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ryebaby0

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ryebaby0

  1. ryebaby0
    My son is finishing up his freshman year, living on campus and eating in the dining halls, at Penn State UP. He has a frig and microwave in his room, for starters. I was really skeptical at first (and we had visited Ithaca, and it is impressive) but he has had a great year. All the dining halls have a gluten free station that is stocked with pasta, chicken...
  2. ryebaby0
    Your school really is required by law to offer you food. Did you pay for a contract, or are you living off campus? It's not okay to have salad forever. My son is a freshman, in his room he has: peanut butter,gluten-free pretzels, minute rice, raisins, yogurt, almonds, nachos, pasta (we freeze cooked pasta in single-serve microwaveable bowls), sauce (for...
  3. ryebaby0
    This is similar to my son's course of diagnosis -- first dx with juvenile rheumatoid arthritis, then celiac. The gluten free diet did not improve his health, but people told us to be patient and wait. It was a dietician who insisted he be hospitalized and there he was dx additionally with something called autoimmune enteropathy. Basically, an misguided attack...
  4. ryebaby0

    ARCHIVED Transitioning To An Adult Gi

    ryebaby0 posted a topic in Doctors

    My son was dx almost 10 years ago, and has been under the care of the same group (and basically the same doctor) at Children's Pittsburgh all that time. He has an additional dx that necessitates immunosuppressive meds and monitoring. Anyway, son wants to stop driving 6.5 hrs round trip for the checkups twice a year (it will be particularly hard to schedule...
  5. ryebaby0
    The scope is scarier for you than her. The biggest thing is for you to be calm. Completely calm. At 2, she's not gonna understand a lot and she might not like all these strangers bugging her. Bring things to distract her (I used to bring Pokemon cards and we'd get engrossed in unwrapping them and seeing what we got). Stay calm. The scope itself is pretty...
  6. ryebaby0
    Rafferty's in North Conway: Open Original Shared Link which is not really near Storyland at all, but well worth the trip. It's like a regular restaurant, only with it's own gluten free menu. With actual choices. We have family in Rye and always drive the whole stinkin' way up to Conway just to eat lunch there!
  7. ryebaby0
    Huh. I came to the travel thread just to post about Hershey Park, bc my son was there on a class trip this week and had a great experience. Ate at Minetown and had hotdogs and cookies, which came wrapped up so he didn't worry about contamination (he did not eat the hotdog in a bun, although they offered). He brought food with him in his backpack and no one...
  8. ryebaby0
    Open Original Shared Link Really impressive work on the part of PSU to step up it's gluten free programs
  9. ryebaby0
    ^ good point ...son is going to University Park , aka main campus. I don't know what the other campuses are up to.
  10. ryebaby0
    My son is about to attend Penn State, which (for a huge school) is doing pretty well accomodating celiac students but isn't as impressive as Ithaca College. IC has a dedicated kitchenette at the cafeteria which will prepare whatever you want; also has a gluten-free section in the convenience store and a gluten-free student advisory committee. PSU has interns...
  11. ryebaby0
    Actually, he is 18 already. And already making decisions and managing his healthcare, with varied results and competency. I appreciate more than I can say that if we dropped dead tomorrow, he needs to be able to care for himself, by himself. That's how he went on the beach trip last year, doing exactly that. And the problem here is that there...
  12. ryebaby0
    It's asinine to plan a trip out here that time of year, if the intent is to work outside (unless you're arriving acclimated from another desert). If they are working inside, that's another story (although I'd want to know if the place where they are working has a/c - if it's on a res it may not). I've seen people of all ages and health ranges get heat...
  13. ryebaby0
    The group itself is not the problem -- he's belonged to this youth group for 2 years, his friends are all part of it and our home church does not have a youth group. So I'm fine there, but the whole "pick up something to eat" part bugs me. I'm often overly cautious so I'm just checking! Seriously, how often do we go into a store and there's little to eat...
  14. ryebaby0
    My son wants to travel with a small group from a church, across the country, the week of his high school graduation. They will fly out, spend 3 or 4 days in service projects in the Southwest, and then fly home, arriving the day before his graduation. He would pay for the trip. I want to be fair, but I was exasperated. Their flight arrives around 9, after...
  15. ryebaby0
    My son has the same struggle -- he's 5'11" and weighs 126 soaking wet. And he has braces right now, which doesn't help. Our advice: 1. take a multivitamin with zinc 2. his daily diet looks like this: milkshake (ice cream, whole milk, cream, sometimes chocolate syrup or jam), 2 or 3 scrambled eggs (with butter) OR a donut OR yogurt. He's not a morning...
  16. ryebaby0
    There's a post on collegeconfidential.com about celiac and college that has turned up Vassar (has a cafeteria called Peace of Mind, for allergic/celiac students) Boston U (with many gluten-free options and the plans for a gluten-free dining area underway) and UMichigan (or maybe Michigan State, I get them confused) which has an extensive gluten-free program...
  17. ryebaby0
    Ask the teacher what they will be cooking -- and I would have him excused for days there is flour open. It's ridiculously hard to clean up! This is what we did for home ec -- he cooked gluten-free alternatives when it didn't involve flour, and there was only one day when it did (the rest of the days were smoothies, quesadillas, fruit platters, and soup)....
  18. ryebaby0
    Oh goodness, she needs an official diagnosis via blood test at least, or her school will not help her. And you won't be able to make them. gluten-free is viewed as a fad diet right now! It must be scary to know she's not eating right I wish I had a solution for you. Is there a meal she likes that she can just stick to? Can she have a rice steamer in her...
  19. ryebaby0
    I am not here to belabor the point, but for the edification of anyone else who will have to do this: IF a school is providing gluten free food --- any amount of it, any kind of it, even if they say "you can have a salad every meal for four years" or even if they say "we label all our food clearly" and the labels serve to tell you there's nothing safe to...
  20. ryebaby0
    The difficulty I've had so far at least, is that schools who have made "accomodations" by having any sort of gluten free food do not, as a result of that gluten-free food, consider celiacs eligible for any other accomodation. You don't need a kitchen if we are feeding you in the cafeteria kind of thing. I've also gotten several "well, we'd need to see whether...
  21. ryebaby0
    Some schools treat it as a disability issue, others just want to accomodate it as another special diet. Celiac is different than an allergy, so it just depends on how educated the school is, or wants to be. If its a disability, there are all sorts of legal issues and forms and doctor paperwork so I'm not in a hurry to have that be the choice!
  22. ryebaby0
    I think many of them do, but getting an exception based on food issues can sometimes be done. Some of the schools would prefer you do that and get them off the hook. It has been tiresome to find out all the combinations of strategies at various schools, but maybe he'll just apply where he's interested, we'll see if he gets in , and make accepting based on...
  23. ryebaby0
    I start with admissions, asking who to go to. Typically, I've already looked over the food service info on the website, including any ADA requirements or special diet forms. (If they don't have those things, you already know you're in uncharted territory). I exchange emails with a food service director, and then try to get referred to an actual dining hall...
  24. ryebaby0
    His academic interests/career path is very specific, we are not millionaires, we have another child in college. Apartments here in my college town run about $2000K/month; he could get 3 roommates and pare that down but that adds "find roommates" to the mix. @kareneng, I am struggling with your tone of I am just not trying hard enough. Many schools flatly...
  25. ryebaby0
    Oh thank you It is not unexpected, it just is irritating/depressing/frustrating and sucks a lot of the excitement out of the college search. And as for gorgeous dorm kitchens, he would never eat or cook in a common kitchen shared by 60-100 other students. The level of cc boggles the mind. My whole point here is that we can't expand the search, and the...
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