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Kamma

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Everything posted by Kamma

  1. Kamma
    Hi Seeking. Very thought provoking post and you ask some of the same questions that I have been asking myself as well. I too would like to know how they come up with establishing the ranges of normalcy. As of yet, I haven't found out the answers despite looking. I do know that my neurologist, when telling me my test results (which were 'inconclusive...
  2. Kamma
    Believe it or not, migraine associated vertigo also encompasses 'silent migraines' in which you don't feel the migraine but it manifests itself as vertigo/dizzy. Also, I'm assuming that when you say 'dizzy' you are meaning the feeling of the world or yourself moving, rocking and not the 'dizzy' feeling you get when you're ready to pass out from getting up...
  3. Kamma
    Try, 'migraine associated vertigo'. The research out there suggests that certain foods trigger it like msg (which is can be hidden under different names), caffeine, cheeses, nitrates, sulfites and so on.
  4. Kamma
    Well, Wiki says, "Vitamin D3 (cholecalciferol) is produced photochemically in the Open Original Shared Link from Open Original Shared Link. 7-Dehydrocholesterol is produced in relatively large quantities, 10,000 to 20,000 IU of vitamin D are produced in 30 minutes of whole-body exposure,Open Original Shared Link in the skin of most vertebrate animals, including...
  5. Kamma
    Yup, I felt vain too. I understand. The flip of it is we went through it, felt the depths of despair and ugliness and climbed out of it reaffirming our (hairless) selves.
  6. Kamma
    A fluffy little chick. That's exactly what we look like. Well said, you! I think out of all my symptoms, losing my hair was the worst. It wasn't the most detrimental one healthwise but it really impacted my esteem and sense of value. I'm super glad they're coming back for you designerstubble. Way to go on the pumpkin seeds - you were already...
  7. Kamma
    Perhaps the growth is coming in patches, designerstubble. I had all those new little hairs pointing out from the top of my head too. In a way, it looked hilarious and I had a good laugh at my appearance. I would definitely start feeling relieved at seeing the new growth. Be excited! Also, try eating more foods that contain zinc and copper. These...
  8. Kamma
    Yes, the key would be to identify one or two things that you like to do for exercise and then start off slow with them and set goals. At my worst, I was also confined to my bed with ataxia and fatigue. I went from doing yoga every morning and bike riding 16 km a day (I was a commuter cyclist, in both summer and winter) to barely forcing myself to roll out...
  9. Kamma
    I did some checking as well and could only come up with IgA nephropathy and it's close connection with gluten intolerance. Jeez! This kidney reflux thing is a rare bird! The IgA nephropathy seems closest to what causes the protein in the blood/poor filtering. Did you have scarring in the kidney's due to the reflux? Curious, how long have you been...
  10. Kamma
    Only that the Centre for Celiac Research is still trying to develop them. Dr. Fassano believes, based on the evidence, that non-celiac gluten intolerance is a reaction from the innate immune system, not the adaptive immune system. I guess I should also start using the term 'gluten sensitivity' as that is the accepted name for NCGI. Excerpt, Dr. Fassano...
  11. Kamma
    I don't think they do gene testing in Canada, where I am located, but they do it in the US. Perhaps someone else can speak to that. Regarding your testing, some people have tested negative on the celiac panel but have had positive biopsies, some people test negative but respond exceedingly well to going gluten free and some people are IgA deficient...
  12. Kamma
    Shortly after I had completed the gluten challenge, I was showing protein in my urine which can imply more serious things. I get my blood tested every six months to monitor it. During the initial round of testing, I had posted some questions here regarding celiac/kidneys and one mother replied that it was through their son's kidney failure that they found...
  13. Kamma
    I'm O Rh negative as well. German and Irish descent.
  14. Kamma
    You might find this interesting: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/Kidney-Disease-and-Celiac-Disease/
  15. Kamma
    Definitely, DesignerStubble! Keep us posted on how hair and vitamin D is going. NVSmom... I'm from Alberta and BC originally. Winnipeg's winters are killing me.
  16. Kamma
    I spent three years that started off with mostly feeling tired and progressed to gluten ataxia. The last year was mostly spent in bed or forcing myself to move. After a year of gluten free, I'm back doing yoga, walking, going to the gym and feeling solid. Occasional problems with balance. No longer have seizures. I'm looking forward to going back to...
  17. Kamma
    Haha. To Spain, Sunshine and Luxerious Hair!
  18. Kamma
    nvsmom..where are you located? I'm in Manitoba.
  19. Kamma
    I'm getting this whenever I click on any thread (other than this one) in the forum: REMOVED
  20. Kamma
    Oooo that is low! Bring on the Vitamin D! The research that is coming out nowadays is there are huge deficiencies in the populations levels as more people are staying inside and not getting replenished by the sun. What dosage has been recommended to you?
  21. Kamma
    I finished my gluten challenge at the end of December last year and aside from a few accidental glutenings, I've been on the straight and narrow. Within weeks of upping my vitamin D, my hair stopped the massive migration down the drain. I have very long hair, down to my bum, and while it has thinned out I have new growth from the top of my head. It will...
  22. Kamma
    Tell them you're on a budget, have to provide holiday fare for your parents which will stretch you even more and though you would like to provide supplies for the party, alas! your budget restraints just can't allow this. Tell them you have a brilliant idea that over the next year, everyone in the office can provide a buck/month to go towards Christmas...
  23. Kamma
    Yup, there's tons of things with soy in them. Even margarine. Every margarine container that I looked at one day had soy in it. The only soy free substitute I have ever found is Earth Balance Almond Spread. Canola oil is naturally gluten free. It has the potential for cross contamination in the processing but there is something to do with the seed...
  24. Kamma
    Yeah! I heard that was good! I can't have it cause it's dairy...but damn, if I only could!
  25. Kamma
    I had no clue either until I started getting sick and looking at the ingredients of food that I used to take for granted. No worries. By the way, I use a mayonnaise that uses canola oil instead of soy oil. There's quite a few out there that do. Try doing the switch and see if that helps. Or, if you don't want to invest in a jar of mayonnaise that you...
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