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pricklypear1971

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Everything posted by pricklypear1971

  1. pricklypear1971
    It seems to be normal for strange things to happen after you go gluten-free. I wish there was a name for it - but we can just call it "weird stuff". No one knows why, either - perhaps it's the body's way of communicating? Removing a stressor (gluten) allows the body to start thinking about something else? Aside from the importance of a food diary, and...
  2. pricklypear1971
    I drink Starbucks plain coffee, lattes, and iced coffees (no simple syrup). I add my sweetener using sugar packets, use their milk on the counter if I order black.
  3. pricklypear1971
    Exactly. Your body was trying to get your attention. I've cycled through so many "stages" of AI disease/celiac/thyroid it's ridiculous. Cycling is a symptom, apparently, and no one talks about it.
  4. pricklypear1971
    I get pity from my FIL. He's had two open heart surgeries, a few more heart procedures, two new knees, a new hip, he almost can't walk, and can't lift his arms, and can't hear an elephant go through a wall. And he thinks its terrible I can't eat gluten. Seriously. I'm the one that deserves pity? When I felt and looked like dog crap, that was fine. But now...
  5. pricklypear1971
    I ate a bite of commercial mint ice cream a few months ago, almost threw up. To be fair, it was the same day I ate a cc'd pizza... Yeah, junior mints and Andes are made in gluten-free factories... I know it's not gluten. The Junior Mint/Andes thing hit over a year ago. I ate junior mints like a crazy woman after going gluten-free - then one day they made...
  6. pricklypear1971
    Junior Mints. I think it's the processed mint flavoring (they say peppermint oil but I've looked up commercial peppermint oil and its a hodgepodge). Also get sick on Andes Mints. I can eat fresh mint just fine. Tried a bit of organic mint extract in ice cream and that was ok.... Yeah, weirdest intolerance, ever. Junior Mints. I LOVED Junior Mints...
  7. pricklypear1971
    I'm sorry to hear about your loss. I think we all go through emotions like this (on top of grieving), especially regarding Celiac and people who have symptoms of food intolerance (possibly gluten related or otherwise). It's even harder when the person won't listen, or it's too late. I struggle with relationships in my family...I receive looks and comments...
  8. pricklypear1971
    Oh Lyn, I'm so sorry. Blood flowing out of sores sounds terrible. I had fluid coming out of mine, but never blood (though I did scratch them to the point of bleeding a few times). I hope you get into the doctor soon, and get some help. I do know how it is to suffer with a rash of unknown origins for years...and how defeating it feels when you can't find...
  9. pricklypear1971
  10. pricklypear1971
    Find a doctor who wil figure out your hormone issues and help you correct them. Start with thyroid.
  11. pricklypear1971
    While I understand what they were studying, and they do admit taking other factors into consideration may (ya think?) affect quality of life/cost effectiveness...I must wonder how they 1) decided to use or consider such narrow parameters when celiac disease is anything but "narrow" 2) list/consider so few symptoms and possible effects of undiagnosed celiac...
  12. pricklypear1971
    First, DH is notoriously a beast. Many people experience breakouts even on dapsone - it can take years for the antibodies to clear out. You may try reducing your iodine intake and see if that helps clear the rash. Second, ask your doctors to run whatever tests they need to run for you to know if the rash is lymphoma related. I'm sorry, I know this is...
  13. pricklypear1971
    In the interim, eat proteins and fibers and vegetables. A little fruit. Try to stay away from sugar - and if you do coat it in fat (full fat ice cream). Eat BEFORE you get hungry. Don't skip meals, always include a protein with every snack and meal. That's how most handle hypoglycemia. You'll notice when you get it right.
  14. pricklypear1971
    If a glucose monitor isn't in the budget, see if you can borrow one. You still must buy the lancets/strips, and the strips are the most expensive part. Have you been diagnosed with Celiac or NCGS? Sorry, I can't see footers on my phone. The test a doc can reco is something that should be covered under insurance; however, if you are pre diabetic or above...
  15. pricklypear1971
    Your doctor probably won't do a thing, and you'll probably continue to suffer. Sorry, I'm not getting the congeniality award online or at home today. You're getting a sugar high - your adrenals are getting a kick from sugar - something isn't working right. My doc would say yeast overgrowth or SIBO. If you crave sugar or need it like that - something is...
  16. pricklypear1971
    All of the above, and I personally have noticed different brands affect me differently. So, it may be as easy as switching brands. Or not...
  17. pricklypear1971
    And the swings - up and down. That gets me...
  18. pricklypear1971
    Well, I'm going to say some stuff that will probably be called wildly inappropriate, but here goes. First, I think it's quite normal for your brother to expect you to participate in the wedding festivities, particularly the rehearsal dinner. Traditionally, it's a family and wedding party affair...and he (along with his bride and her family) could easily...
  19. pricklypear1971
    At least 9 months before bm's approached predictable. A year and a half until I was comfortable they were "new normal".
  20. pricklypear1971
    Are you eating enough? I know in the beginning I didn't - because it was hard to identify safe foods.... And your body is healing, despite how crappy you feel...and that takes energy. Or, I should say, it's changing. Good luck. I know it's difficult and scary.
  21. pricklypear1971
    There are meal/restaurant cards you can order that help you explain your needs. I think they sell them on celiac.com.
  22. pricklypear1971
    That's the pizza restaurant I linked to (or the review...)!!
  23. pricklypear1971
    I'm sorry, I know what you are going through. I don't give a flip about what I eat/don't eat, but my FREEDOM. Ugh. All I can say is to pack more food - buy a light backpack or something. Eventually, if you look around enough you'll find places you can get safe food on the run...grocery stores, cafes, etc. Is there any sort of Celiac group there? You...
  24. pricklypear1971
    I would say if the osteoporosis is caused by celiac it definitely may be reversible. I'm sure there are causes that may not be as responsive. I'm glad you've found good news - we all need good news .
  25. pricklypear1971
    There's a test for it, ask your doctor. The BEST way, IMO, to test your glucose levels is to buy a home glucose monitor and track your levels for a week - when you wake up, before you eat, after you eat, and 2 hours after meals. Write it all down, and keep a food diary with it. THEN go to the doctor. You can have hypo symptoms without technically having...
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