MoMof2Boyz

so I know I have DQ1 subset 5,6. but is this only one gene or is it double DQ1? The reason I am asking is because i've seen some on this site list it as double DQ1., but then others have DQ1 5,5 for example and list that as double DQ1. So I am a little confused.   Ok, if DQ1 5,6 is double dq1, then does that mean I got one gene from each parent and both of my kids will have one of the genes?? hope i didn't confuse anyone!!

in case someone has the same..I called the lab that did the test and was told that it is DQ1 subset 5,6

would like some help understanding the rest. DQ2 is negative, no other info given.

DQ8 negative then with DQ8 it lists DQA1*01 DB:01 and DQB1*05 AEMX:06

Does this mean DQ1 and DQ5?

Thanks for any help deciphering!

Hello everyone!  Fell off the wagon and have been eating gluten for months now. I've decided to have a biopsy when I have my endoscopy(for barret's esophagus) so I know i need to keep eating gluten

anyway, my dh bought me the 23 and me dna kit and I got the results back. I am negative for  HLA DQA1 however, I am heterozygous for DQ 2.5. Would that be DQB2? is this a gene with a high chance for celiac? I also have the CTLA4 gene which says it's Hashimoto's(which I Have) but it says it's also linked with Celiac. Does having both of these genes significantly increase my chances?

I am wondering because my iron level has dropped from 70 to 26 in just 6 months.

Thank you for any help.

Hi StephanieL, it's been a long time since I"ve had pumpkin seeds or pumpkin baked goods. I  think I am going to buy the seeds(if I can find them!) and try them and see what happens. I do remember that I liked them so it's not like I'd buy them for nothing!   Honestly, I don't think it's eczema, it just doesn't look like any of the pictures I"ve been looking at, plus the rash doesn't itch, at all!  Of course, I could be wrong. I do have a doc appt. Friday to go over some lab work and I will definitely show my doc and see what she says! Anyway, if the seeds don't make the rash worse then like you said, it has to be something else. Just trying to figure out the cause and the oil is the only thing I"ve been consistent with! Thanks for replying! if me or my doc figure it out, I'll try to remember to post back here!

ok, thanks! but is the rash an allergic reaction or intolerance?

I just started taking pumpkin oil again to help with my bladder.  I took the oil (from capsules) a few months ago and didn't have a problem.  I now have a rash on my forearms(the underside) same area on both arms . It looked like red lines all in a row on my arms. It didn't itch, but just stung a little.  My arms didn't come into contact with anything and I don't recall how long it was after I consumed the oil that the rash developed.  The rash is still there  but doesn't look as bad as it did the first day. I"m just wondering if this could be a reaction to the oil? I tried looking online, but only find info for allergy to pumpkin seeds. Thanks!!!!!!!!

rash isn't as itchy today. Hopefully, this means it will be going away!

I wasn't completely gluten free when my iron levels started dropping so I   wanted to test for celiac again because of my iron issues.The lab would only test TtG IgG and DGP I gG and those were negative. I"m still eating gluten because i want to see what my iron levels will be at my appt. next month, and if my doc feels I need a biopsy, I won't have to wait.

sorry it took so long to get these pics up. Even if it isn't dh, then I hope someone has had this type of rash before or has seen it and knows what it is! Here's the link,  Open Original Shared Link

 Thanks! I"ll check out those pics. I posted in this forum because the dh forum doesn't seem to be very active.

I don't know if it's DH or not, I can post pics later.  It's all over the front of my thighs and some on the back of my thighs. There's a little bit on my forearms, palmside. I don't think it's folliculitis, I read this only appears in areas where there's hair, and there's no hair on that area of my forearms. The rash looks like little bumps/pimples and it's very itchy.    Can't figure out what it is, there's been no new skincare products/perfumes/body sprays/ no new meds or foods except I've had 2 hamburger buns that had wheat and rye in it. I'm not completely gluten-free but have never had a reaction like this when eating gluten. My dh thinks it can be a chlorine rash but i read that this particular rash looks like chicken pox, and mine doesn't look like that, and I"ve been out of the pool for 5 days and this rash isn't going away. Does it sound like it could be DH?

IrishHeart, I'm just confused that my iron level is within range but the panel(transferrin, TIBC and %saturation indicate iron deficiency.

cyclinglady, I only have milk in my coffee...1-2 cups a day. Otherwise I drink almond milk and don't eat a lot of products that have milk. I do understand how milk can affect absorption. My oldest ds was a huge milk drinker and ended up with iron deficiency. I do exercise but not intensly and don't run. hate it! Also, I don't take the iron supplement with vit. c because it has heme and nonheme iron. jThe heme based iron enhances iron absorption and it states on the bottle no vit. c needed for absorption. Should I still take it anway?

Thank you both for taking the time to respond to my question.

so I had my iron level tested again.

iron 79 ((59-158)

ferritin 13 (13-400)

transferrin and TIBC are high and %saturation are low. Hemoglobin and hematocrit are normal but hematocrit is at the very low end of the range. so the iron panel shows that I still have iron deficiency dispite taking an iron supplement everydayMy iron level has dropped since feb. 2013 back then iron was 88 and ferritin wasn't tested.. I was tested for celiac again and so far only have 2 results back(I *think* the lab didn't know how do  it all?? it just says results pending on my paper)

soooooooTtg AB IgG is negative and DGP IgG is also negative still waiting for results on AGA IgG and Ema IgG. I requested IgG because from prior testing I know I have low total serum IgA. Anyway, do the 2 negatives mean no celiac? If this isn't celiac then can NCGS cause iron deficiency that does not respond to iron supplents?

I have had a colonoscopy to rule out bleeding, and I don't have Chron's or IBS.

MMA is low(this is supposed to be normal but can be high. if high shows a vitamin B12 deficiency)**looking back through past labs MMA was normal in 2011**

Vitamin D is 36 (30-80)

usually this can be either normal or high. if it's high, it indicates a B12 deficiency. But my MMA is low(below the end of the range) does anyone know anything about this? is it possible for celiac to cause this? I can't find anything about a low MMA, can only find stuff about it being high.

hm, well labs do show iron deficiency anemia(had the full iron panel done) but per my last blood test there are things that make me go hmmmmm....such as RDW being normal when in IDA it's usually high. Iwill talk to my doc about this at my next appt. thanks!!

hm, I just had a colonoscopy done, and there wasn't any GI bleeding. Wondering if it could be Celiac...but...would a person with celiac respond to iron supplements while  not on a gluten-free diet?

because of iron deficiency anemia. I"ve already tested negative for celiac, blood test and biopsy through an endoscopy. I was wondering, are samples normally taken with a colonoscopy or does the doc just look for visible abnormalities, ie, polyps etc?

I'm going to also suggest: lyme disease but not sure what would cause the warts on hands and feet-possibly an immune system problem??

Last blood test was done in Sept.(I am due for another one in Dec.) anyway, eosinophils weren't high but here's the results

4% (4-14%)

eosinophil count

0.1 ( 0.0-0.6)

I did have a biopsy in March to rule out EoE and the report only said squamous mucosa with features of gastroesophageal reflux and my GI doc told me I didn't have it.  So it look like I didn't have any eosinophils then, but now a few are showing up but not enough to meet the guidlines.hm. I wonder if there will be more the next time I have another endoscopy.

Well I got the biopsy back late today so I will call tomorrow and ask for it to be explained more. So anyway, this is what it says on the biopsy report:

Esophagus, Middle, biopsy

Reactive squamous mucosa with rare intraepithelial eosinophil(focally, one eosinophil per high powerfield)

The degree of eosinophilia does not favor eosinophilic esophagitis/allergic esophagitis. Howerve, EE may be patchy in nature. Correlation with clinical and endoscopic findings is recommended.

I"ll be getting a copy of the biopsy next week, so I will call when I get it. I"m just confused how they can say it's a food allergy

I understand that.   but wouldn't you think my GI doc would have been able to tell during the endoscopy  if my esophagus was swollen?..and nothing was said about that.

I had an endoscopy and had a biopsy for eosinophilic esophagitis because I've had so much trouble swallowing food/pills and my GI doc said my esophagus wasn't very strictured.

I got a call from the nurse saying I didn't have EoE but it looks like I have a food allergy? So how can they tell?? Does anyone know??

Please make an appt. asap! You don't want to wait until you have a crisis to find out.

was the Lyme test completely negative?? nothing showe up like this... +, ++, +++, +/- or IND??