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jeanzdyn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jeanzdyn

  1. jeanzdyn
    I have a question regarding notifying my employer officially, with a letter from my GI doctor, that I have Celiac Disease. They want an "outline" of restrictions, if any. I am concerned that they will try to use it as ammunition to fire me. I was hired because I have a CDL (commercial truck driver's license) and they think that if I cannot drive the vehicle...
  2. jeanzdyn
    I will tell them I want the records. The thing is that I do not like my GI at all. He disputes my symptoms, says they have nothing to do with Celiac Disease, yet they are on the lists of symptoms I have seen. Also, if he doesn't think my symptoms are related to Celiac Disease, why doesn't he help me figure this out? or recommend a doctor who can look at...
  3. jeanzdyn
    I tried to request a full thyroid panel. The doctors won't listen to me. I have not been tested for celiac antibodies. I have no idea what the original gastro doctor did in the way of tests, other than the biopsy. I have no details. I know that I messed up there.... I don't even know where to go, now, to find a doctor who will help me. I don't know...
  4. jeanzdyn
    I already have a used car.... a 2008 Jeep Liberty.... my previous car was not paid off,... I owe too much to be able to fix that particular issue. As for moving out of my own house --I have too many belongings in it. There is no way I can transition easily. Understand that my last 2 moves were major and it was (as always) me, all by myself moving...
  5. jeanzdyn
    The thing is: I cannot just quit my job. I have no savings. I have a mortgage, car payment, and other payments. I really don't know what to do. This job, it's like indentured servitude --I am not near home enough for job hunting, or for regular doctor appointments. I know that I need to get out of this situation, because it is definitely no win. My...
  6. jeanzdyn
    I had a run in with HR at work today. The HR woman's son has gluten "sensitivity" or allergy or something, but NOT celiac disease. She tried to tell me that I am being unreasonable! I said that I cannot eat in restaurants because of cross contamination. I walked out on her. I sent her an email and explained that she really does not understand what...
  7. jeanzdyn
    I have real problems. I was diagnosed with Celiac Disease by biopsy in 2011. I have considered myself to be gluten free for over 4 years, with the unfortunate condition that I am forced to travel for work -almost constantly. This makes it very difficult to maintain gluten free, when it becomes necessary to eat in restaurants or starve. An additional complication...
  8. jeanzdyn
    I have noticed more skin tags since my diagnosis of Celiac Disease and going gluten free. A doctor has asked me if anyone in my family is diabetic, because "diabetics have skin tags and dark patches"..... my mother had the same --dark patches and skin tags but NO diabetes in the family. I find the mention of insulin resistance and skin tags very interesting...
  9. jeanzdyn
    I do not take meds for depression and I do not want to, or need to. I have these downward spirals periodically, but not regularly enough to call for meds. I know the reasons for the downward spiral, and there is not a whole lot I can do about it, except to let it come and this too shall pass. I am all alone in the world. No one cares about me. My worst...
  10. jeanzdyn
    in addition to celiac disease I am now in menopause, so everything is totally out of whack. currently my hair growth is not that great,.... it's even less on legs and under arms. The hair on my head had been getting healthier - stronger, but due to a current relapse of symptoms it has become weak and unhealthy again as well.
  11. jeanzdyn
    A few nights ago I had a shocking episode of diarrhea,.... It was like passing gas, but I knew that it was more. By the time I got to the toilet I had a small mess to dispose of.... that got me to think about all of the myriad symptoms I have had lately. Symptoms that seem to be getting worse. Is this more than Celiac disease? what is happening......
  12. jeanzdyn
    I was lethargic and spent my weekends sleeping --up to 18 hours of sleep a day, both Saturday and Sunday. After being gluten free for over 18 months I finally noticed that I was sleeping much less. Sorry to say, but some things just take longer than others, and we are all different,.... you have to stick with the diet and give your body time to realize...
  13. jeanzdyn
    I think that there are other food intolerances that are "hidden" by the Celiac or the gluten intolerance. Like your body is working so hard to combat itself, in the case of Celiac disease, that it kind of fails to alert you to other problems. For example, I never had an issues with citrus, then suddenly, after a year of being gluten free I was (and am)...
  14. jeanzdyn
    This past November I was ill. I had digestive system discomfort with severe nausea and I had dizzy spells. I finally tracked down the one thing I had consumed that I did not use for many years prior to this event..... chewing gum containing ASPARTAME. Aspartame is nasty stuff!! I was so sick for so many days, accompanied with the dizzy spells, which...
  15. jeanzdyn
    itching again..... winter, so predictable.... this time I think it has to do with perhaps one of the following: sugar corn products dairy (I sure hope not) tea? caffiene? this morning I have had my supplements, things I have taken daily for year and years with no symptoms that I am aware of. I have had water. I was hungry, so I ate some sweet potato...
  16. jeanzdyn
    At last! I am NOT ALONE. I have these exact symptoms you describe, tonalynn. Drives me insane!! no one understands or believes me. I was diagnosed with Celiac Disease in November 2011. I have been 99% gluten free for 2 years. 1 year ago I had the itching, but it turned out that I now have a citrus allergy, so eliminating citrus made the itching go...
  17. jeanzdyn

    How do I find out about ADA workplace guidelines for exposure other than food.... like a flour mill or bakery

  18. jeanzdyn
    Well, I finally saw the allergist. After I told him what I like to eat and what I had already known I was allergic to he tested me for things I like to eat. And he also tested me for the things I already knew I was allergic to. (I wonder what that will cost me...) Apparently I have sensitivity to eggs and nuts. Two things that never seem to have bothered...
  19. jeanzdyn
    In years past I have had horrible itching primarily on my legs. There was never anything to see, no rash, nothing. The doctors were always kind of puzzled. They would say "dry skin" --but upon examination it was not dry skin either. There never seemed to be an answer. I did a lot of hunting for reasons, looked up a lot of things on the Internet, looking...
  20. jeanzdyn
    I would like to suggest that maybe you should not drink soda, or anything else, out of aluminum cans. While your problems may well stem from the soda pop ingredients, they might also be connected to that aluminum can. Long ago I found that I did not like the flavor of soda pop out of a can, but if it came out of a glass or plastic bottle the flavor seemed...
  21. jeanzdyn
    I was given a prescription of Mometasone Furoate Cream 0.1%. That helped a great deal. After 2 weeks the skin in the affected areas is still pinker than the surrounding skin, but no more itch after the second day's application. I was also advised to take an antihistamine, and have been doing that also. I have an appointment with a dermatologist, later...
  22. jeanzdyn
    Okay, I saw the nurse practitioner, but by that time, with legs itching also, it was showing up as a serious rash and it is eczema.... but it had to manifest the rash-like red areas for that to be apparent. at first it was just a mild rash on my belly, but that cleared up as the legs (mostly below the knee on the back of the calf) began to itch. The...
  23. jeanzdyn
    I do have what appears to be a rash. I cannot figure out why though. it itches all the time and nothing relieves it. nothing. I have tried lotion, scrubbing, baby oil, anti-itch cream,..... nothing changes this at all. I have been keeping track of what I eat (and drink), but since I have taken all new foods out of the diet there has been no change...
  24. jeanzdyn
    I could 'buy' allergic to the cold, but I don't believe that to be my problem. Although wearing more layers of clothing to keep warm enough may have a little to do with this, in my opinion. As for allergic to water --lord only knows what may be in the water!! any place and every place. Where I live the water that comes out of the faucets has been through...
  25. jeanzdyn
    One of the main reasons I was not that surprised when I was diagnosed (via biopsy) with Celiac Disease is that one of my worst symptoms was itchy skin. This was primarily in the winter, and there is never any sign of a skin ailment, other than the marks I leave from scratching that burning, itchy skin. No dry skin --believe me, I have tried lotions and...
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