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kb27

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kb27

  1. kb27
    Thanks for your comments. We don't have a 504 plan - the school said they could take of everything without one. He does have a health plan on file. I like the idea of asking them to have the non-cooking part of the cass taught elsewhere. Then we wouldn't have to worry about what the other classes are doing in there. I agree whole-heartedly that kids...
  2. kb27
    My son was diagnosed with celiac 3 years ago. We (immediate family) were all tested and came up negative. The specialist he went to said all immediate family members should be retested every 2-3 years. Since we made the whole house gluten-free, none of the non-celiacs in the family each much gluten. Thus, in order to get re-tested, we need to eat some...
  3. kb27
    My celiac son is due to take the modern equivalent of home ec next year. Part of it involves cooking. I got a note from his doctor stating that he should be excused from cooking class for medical reasons, but we are at the point now of trying to structure alternatives. My concerns are that being in a classroom in which a bunch of 12-yr-olds have been...
  4. kb27
    It really depends on the school as to whether or not you need an official diagnosis. Our elementary school was willing to work with my son even without a letter from the doctor. We had no problems with any teachers, from art to after-school care. They were very accommodating. We did not attempt to have him eat at the cafeteria. Now he's in middle...
  5. kb27
    We don't know anyone else in person who has a kid with celiac, but we do have friends who have been very supportive. They make sure that there is food our son can eat when we go over to visit. And my son's friends know that he can't just eat whatever they are having. He's older though (11 now, but 8? when diagnosed). We have found an active ROCK group...
  6. kb27
    We have one kid with and one without celiac. We keep a gluten-free home, but kid #2 (non-celiac) can eat gluten whenever he is out (school lunches, etc.). When we got everyone screened for celiac, after kid #1 was diagnosed, we also had kid #2 (and me) have the genetic test done. Although I have one of the celiac genes, kid #2 did not have any of...
  7. kb27
    Schar cheese bites taste like Goldfish & Cheezits, too.
  8. kb27
    Thanks for the reply. I think he probably had both the glutening and some illness at the same time. The fever and full-body rash seemed a bit at odds with the standard GI issues. He's not on any medications, but I suspect the same kind of thing could be at play - the immune response to the gluten exacerbated other conditions. And he is better now...
  9. kb27
    Thanks for the replies. He was only at camp for 24 hours (it was just a weekend thing), so I can't just blame the kids. Of course, he spends all day with them at school during the week, so it could still be a bug. Now he's totally itchy all over. This is weird.
  10. kb27
    My son got glutened this weekend at a camp. It's the first time since he was diagnosed with celiac and went gluten-free that I know he had gluten. Within about 12 hours he was nauseous, unhappy, and running a fever. So we came home early. By that evening he was able to eat again and the fever broke overnight so I sent him to school yesterday. And now...
  11. kb27
    Cara - we just had a similar issue with our son, who was glutened and got quite sick afterwards (about 12 hours later he got really nauseous and actually got a fever). His symptoms were a little different (so I put my query in a separate post to not hijack yours...), but he had not had any GI symptoms prior to going gluten-free. From what I hear here...
  12. kb27
    My son was at a camp this weekend (with me). The camp actually had pretty good procedures for keeping kids with dietary restrictions safe, but one night procedures weren't followed and my son was given some gluteny gravy. He got about 3 or 4 bites down before we figured out what was up. Oops. It's the only time in the last 2 years that I know for...
  13. kb27
    Our experience is just one of many, but we did see growth right away. My son was 8.5 when he was diagnosed, and he, too, was small. He grew a lot in the first 6 months gluten-free (like 10 pounds and 4 inches). We were shocked. We hadn't really noticed how small he was and then he was outgrowing all of his clothes. Two years later now, and he's been...
  14. kb27
    My son was 8.5 when diagnosed. He was small (maybe 50 pounds), but not overly so. And he was anemic, but borderline so. It was the iron deficiency that caught our doctor's eye - on a blood test run for something else. And his iron levels didn't improve with supplements. That was what prompted the celiac test. He never had GI problems. After going...
  15. kb27
    I can't help you with New England camps, but we sent my son to one of the Concordia Language Village camps in Minnesota last summer. They did a great job with his food, even though the camps are set up around family-style eating. They let him know which dishes he could and could not eat, and the chef prepared gluten-free alternatives for him for the ones...
  16. kb27
    I think there is a celiac camp in Minnesota, too. I've seen it advertised on the Twin Cities ROCK website: Open Original Shared Link My 9-yr-old went to one of the Concordia Language Village camps in Minnesota this summer. Although it isn't a gluten-free-specific camp, they handled his need for gluten-free food very well. (And he LOVED the food - he...
  17. kb27
    The transition can be challenging. We took a different approach and just made the whole kitchen gluten-free. We scrubbed everything, but kept it all. It seems to be ok (even with cast iron pots, wooden spoons, etc.). I think your child's sensitivity to gluten will end up setting up how vigilent you have to be about replacing kitchen items. We chose to...
  18. kb27
    Hopefully you will find a doctor who is willing to diagnose your son based on his reaction to gluten, w/o having to stay on it long enough for testing. But I will admit that we have never been asked for a doctor's note. My son was diagnosed a year ago. Strangely, although the diagnosis was easy, it took me about 2 months to actually get a piece of...
  19. kb27
    Only one toaster and it's totally contaminated. Celiac son doesn't eat toast right now (not worth buying a new toaster for 6 months of toast). He's feeling fine now. And no reaction after the last loaf of bread came through the kitchen. I did find out that my husband was eating bread at work, and bringing home gluten-contaminated tupperwares...
  20. kb27
    When my then 8yo was diagnosed with celiac, we made the whole household gluten-free. It really is easier (says the person who is traveling right now and dealing with a slightly mixed kitchen). Mentally, it also helped me to really invest the time and energy into figuring out how to make good, tasty, gluten-free food. I love to bake, and I had to relearn...
  21. kb27
    Thanks for the tips. And I agree about the gluten-free kitchen - that's what we do at home. This is just a temporary fix in a foreign country in an apt without a lot of flexibility. The only gluten in the house comes in the form of corn flakes and that one loaf of bread I got. He doesn't use the toaster because it came w/the apt. I washed all the gluten...
  22. kb27
    It was only my husband and I who ate the gluteny bread, not the kids. I caught my husband "double-dipping" in the jam, so he went out and bought a new one. But I don't think my son had any jam. But oh, the crumbs - the bread is crumbly. They could have gone anywhere, I suppose. This is why we keep a gluten-free kitchen at home - it's so much easier...
  23. kb27
    So how do you keep a mixed kitchen without contaminating the celiac in the family? Background: My 9yo son has celiac, but none of the rest of the family has any issues with gluten. At home, we keep our entire household gluten-free because it's easier. I bake all of our gluten-free bread, pizza, muffins, etc., because I enjoy baking. Flash forward...
  24. kb27
    I wanted to report back in case anyone else is traveling to Barcelona. We have been here just over a week now. It's very very easy to find gluten food in stores. Most of the grocery stores have a dedicated "special diet" area with gluten free (and lactose free and sugar free, etc.) foods. I've seen foods labeled both "sin gluten" and "sensa gluten". ...
  25. kb27
    Thanks for all the ideas. We decided to try some GoPicnics - it will be fun in any case. I think I won't attempt an ice pack. Last time we changed planes in Newark we had to leave the terminal and go through security again (with a 30 minute connection - it sucked), and I'm pretty sure the ice pack would have melted by then. Now if I can just survive...
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