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Latest Celiac Disease News & Research:
Everything posted by Jnkmnky
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ARCHIVED Getting Tests Without Reasurance
Jnkmnky replied to rainbow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You know....You've got to be comfortable with what's being done to your body. You really need to tell your doctor how you feel about what's going on and what he's planning for you. You don't have to submit to every test suggested by a dr. You need to make the decision to accept the tests, not feel forced to undergo them without any real understanding of... -
ARCHIVED Maltodextrin/good Or Bad?
Jnkmnky replied to Babs83's topic in Gluten-Free Foods, Products, Shopping & Medications
Velveeta is gluten free. Your brother needs to check out this site!! It will change his gluten free world. -
ARCHIVED Unfit For Military Service....
Jnkmnky replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, I guess they would investigate your life. If they turned up a private dr appt that you made for bloodwork checking for celiac, that would be one way to prove you knew. When you're in the military, they own you. It's not like being a private citizen. -
ARCHIVED Unfit For Military Service....
Jnkmnky replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiachap, If you know you have celiac disease and get caught *in the military, that is* you can lose your retirement, and be discharged in an ugly way. Read the final warning to those who try to conceal known disqualifications at the bottom of the link I've posted above. It wouldn't be worth having it and knowing it and lying about it. Though, I'm sure... -
ARCHIVED Unfit For Military Service....
Jnkmnky replied to Jnkmnky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Open Original Shared Link I've posted this here before. You cannot be in the U.S. military with dx celiac disease. He could be a policeman or a fireman...or an emt... Lots of good jobs that help others still available. -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
Melissa, go to the parents of kids with celiac disease section and browse through old posts. There are plenty of great answers to your questions there! -
ARCHIVED Is Snickers Gluten-free?
Jnkmnky replied to PrincessLEah's topic in Gluten-Free Foods, Products, Shopping & Medications
Every size change in a snickers or any other food matters. Check the ingredients for minis, bite sized, regular, jumbo and popables. Each is different. Some contain gluten, some do not. This rule applies for all foods. -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
Open Original Shared Link At the bottom of this link you'll see where it says Mustard flour is gluten free. -
ARCHIVED Gf Oreo Alternative
Jnkmnky replied to Nathansmom's topic in Gluten-Free Foods, Products, Shopping & Medications
I ordered them on line. I actually just about give up with that company. I've asked and asked my local stores to carry them...and they still don't. They actually carry a FEW of the products, but not the products I want like the cookies and those fabulous cereal bars. I've begged. I've asked glutino very nicely to get more of their products in the store... -
ARCHIVED Sensitivity Vs. Cd
Jnkmnky replied to Martyg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think Glutino makes a cereal bar that you could have. They're packed in single serving bars just like a nutri-grain bar. If you eat a breakfast with gluten, you may not enjoy your day as much. It seems not worth it. How about hard boiled eggs? I didn't see eggs in your list. Baggies with cold cereal? Kinnikinnick has bread products with no casein... -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
Soybean oil and soy are gluten free. I don't like soy. I think it's bad for the body. I've recently eliminated virtually.... virtually all soy. It's way more difficult to rid your fridge and pantry of soy than to rid your world of gluten. Here is a link to a site about soy. Open Original Shared Link It's not the only site out there pointing... -
ARCHIVED Gf Oreo Alternative
Jnkmnky replied to Nathansmom's topic in Gluten-Free Foods, Products, Shopping & Medications
Vydor, those are the ones we have as well. They are good...just hard unless you let them stay open for a day or two. -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
Do you have an Outback Steakhouse near you? They have a gluten free menu. You need to ask for it or download the menu yourself and bring it with you. They're awesome. It also helps to get out, validate your new self, proclaim your new status and eat a great big steak made special just for you. -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
You can have mayo. Tunafish, chicken salad...until you find bread you like, put the tuna and chicken salad on a bed of salad greens. What else do you like to eat that you're wondering about? Just ask. Someone here will tell you what you can replace it with...or if it's gluten free and you can keep it.... -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
Jnkmnky replied to groogle's topic in Coping with Celiac Disease
There are things in life much worse than celiac disease. Some of those things can happen to you if you don't adhere to a gluten free diet. As Kaiti pointed out, there are many diseases thought to be associated with celiac disease. If you maintain the gluten free diet, you lessen the possibility of getting those additional problems. Having said that... -
ARCHIVED They Don't Mention Cd Or Really Test For Wheat ...
Jnkmnky replied to Jnkmnky's topic in Publications & Publicity
ooohh, my mistake. I see the word wheat now. haha. sorry. -
ARCHIVED They Don't Mention Cd Or Really Test For Wheat ...
Jnkmnky posted a topic in Publications & Publicity
Open Original Shared Link -
ARCHIVED Gf Oreo Alternative
Jnkmnky replied to Nathansmom's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh, about the chocolate O's....keep them opened. They're a little hard. Left in the box, with the celophane undone softens them up. (Perfect oreo substitute.) I guess that's stale, actually, but trust me...they were a little too hard when first opened. Little teeth, or loose teeth have a hard time with that. -
ARCHIVED Gf Oreo Alternative
Jnkmnky replied to Nathansmom's topic in Gluten-Free Foods, Products, Shopping & Medications
Now this is the kind of critical question I can help you with.... Glutino makes a cookie called Chocolate O's. Let me know what else your son needs replaced! -
ARCHIVED Waiting For Test Results
Jnkmnky replied to Nathansmom's topic in Parents, Friends and Loved Ones of Celiacs
You do indeed need to be tested. And all your future children. And all your close relatives should be told to get tested. -
ARCHIVED Unfit For Military Service....
Jnkmnky posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A person with celiac disease can't be in the U.S. military, and I was wondering if there were any other job limitations for a person with diagnosed celiac disease. Does anyone know? I guess a police officer would have to bring along his Kinnikinnick donuts when patroling! -
ARCHIVED Waiting For Test Results
Jnkmnky replied to Nathansmom's topic in Parents, Friends and Loved Ones of Celiacs
Maybe he's gluten sensitive. Have you read the book Dangerous Grains? I got it a couple of weeks ago, and the information was very revealing. I've gotten blood tests for the entire family...we're all not celiac disease, but are now all gluten free. -
ARCHIVED Any Gluten Free Bread Suggestions?
Jnkmnky replied to GFG's topic in Gluten-Free Foods, Products, Shopping & Medications
Everyone's tastebuds are different, I suppose....cuz we really like Kinnikinnick's breads. We have the White tapioca sandwich bread, the plain bagels, the pizza crusts, and the chocolate glazed and chocolate dipped donunts by Kinnikinnick. Ordering is easy. They deliver quickly. I get 10 loaves at a time and keep them in my garage freezer. Chebe bread... -
ARCHIVED Waiting For Test Results
Jnkmnky replied to Nathansmom's topic in Parents, Friends and Loved Ones of Celiacs
Well, THAT'S good! When I look back on our experience, I can't believe our docs didn't think of SOMETHING that could be wrong with my son. He was soooo sick. For three years....soooo sick. I brought him to drs at least once a month. In the end it was nearly every day for a month that I brought him in. Thank goodness someone finally thought back on the... -
ARCHIVED Waiting For Test Results
Jnkmnky replied to Nathansmom's topic in Parents, Friends and Loved Ones of Celiacs
Find out from your dr if she thinks he can begin a gluten free diet now or if he should wait any longer. I've heard that testing on a young child can be inconclusive, anyway. Sometimes a dietary change reveals the best results. I'm all for diet being the final verdict for one reason in particular. My son was dx at three. He did suffer some learning problems...