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Kamma

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Everything posted by Kamma

  1. Kamma
    Yes, yes, yes to all the symptoms you mentioned and most of the other ones that the other posters mentioned. I was diagnosed tentatively in November and confirmed after the gluten challenge. How long were you experiencing your symptoms before you were finally diagnosed? Mine started about three years ago with severe vertigo that was then accompanied...
  2. Kamma
    I'm a redhead too. Interesting to see how many are on here.
  3. Kamma
    In the past year, before going gluten free, I started to have seizure like episodes. These seemed to be brought on by a certain kind of flourescent lighting and sounds at a certain frequency. I read of the correlation between celiac and seizures as well. The previous posters had great advice about printing off the research articles and taking them into...
  4. Kamma
    Thanks, everyone. The words from you guys really helps me come back from the wilderness and find the path again. It's interesting how the symtpoms appear in the afternoon for those experiencing the withdrawal. I can have a good two hours in the morning and then the vertigo/ataxia/exhaustion starts up. I wonder if thats when the body has depleted its...
  5. Kamma
    Skylark! You are a peach! That link/research article is fantastic. Thank you very much.
  6. Kamma
    Morning everyone. Any insight or experience that you have would be welcome. Need a good shot of hope to keep my spirits up on this journey. Stopped eating gluten at the end of December just prior to testing. Felt good for about two weeks then started to have nausea (new symptom for me), huge vertigo/ataxia problems again, sound hyperacuity and exhaustion...
  7. Kamma
    Morning. I've been doing more reading of the research studies that are coming out in gluten sensitivity/NCGI. They point to that the antibodies that are created in response to gluten attack other parts of the body, like the brain, not (just) the intestine. It also seems to involve a different immune response: NCGI respond with the innate immunity...
  8. Kamma
    Thank you, Scott. I'll go lay my hat there.
  9. Kamma
    Hi. I was wondering if it would be feasible or a welcome idea to add a seperate heading/forum for Gluten Ataxia & Neurological like you do for DH? While the search function on this site is absolutely wonderful and allows me to find posts by people who are affected by celiac in this manifestation, I often wish it could be in one place. I guess I wish...
  10. Kamma
    Number 5 (Fart) had me in stitches. I could just imagine the grieving family's faces when told their beloved had died of a massive fart. Oh! I'm still laughing. Thanks for this!!!!
  11. Kamma
    I miss...homebaked bread with a thick slice of sharp cheddar cheese. This was my total comfort food/dish.
  12. Kamma
    Hello, Barry... I don't have sneezing as a symptom but I did a quick search of the site and there are lots of posts where people say they sneeze when exposed to wheat or gluten. Seems like your nose 'knows'.
  13. Kamma
    Fish sauce and soy sauce bring on my symptoms even if they list no gluten containing products. Might be cross contamination. I can't even have ketchup as it does the same thing: no gluten but made on production lines that include processing gluten containing foods. Skylark mentioned the other night that the neuro folk (neurological manifestation of celiac...
  14. Kamma
    Thanks, Skylark. I needed that. Almost three years being housebound with the vertigo, drunken walking and seizures has made me really, really want to be healthy and when these symptoms come back I get freaked out that I'll never be who I once was. Neuro folks say they are more sensitive? Oooh, I'm going to have to really stick to the unprocessed foods...
  15. Kamma
    After six weeks of eating fruit, vegetables and meat, I cooked a dish (lazy cabbage rolls) for my family that had ketchup as one of the ingredients in it. They love it, I love it and since the label doesnt carry any ingredient remotely coming close to gluten, I ate it. Today, my vertigo and ataxia has returned with a vengence. I'm a bit down. I phoned...
  16. Kamma
    Morning, dazedandconfused: Currently, the ttg testing is only used for the intestinal form (ttg2) of Celiac. The celiac tests for the clinical presentations of DP (ttg3) and Neurological (ttg6) are still being developed. If you present primarily with one of these two, the ttg2 might not pick it up. "Blood tests Research has shown that some people...
  17. Kamma

    ARCHIVED Doctor In Edmonton?

    Kamma replied to Castle's topic in Doctors

    It's tough here too in Manitoba.
  18. Kamma
    "There is evidence that RLS may be associated with abnormalities of iron metabolism in the central nervous system. In many cases, RLS is related to low serum ferritin levels, which may or may not be associated with low serum iron levels. (Ferritin is a protein in the body that binds to iron, and most of the iron stored in the body is bound to ferritin. The...
  19. Kamma
    What about seed or legume flours? Quinoa, chick pea flour, pea flour and so on? Also, have you tried just regular quinoa? It forms a huge part of what I am eating. It also is only one of two 'vegetables' that contains a full complement of amino acids (protein).
  20. Kamma

    ARCHIVED Doctor In Edmonton?

    Kamma replied to Castle's topic in Doctors

    Enjoy!
  21. Kamma
    I would have to agree with you, eatme4good. My neice was diagnosed with celiac some years ago. My brother and his wife are standoffish and didnt disclose much or really connect with the rest of the family about it. My mother displayed all of the neurological affects of celiac and spent years in bed with vertigo, depression, fogginess and overwhelming fatigue...
  22. Kamma
    Yeah, that site is a wealth of information and it totally supports the low ttg2 connection if you have ttg6 or ttg3 antibodies. So, to recap the deficiencies in the ttg igA tests as a diagnostic tool: False negatives can be caused by: IgA deficiency Skewed ranges Client could have ttg3 & ttg6 antibodies which the ttg2 would not pick up.
  23. Kamma
    Oh, this would be funny if it wasn't dealing with people's well being. So, it's being recognized in other testing that the 'normal levels' of a reference rage actually include a percentage of who have the disease (insert disease name here) and are undiagnosed, skewing the ranges? This is sloppy science and it drives me batty. Yup, I've been reading up...
  24. Kamma
    His sister was diagnosed as having celiac after ten years of neurological problems. When he told me that, he then look me straight in the eye and said, "...that doesn't say much for me as a neurologist does it?!". He has also taken the test and came back as a weak positive. Same score as me, he told me. He said for him, the desire to know, learn...
  25. Kamma
    I would love to see that study too! The best I can find are numerous articles citing, "...some experts believe that up to 1 in 20 people have some type of gluten sensitivty, celic spectrum" and so on. I'll ask my neurogolist the next time I see him. More specifically, Dr. Bob Anderson/Australia thinks the demographics are skewed as well since men are...
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