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Aly1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Aly1

  1. Aly1
    Celiac disease is a manifestation of gluten intolerance where the villi of the small intestine are attacked and a variety of symptoms follow. It is auto-immune in nature. Non-celiac gluten intolerance basically means the bad reaction to gluten effects areas other than the small intestine - and it can really effect any area and cause numerous symptoms from...
  2. Aly1
    That's so awesome, you can really start living again!
  3. Aly1
    Yes, I've been reading along on this post and I would also love to read that thesis!
  4. Aly1
    Thanks so much MitziG for your reply - I can't believe your son says that to you!! That would kill me. I do feel so much guilt because her symptoms are vague and easily Not related to gluten. But gluten has made me so sick for much of my adult life, and I lost the last 10 years of my life going undiagnosed (like many people here!) and can't bear to just wait...
  5. Aly1
    Ugh that is so frustrating, why not order a simple celiac panel just to cover all the bases? Are you just going to go gluten-free now and give up on the testing? I personally tested negative despite a big correlation between gluten and my symptoms. I've decided to pursue genetic testing so I can at least have that part of the puzzle clear...but for me a DX...
  6. Aly1
    What does it mean to say a company has spammed the forum? Not that I want to linger on the subject bc I don't want to hijack someone's thread...
  7. Aly1
    Wow, I can't believe my freedom of speech was just violated (yes that's being dramatic ) I don't think it's right to remove a company from a post because you don't like their business practices, it's a little offensive. So in protest I will leave a hint about the company because the point of these forums is to HELP one another by providing useful information...
  8. Aly1
    You mention that you live in a small town that maybe won't have all the gluten-free products you're looking for. Just an FYI that (Company Name Removed - They Spammed This Forum and are Banned) carries a lot of gluten-free things and often in bulk so you can save money on the things you know you like. Good luck!
  9. Aly1
    Thanks so much for the advice and information - it definitely came in handy as he was just going to do the standard tests which did not include the ttg one and another one you listed. It was so hard to hold my little girl while this woman took her blood - I remember that same woman taking my blood last year and it was one of the worst I've ever had...
  10. Aly1
    Thanks for the advice! What specific tests should I make sure she gets done?
  11. Aly1
    I personally am having my daughter go gluten-free for the first few years of her life, just to be safe. The only childhood symptom I had was "growing pains" in my legs that were pretty bad. Gluten has all but ruined my adult life - I am in a wheelchair thanks to it - and I see my daughter who takes after me in so many ways... I am already gluten-free and...
  12. Aly1
    This is something I'd intended to research myself but we've all been sick here and now I'm out of time. Tomorrow morning at 10 I have an appointment with my 2.5 year old daughter's pediatrician and I want to ask for her to be tested. This ped is young and I anticipate he'll be totally clueless about celiac and gluten intolerance. I need to know what...
  13. Aly1
    That's a very helpful post, thanks!
  14. Aly1
    And we are finishing our last loaf of ww bread for our little girl. Then I just won't buy anymore! Hoping to get her tested ASAP and then have her go gluten-free too...
  15. Aly1
    He is a typical guy who wants to "fix" me, and when he can't, he gets frustrated. I honesty don't blame him for the cases at home where I've been glutened; as I said he prepares what I say I can eat and how...I just have had a lousy learning curve as of late. I have to be the one to take responsibility for the ingredients we have; I am the one doing the researching...
  16. Aly1
    Oh. I know I should be sticking to whole foods, I do - its just that I am losing so much weight and have not been able to eat meat for breakfast, it's gross to me (and we are seriously broke). I just an trying to find some flour that I don't react to so I can make muffins etc to add to my rotation and help me gain a bit of weight. I got some good advice here...
  17. Aly1
    Thanks for your replies, I didn't have the energy to respond yesterday. Most of the time when hubby glutens me it's been of my own doing eg. because I've chosen a product without investigating all the ingredients. I've learned that Big Time this month, I have to be more careful. The only thing he's done that I question was cook my dinner right beside a couple...
  18. Aly1
    That's very interesting - plantar fasciitis was my first symptom, before everything else went wrong. Not to freak you out but ithe pain (and then nerve) symptoms moved up my legs, into my thighs to my waist and I ultimately ended up in a wheelchair. Have been in one for 6 years now but was just diagnosed with gluten and other problems and my doc is hopeful...
  19. Aly1
    No, that's not the answer i wanted to hear, I want quick easy nutritious gluten-free foods that I enjoy eating. But I appreciate the replies. I will get a probiotic, it can only help! Thanks
  20. Aly1
    I could have written your post, I am in the exact same situation. Except hat currently I don't have medical insurance so I can't do anything right now anyway. I think I will get tested - even though the results can't point to anything definitive, it's one more piece of the puzzle, and to me, the more pieces, the better.
  21. Aly1
    I am feeling really low today. I have been glutened repeatedly the past 3 weeks (most recently last night at my in-laws) and am so weak and tired and fed up. Every new food product I try produces symptoms, and we are trying so hard to find things I can eat safely other than just meat and veggies and brown rice, but fail each time. I want to quit but as we...
  22. Aly1
    I'm just curious what her symptoms are? As a previous poster said, there's hardly a system in the body that gluten can't touch...and with all her food allergies, it would hardly seem surprising to add gluten to the list.
  23. Aly1
    Oh okay so I am clueless in a different way :oD. But - are there tests that show plain gluten intolerance? And i voted Negative. I tested negative and get So Sick on gluten.
  24. Aly1
    I am a little confused by this poll, so maybe someone will educate the newbie! (Or maybe it's just my brain fog, I am out of it this am!). I thought that there are 2 conditions - celiac and gluten intolerance (well, wheat allergy too, but that's irrelevant here) that fall under an umbrella term of gluten sensitivity. I thought that it's possible to have false...
  25. Aly1
    I don't know if I'll even get a reply to this one because I'm so sensitive right now that maybe there just isn't anything out there that's processed that I can have! I eat mostly whole foods but need some processed stuff to fill in the gaps. I'm relatively new to gluten-free and am discovering I am sensitive to so many things. I want to find flours (I already...
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