Bonnie
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Latest Celiac Disease News & Research:
Everything posted by Bonnie
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Hi Chrissy, After your post I re-read my report from the GI. I have a hiatal hernia as well as an umbilical hernia. Its obviously the umbilical hernia I can see! Thanks for that, I didn't realise I had 2. I'm falling apart - must be an age thing Yvonne
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I had no idea my hernia would require watching my diet or that it had anything to do with reflux. Its not massive at the moment but you can see and feel it, its pretty obvious - sticks out above my naval. Do you know of a website I can have a look at? Your poor daughters haven't had much luck, have they? The GI didn't actually tell me too much at...
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Thanks everyone for your responses. I worry about having surgery that is perhaps not really necessary - I feel it can cause other complications. I have never actually had any surgery and am not keen to start! The GI thinks my ulcers should have cleared in the 6 weeks I've been on the medication but my reflux has got really bad, especially first...
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Saw my GI today for a follow up after my gastroscopy and colonoscopy. Been on Pantoloc for 6 weeks for my ulcers but now he wants me to have the op for GERD - laparoscopic and also to remove a hernia at the same time. Has anyone had this op? Did it help at all? My gastric symptoms have cleared up dramatically since I went on the Pantoloc...
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Hi Lani, welcome to the board! Yes I always get cramps in my hands and feet when I eat gluten. Very annoying! P.S. I'm pretty sure I've seen a post from someone in Australia - can't remember who it was though. I'm from South Africa. Yvonne
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ARCHIVED I Want To Quit The Diet
Bonnie replied to againstthegrain's topic in Coping with Celiac Disease
I understand EXACTLY how you feel. I am in the same position at the moment. Had a gastroscopy and colonoscopy 2 weeks ago. GI told me not to go back on gluten for it. I have been gluten-free for a year. Had blood tests after 6 weeks gluten-free - they were understandably negative. The gastroscopy showed major inflammation and LOTS of ulcers and... -
ARCHIVED Ok Friends - Help
Bonnie replied to Lisa's topic in Gluten-Free Foods, Products, Shopping & Medications
Lisa, I bought a Clinique lipstick a couple of weeks ago. The salesperson read the ingredients for me and told me it was wheat free (I have bad eyesight). Anyway, when I got home I had my kids double check and guess what - YES it contains wheat. So I had to take it back - not impressed let me tell you. I bought an Elizabeth Arden one instead. I... -
ARCHIVED Need Your Expert Advice Again!
Bonnie replied to Bonnie's topic in Coping with Celiac Disease
I saw the GI yesterday. After telling him my history, he told me the first thing that is wrong with me is that I am depressed. I was gobsmacked - that was the absolute last thing I expected to hear. Monica, he told me that most of my problems are from constipation. He reckons that if I can evacuate my bowel properly on a regular basis most of my symptoms... -
ARCHIVED Need Your Expert Advice Again!
Bonnie replied to Bonnie's topic in Coping with Celiac Disease
Hi MJ, Thank you so much for taking the time to write me such a long detailed post. My gut tells me I have Coeliac (excuse the pun)! I have actually thought a lot about just having the gene testing but if it comes back negative I'm back to square one. I am convinced my mother has Coeliac. As I posted before she is 55 years old, 5 ft 4 and weighs... -
ARCHIVED Need Your Expert Advice Again!
Bonnie replied to Bonnie's topic in Coping with Celiac Disease
Debbie what you say makes perfect sense. Its just so frustrating not knowing what is causing the problems. It would be wonderful if someone would say to you "stay away from gluten, dairy, nightshades etc.". Yes I know - in an ideal world - and there are so many of us in the same boat! I'll go and see what this GI has to say and then decide whether... -
Hi guys, need some help please. Next week I've been gluten-free for a year. Positive changes - not ONE incidence of cold or flu (which was a monthly thing), no more sinus, ear or throat infections, depression/anxiety gone completely. Negative changes - intolerant to just about everything I put in my mouth still after all this time. Driving me nuts...
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ARCHIVED A Remedy For Bloating And C
Bonnie replied to Mango04's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This sound really interesting and I will try anything! I will go on a mission this weekend to find these oils and will let you guys know if it works! Yvonne -
ARCHIVED Anyone Try Digestive Enzymes/probiotis?
Bonnie replied to luceydiana's topic in Coping with Celiac Disease
I use probiotics and digestive enzymes. They definitely help - the enzymes help a lot with my bloating and indigestion. I have come off of both to check and I get a lot more bloating and "gurgling" upset stomach until I go back on! I also eat plain yoghurt every day. Yvonne -
ChelsE, Ha ha, I meant 1 x dozen and only realised what I typed after I'd already posted. I wondered if someone would comment! No I just have two hungry teenage boys who eat me out of house and home!! Tara, I haven't had that experience with the "burning" mouth. I know corn can cause all sorts of problems for some people. You really must try...
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Tara, you can whine all you like here, we've all done it! I know what you mean about the beer and feeling like crying. The first few months are the worst, I promise you. Once you realise how much better you can feel, it will get easier. I've had to go hide in the toilet a couple of times when everyone here at the office were eating burgers and pizza...
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Whitball, you will probably find that you have other intolerances that will "appear" now you are eating gluten free. I got to the stage where I was reacting to every single thing I put in my mouth. It makes it very difficult to find the culprits. I believe that its due to our guts being so inflamed. You need to continue as you are with the simple...
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ARCHIVED What Is Your Most Annoying Symptom?
Bonnie replied to erin24's topic in Coping with Celiac Disease
erin24, I have been strictly gluten free for a whole year - apart from once six months ago when I did my own "gluten challenge". Was sick for 10 days! So a year down the line I am still bloating every single day. I take digestive enzymes with every meal which does help slightly - maybe look 5 months pregnant instead of 6 . I am really hoping... -
ARCHIVED Size Seven In The Morning, Twelve At Night...
Bonnie replied to elye's topic in Coping with Celiac Disease
Elye, I am exactly the same as you. I am flat in the morning and huge by evening. It is directly connected to eating. Sometimes if I get really big it will take days to go away. My weight goes up and down by about 5 pounds every single day. Do you take digestive enzymes with every meal? They definitely help me to a certain degree. I have been... -
ARCHIVED Celiac, Severe Bloating, & Eating Disorders
Bonnie replied to a topic in Coping with Celiac Disease
Rose, you could be talking about me! I suffer from chronic constipation to the extent that I don't go - ever. I have to take laxatives every day. If I take something like psyllium I bloat even more than usual and it doesn't work. I occasionally starve myself just to have a flat stomach. Then I binge for a couple of days, feel sick and awful and so... -
ARCHIVED What Is Your Most Annoying Symptom?
Bonnie replied to erin24's topic in Coping with Celiac Disease
BLOATING!! With a doubt, my worst and most annoying symptom. I get bloated regardless of whether I'm feeling good or not. I wake up in the morning with a flat stomach and then as soon as I put food in my mouth it starts. So I'm right with you Erin24! I am 5.7" and 115 to 121 pounds and most days look pregnant! Some days I get tempted to starve myself... -
ARCHIVED How Do U Know U Have An Intolerance?
Bonnie replied to Moongirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Moongirl, the problem here is that you can either have immediate reactions or delayed reactions so its sometimes really difficult to narrow it down. I, for example, get immediate reactions to eating rice, seeds, artificial sweetners. While I'm still eating I get a "gurgling" or "rattling" in my bowel. Then my stomach swells up hugely. If I eat anything... -
ARCHIVED Poll: How Many Had Elevated Liver Enzymes?
Bonnie replied to trents's topic in Related Issues & Disorders
I kept waking up in the morning with a yellow face and eyes. Also incredibly nauseous. Had bloods tests which revealed I have very high billirubin (liver enzymes). Doctor says that I have Gilbert's Syndrome. Have I? Who knows - these quacks talk a lot of rubbish. Yvonne -
OMG - So excited to see this post. I have been so ALONE here in SA. I have sent you guys PM's to make sure you see this. Please respond. Yvonne
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ARCHIVED From Flat To 6 Months Pregnant ....
Bonnie replied to Bonnie's topic in Coping with Celiac Disease
Thanks everyone for your replies and advice. I do soak the beans overnight before I use them and I don't use canned food. Will just avoid them for a while I think - really like them though and needed a bit of variety in my diet. Oh well ... I take digestive enzymes before every meal. I also take multi-billion acidophillus every day - perhaps... -
I am slowly but surely trying to figure out all my intolerances. Off dairy at the moment to see if it will help with my chronic C. I have noticed in the past that I get incredibly bloated immediately after eating lentils or any beans. Well just had lunch - I had aduki/azuki bean stew - just the beans, carrots, onions, garlic & herbs with millet mash...