MoMof2Boyz

I"ve had 2 negative blood tests, negative biopsy over 6 months ago. Now I have iron deficiency anemia. GI said the only other cause is bleeding in the gi tract and there's no way I could be positive after having negative results.  I have another upper endoscopy coming up and wondering if I should push to have another biopsy for celiac?

oh, and my cycles are not heavy at all.

Another question:  since it's a mild allergy(my ears turned red after eating yogurt and having a drink that had milk in it yesterday..and today I tried milk and the top of my ear is red..looks like a sunburn)....is it possible for this mild allergy to turn into a severe allergy? Do  need to get an epi pen just in case?

also, did the reaction not show up on the blood test because it's a mild reaction?

Thanks for the replies! so an intolerance would cause my ears to turn red? I always thought that'd be an allergic reaction. I"ll cut out dairy/milk and see if the post nasal drip gets better.

It was a blood test. I just found my copy and it says tests performed utilizing ImmunoCap specific IgE allergen methodology.  All the ranges are 0.00-.34 and my results for all are <.35

horrible post nasal drip and my ears turn red! Allergy testing shows no allergies at all!! So if it is an allergy, is it low level? IgG? IgA? IgE?

I'm not really sure if it's related to gluten/food allergies. I"m going to call and have him tested for celiac(he was tested once before and it was negative)and food allergies.  Is there anything else I should have tested?

His behavior problems are: meltdowns, not listening, shouting out in class etc....now he might not get to go to a regular second grade class like we were told~right now he's in special ed only because of his behavior.  We did take him to see a psychologist(or maybe it was a pyschiatrist) for a few months and that did help a little, we started getting notes how ds's behavior had improved but now he's sliding back into how he was acting before so what could be causing a regression if he's been eating the same foods that he ate when his behavior improved? Any ideas??

I did try eliminating food dyes and saw no difference.

thanks for your help, I"m really disappointed that he might not get to go to a regular classroom in the fall. :'(

aren't the samples supposed to be taken from the esophagus? I"m sure that's where my samples were taken.  Thanks for the info, I was told eosinophilic esophagitis was ruled out,  just think it's weird first I had stricture and  now a schatzki ring. Am taking meds for acid reflux, so since the meds are controlling that, then why do these strictures/rings keep forming. hm.

will keep a food diary. Am almost 100% gluten free, but make a mistake here and there. oh and I don't eat peas(ick) so I know that's not the problem. 

I'll be getting copies of the biopsy so I'll take a look when I get it and see what the eosinophil count is and post back.

Had another upper endoscopy because of trouble swallowing and doc found I have a Schatzki ring, I tested negative for celiac through blood test and biopsy but was wondering if anyone has found a correlation between having a schatzki ring and celiac. just curious!

Thanks! foam, did you have to fast for this test?  I was told to fast but can't seem to find anything on the 'net saying so.

I have no idea. My test is tomorrow and I"m sure it will probably take 7-10 days to get the results.  I will post back when I get it.

Hi , yes I know, but he didn't say they would do another celiac panel using IgG and also basically said I am negative case closed on that. He just said test for immune electrophoresis.hm.

so he said even though I tested negative, and with a negative biopsy, to go ahead and avoid gluten, corn, soy and potatoes!  I was going to bring up the low IgA but he brought it up first!  I am having trouble swallowing food and pills again, so because of the low Iga, he wants to do an immune electrophoresis, which I guess will check IgM, IgG and IgE to see if there's some kind of reaction going on. Has anyone had this done because of low IgA? what were your results?

Just wondering,  is anything below the lab's range considered deficient or just low?  Seems like everything I find on the internet about this  mainly talks about selective IgA deficiency which is below 10(I think)...so if mine is at 76 and the low end of the range is 91 wouldn't that be considered deficient?  curious as to what others think? if you have a low total serum IgA did your doc say that you are deficient?

Thanks, It was late when I read it, marking that site off my list!

Open Original Shared Link

it talks about foods and cross reactions.

With the severe symptoms you son has, I would not put gluten back in his diet. It is not worth the risk and you already know your son's reaction to gluten. I understand the need to know with the tests but you already know he has a severe problem with gluten that can land him in the hospital. I would not do it. period.

The high end of the range for TSH was recently changed to 5!! yes 5!!! You can order thyroid tests from www.canaryclub.org or as someone mention, find another doctor!

ok, I looked through my papers and I do have the biopsy result. I'm not sure how I missed it, I guess I was expecting all the samples to be listed and they weren't. Turns out, 4 samples were taken. I requested the biopsy for Celiac because I have Hashimoto's(which I know is in the risk group for Celiac) and heartburn/ very severe reflux. I had to have an endoscopy done anyway because i Had a stricture in my esophagus because of the reflux.

The biopsy for celiac reads as this: Small intestine, unspecified, biopsy. Duodenal mucosa with intact villous architecture and no significant abnormality.

All of the blood test results were pretty low , I"ll go back and try and edit my first post but I know these results are negative...I do understand that it's possible my IgA tests *could* be positive, but with the deficient total serum IgA, they'lll never show up positive. I did read on Dr. Rodney Ford's site that one should get the anti gliadin test if everythingone is IgA deficient...it's the test that the deamidated gliadin test replaced(hope I got that right) should I request it?

If the biopsy was negative, how would I know if I am non celiac gluten intolerant? Are you going by the low total serum IgA?

I had an endoscopy back in October and am just now got the results mailed to me....I am disappointed that I was only sent the blood test results and not the biopsy results....I have an appt. at the beginning of March so will make sure I get those copies.

Anyway, everything looks negative, but total serum IgA was marked low. hm. mine is 76 and the range is 91-414

Here is what was tested, please tell me if I need other testing as I know low IgA can make the tests false negative

Deamidated Gliadin Abs, IgA 2 units range is 0-19

Deamidated Gliadin Abs, IgG 3 units range is 0-19

**I"m not sure why they give the range as 0-19 but then it says that 0-19 is negative with 20-30 being a weak positive and >30moderate to strong positive***

T-Transglutaminase(tTG)IgA<2 U/mL range is 0-3

Tissue Transglutaminase(tTG) IgG <2U/mL range is 0-5

Endomysial Antibody IgA(this one didn't give a range and just said negative)no numbers were given for this it just says negative

Immunoglobulin A, Qn, serum(which I guess is the total serum IgA??) 76 range is 91-414

Thank you for looking!

Yes I do have environmental allergies..actually just found out. The allergist said that food allergies don't cause post nasal drip or the redness that is on the skin under my eyes.

Any experiences?

there isn't a gluten free section at my wal-mart but there is at Kroger..that's where I shop the most. More expensive though..I think it's too bad that gluten-free stuff is more expensive..like pasta...gluten-free flours are pricey too for the amount that you get. I know I need to eat healthier but sometimes I want a donut, ya know!

Thank you, I'm going to read about it...how long did it take before you noticed a change in behavior and what changes did you see? thanks!

and what were the results? did you notice a difference in behavior? my ds sometimes won't pay attention in class, likes to do what he wants to do, a few days ago at recess when his name was called to line up he ran off, last night at the xmas program he kept bopping his head and making faces...at the end his teacher said he turned his back to everyone and was shaking his butt!(I didn't see that) he has had meltdowns but now it's not very often, most mornings he is not cooperative, sometimes telling him things like for instance, no we can't go to the playground right now....will just go in one ear and out the other and he asks repeatedly over and over! We have been taking him to a psychologist who has now said we don't need to see him anymore! DS's behavior has gotten better since last year, but in your opinion, is this typical 7 year old behavior? I'm hoping I can get DH on board with eating gluten-free but he refuses because it's "too expensive" I"ve already read about the positive changes in behavior when eating gluten free, but I"d like to hear from anyone if elimination foods with dyes has brought a positive change in behavior.

thanks!

ps my oldest son never did any of these things...that's why I"m not sure if it's typical behavior or not!