, and...
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