Jump to content

Kamma

Advanced Members
 View Profile  See their activity

  • Posts

    195

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Kamma

  1. Kamma
    There is a growing body of evidence that some people react to gluten but don't develop the celiac aspect of the disorder. This is especially true for the people who are affected neurologically and antibodies are attacking the Pukinje cells in the cerebellum part of the brain. Traditional testing will not catch these people as the tests are designed for...
  2. Kamma
    If you're not eating whole foods (just meat, veggies, fruits) but are also including 'gluten free' processed food, please be aware that you might be reacting to the trace amounts of gluten in these products. They are formulated to have less than 20 ppm of gluten (supposed to but they sometimes have exceeded this as shown by product testing) which is a level...
  3. Kamma
    I spent two years being shuffled from one ear specialist to another. One thought menieres after they ruled out that one condition where there is a hole in your vestibular canals (can't remember the name of the condition), one thought it was migrained induced vertigo (even though I don't have migraine headaches), and one thought i had Tullio's syndrome which...
  4. Kamma
    Also, if you are presenting primarily neurological aspects of gluten sensitivity, the ttg IgA is not so indicative of this. There is evidence that the AGA IgG and AGA IgA are more specific for neurological gluten sensitivity.
  5. Kamma
    I'm not as knowledgeable about the full panel but I'm bumping this up for others to see who could answer. Hope you find out soon.
  6. Kamma
    The cream of Wheat is sending the signal and your body gets ready to ambush the next wave of gluten invaders. Okay. We're on day three and so far you are experiencing: - nausea - bloat - pain under your breast bone - canker sore - fogged out - restless sleep - starving - dizzy (Is it dizzy or vertigo? I always make a distinction...
  7. Kamma
    You know, as much as this is hard going for you, I am totally glad that you are 'blogging' about it. It acts as both a written record for you and a reminder for me of 'what it used to be like'. When you start getting healthier, you forget some of the unhealthier stuff that was going on. Reading what you are going through is kind of like, "Oh, yeah! I...
  8. Kamma
    Yes! I remember that starving feeling. Wow. I forgot about it and like you, feel totally full at the end of each meal. Hhhhmmm....canker sore, starving, foggish....seems like you're symptoms are picking up! Keep us posted on how it continues.
  9. Kamma
    I second Ravenwood. When I did my gluten challenge, some symptoms presented right away, others did't. But by two weeks in, I was flat on my back with a spinning head, no energy, lethargy, gas and fogged out brain. I know that I get frustrated with the lack of improvement in my symptoms - sometimes it feels like I'm just not healing fast enough or the...
  10. Kamma
    Celiac presents primarily neurological for me. For the past three years I have had constant vertigo, exhaustion, and ataxia that progressed. Balance issues and looking like I was doing what they call the 'drunken sailor walk'. My brain was fogged out and I started to slur my speech. I had head titubations (head bobbing) and seizures out in public. The...
  11. Kamma
    Yeah, it's kind of grim if you don't keep eating gluten free. I second what prickly said: eat the true gluten free food of vegetables, fruit, meat and seeds. It's cheaper and much more nutritious. Also, processed foods that are labeled 'gluten free' are not gluten free. They are allowed 20 ppm gluten in their products. Recent testing of random products...
  12. Kamma
    Here's what eating gluten can do to you in the long term if you are celiac: 1. Malnutrition Even when patients are eating lots of healthy foods, they can become malnourished because the nutrients in the food are not being absorbed. Instead, the vitamins and nutrients are excreted in the stool. Malnutrition in untreated celiacs can cause weight loss, anemia...
  13. Kamma
    Hi Carpe... My symptoms are mostly neurological but I seen your post and wanted to bump it up. Perhaps others with more similar symptoms will see it and respond. You must have felt great after talking to the nurse and getting validation for your symptoms. Welcome to the forum.
  14. Kamma
    Hi Gliadin raider... I present mostly with neurological symptoms like ataxia, vertigo and balance problems. I was going to ask if you are still consuming gluten? You said you were going to be tested soon and you need to be consuming gluten for quite a few weeks prior to that test or you might have skewed/negative results. Welcome to the board...
  15. Kamma
    Hi Maggie... I'm not as experienced or knowledgeable about the tests as many of the other posters are but one of the standard tests for celiac is the ttg IGA. Did they do that one?
  16. Kamma
    Hi, Holly... Welcome to the board and hopefully you feel better getting it off your chest. Trying to figure out what is going on is probably the hardest part of the pre-diagnosis period. I noticed my first symptoms when I was working out and put it down to not eating right/sleeping right/feeling mentally right and so on. All the reasons you...
  17. Kamma
    Totally with you on the exercise part. On my good days I walk three to four miles with the dogs. I used to be a cyclist/winter cyclist and have taught yoga for 25 years. On my really bad days, like the last three...I can't walk a straight line and my torso is rotating. Ugh. I'm really going to look into this progesterone stuff. Apparently the last...
  18. Kamma
    Have been doing some more reading and apparently it's common for women with any kind of autoimmune disease to experience a worsening of symptoms just prior to and for a few days after their menstruation. I'm trying to read why but that requires a clearer head than what I've got right now to go through and understand the scientific research papers.
  19. Kamma
    I will look up Dr. John Lee, Prickly. Thank you.
  20. Kamma
    Hi Dudley... When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies...
  21. Kamma
    Nope, not on the pill. Had my tubes clipped since I was 28. I've been watching my symptoms for the past three months since going gluten free. The vertigo and exhaustion/brain fog slowly lessened but always returned with a vengeance prior to and after my menstruation. It's to the point where my head is bobbing and I'm having the torso rotations and lurching...
  22. Kamma
    Hi. I have a question for the women who are affected primarily neurologically: During your healing process did your symptoms get really intense just prior to your period and a few days after getting it? I am ingesting only meat, vegetables and fruit so I know that I am not getting any gluten by accident. However, my vertigo has ramped right up and...
  23. Kamma
    Yes, Alice, listen to Skylark. Also, really think about this: If Gluten relief enzymes actually worked, don't you think that they would be mass marketed to all the celiacs out there just dying to conveniently eat bread, buns, cookies, cereals, trips to MacDonalds and so on? Don't you think that if these things actually worked, the manufacturer...
  24. Kamma
    Hi Cate, Would it be more cost effective if you just took yourself off gluten for awhile and see how that made you feel? Some people require the medical diagnosis and some people are okay with seeing how they react off the gluten to confirm a diagnosis. If you choose to just remove gluten, I would suggest being super strict to avoid cross contamination...
  25. Kamma
    The squeezing pain in the ears, ear ringing and constant and severe vertigo were amongst the first symptoms that I had before suspecting that I was celiac. Then came the ataxia and balance issues. I was tested with all the vestibular tests over a two year period and they showed no problems with my inner ears. After diagnosis with celiac, I would still...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.