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oni

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by oni

  1. oni
    It took my 2 years for my ttg levels ti get to the normal range. Before my titer was normal, my doc said there was a possibility that I had another autoimmune disease or it was possible that I had refractory celiac. But I stuck to the diet and gave my body time to heal, eventually it did. I had blood tests every 6mo until it went into the normal range. I...
  2. oni
    Hi. I posted earlier in the DH section a few months ago and since then I've found out a few things that I thought I'd post here because I found it to be helpful and thought it was interesting. I had a nasty super itchy rash on my shins that was unresponsive to steroid creams. Probably the most helpful thing I did is finding a new dermatologist. I had...
  3. oni
    I find this true of canyon bakehouse too. Almost slimy or rubbery. I think it's the chia seeds. I'm not a fan.
  4. oni
    Agreed! These are great.
  5. oni
    I've been using vanicream. The thicker stuff in the tub with a pump. I love it!
  6. oni
    I feel ya about wanting your body to just cooperate. The annoying part is that sometimes it just doesn't. Neti pots are great, I also have to take antihistamines sometimes but together they really do help for congestion. You could try the neti pot for a while and see if it helps. I'd see an ENT about the halitosis.
  7. oni
    They truly are disgusting. Not all can be seen or dug out. I'd definitely have the doc check how your tonsils look since she's going right by there with a camera anyway. I hope you get some answers soon! Good luck. I had 'twilight' anesthesia for both my endoscopy and my colonoscopy. I have no memory of the procedures but wasn't fully under.
  8. oni
    Jiggles is right on. I had the same issue! It was totally tonsil stones. I had my tonsils removed (I tried removing the stones and a slew of other remedies first to no avail) and tada! No more nasty smell, I sleep better too
  9. oni
    I also have fish and have yet to find a gluten-free flake food or pellet. I just wash my hands right after I feed them.
  10. oni
    I've made some pretty great pizzas using Pamela's bread mix (recipe on the back). You just have to pre bake the crust, on both sides.
  11. oni
    The genetic tests do not diagnose celiac disease. For that you need the tests listed above by NVSMOM. IMHO genetic testing is largely an expensive waste of time. Something like 30% of all people have DQ8 and DQ2.
  12. oni

    ARCHIVED Shins?

    oni replied to oni's topic in Dermatitis Herpetiformis

    I have been totally gluten-free for almost 3 years (it'll be 3 in Jan). I'm very diligent, so I don't think that's it. They don't usually show up on both sides of my body, except for on my elbows. Really, I'm just sick of using steroid creams. Maybe my dermatologist is right and I just get rashes more often than regular folks.. I just wish I knew...
  13. oni

    ARCHIVED Shins?

    oni posted a topic in Dermatitis Herpetiformis

    Hi! I have a super itchy rash on my shin. Is this a normal place for DH flares? I have always gotten rashes, my derm calls it papular eczema (he also said with my history of celiac and seasonal allergies that I just have 'rashy tendencies' whatever that means) He's never tested any spots for DH, just prescribes a steroid cream. I'm celiac and my blood...
  14. oni
    By 'contracts' I mean that my employer negotiates with insurance companies to develop plans for their employees. The employer has a say in what kind of plan and coverages are offered. By 'professionals' I mean benefit coordinators and compliance officers. At this point I think we've hijacked the thread. I'm out.
  15. oni
    I wasn't trying to make it a pro or against affordable care act post. I helped my mom get insurance this year for the first time ever, which is great. I was trying to get across that I wasn't sure what happens when an employer isn't involved. I know they have contracts and other professionals that the general population doesn't get.
  16. oni
    For what it's worth, my diagnosis did not change my rates or coverages. One caveat, I have insurance through my employer, a state run university. It's blue cross (which has plans in the market place) if my employer didn't pay as much as it does for insurance I couldn't afford as good of a plan as I have now.
  17. oni
    I had knee surgery last year and took ibuprophen without problems. Hope you are feeling better soon!!!
  18. oni
    So I get crazy rashes too. Mine aren't from foods though. I get contact dermatitis and excema. When I get rashes all over like you describe it's usually from my clothes (either detergent or fabric softener). Talk to a dermatologist or allergist. They can help you with diagnosis and treatment. I have a steroid cream that clears mine right up in a couple of...
  19. oni
    My fiance is not totally gluten free and we live together. Here is what we do. Our house is 99% gluten-free. When we make meals together the meals are gluten free. If there is something with gluten in it (for instance if forgetful friends bring bread to share), it goes into a designated zone in the kitchen far away from prep cook area. I usually walk by...
  20. oni
    I've quit trying to defend myself. I'll usually explain why I'm turning down delicious muffins/cake/dounts.. whatever. If they come back with a snotty comment I just walk away. I used to get mad and defensive but it doesn't help, I even offered to show someone my endoscopy results once.... It's almost like trying to change someones mind on a religous or...
  21. oni
    This is also my first gluten free thanksgiving. Luckily my mother is supportive. My mom is preparing the bird without stuffing, I think she was going to use rice and or lemons/seasonings inside. Gravy using cornstarch or potato starch. I'm making corn bread stuffing, pumpkin pie - I've successfully used mamma's pie crus mix which is very good and forgiving...
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