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ryebaby0

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ryebaby0

  1. ryebaby0
    Not going to enter the debate directly, but two good reads about the issues: The Autoimmune Epidemic by Donna Nakazawa (it also has a website by the same name, but the book is better) Boys Adrift by Dr. Leonard Sax In a nutshell, these books discuss (in normal people terms) the many contributing issues: your carpet, your drycleaning...
  2. ryebaby0
    We live in a University town, and 1,500+ students have been stricken with "flu-like" illness since Sept. (They don't test for H1N1 and assume that's what it is, since it's too early for seasonal flu). The school I work in had an absentee rate of about 20%, and every single teacher and most aides have had it. The severity has ranged from very mild to quite...
  3. ryebaby0
    You can't hear this enough -- that is a GREAT kid you have there! Being able to say no and stick to it is a incredibly valuable skill for a tweenage girl with food issues. Good for her for communicating, and for you for sticking by her unapologetically. Now, you have a teachable moment. You cannot stop this annoying teacher behavior. But, here's a chance...
  4. ryebaby0
    Our hosted events are always gluten-free --- I agree that our children need to learn what's okay and what's not, but in their own home, they should not be worrying about cross contamination of sticky cheerio hands on their toys. IMHO, people are so reluctant to host that you should be good with a "when we have playground here, it's no food" or only the food...
  5. ryebaby0
    It is a hard thing to be gluten free, the first year. Lots of grieving and second guessing and sadness is okay, and part of the journey. But I wanted you to hear our story, in a nutshell: When my son was 4, we went from his pedi. to a major med center to dx his constipation issues. They wanted to scope him. We decided against it. When he was 8, he fell...
  6. ryebaby0
    A strict gluten-free diet should tell you the things you need to know; I did want to say that my son was dx at 9 and has had something like 6 'scopes (I honestly have lost track). While it is alarming to contemplate, it is not so awful that if you ended up having to go there, you should panic. He sailed through them all. Also, grandpa has every right...
  7. ryebaby0
  8. ryebaby0
    We planned a whole trip to the NH seacoast area (I have family there) to visit Anello's in Portsmouth, but after the 2 hr. drive and finding a parking spot, it was closed. We were dumbfounded, as were the FIVE other people who arrive in the time we stood there, re-checking the posted hours and trying the door. GRRRRRRRRR
  9. ryebaby0
    Well, that was wonderful! We went down to breakfast and I asked at the desk, who sent me to the manager (turned out he helps with the breakfast every day). They had plated and covered a set of blueberry muffins and cinnamon scones (which were HUGE), offered a take-out box for what wasn't eaten. It was great -- I only wished they had saved the wrapper so I...
  10. ryebaby0
    We are staying tonight at Homewood Suites outside Albany NY; a Hilton property. I made the reservation online and in the comment box asked if their famed breakfast buffet ever included gluten-free items (we once stayed at a hotel that did, so now I ask) . This morning, the kitchen manager called and asked did my celiacs have any preference as to flavor of...
  11. ryebaby0
    Here's another angle to add in: there will always be difficult teachers and/or difficult students. Certainly we all try to avoid bad matches with kids/teachers, and that's cool. But another thing to do, apart from 504's and vigilance, is teach your child to advocate for themselves. Model the words of polite, firm, compliance to a gluten-free diet, even with...
  12. ryebaby0
    I am so impressed that you got GSK to talk to you about the study and the ramifications of their vaccination for your particular child. That is some serious accomplishment. I also share your frustration that oftentimes there are no "definitive" answers, particularly in some areas of medical science, and we are left to our own best judgement. I agree that...
  13. ryebaby0
    to the original poster (now, that sounds odd, doesn't it) don't apologize for being wrong about MSG; early on I was convinced caramel coloring was toxic, only to be corrected, eventually. We've all been there. I apologize if my emphasis was mistaken for irritation (I meant only to sound really really certain; not really really annoyed!) did Smith...
  14. ryebaby0
    MSG does not have gluten in it. If you need corroboration, check any of the major gluten-free listings, or support groups. Neither does the other ingredient listed. Where does your confirmation come from, and in what form (written, or word-of-mouth?) I'd be interested in seeing where this came from As a parent of an immunesuppressed child, and friend...
  15. ryebaby0
    My son took a prescription zinc liquid (it was pink, and tasted "not bad") as well as an ordinary multi (gluten-free of course, but it was just some regular multi, I can't remember if it had zinc or not but if it were as easy as that, I imagine he wouldn't have been on straight zinc too). He was on the zinc for the 3 months he was hospitalized, plus the ...
  16. ryebaby0
    I'm always looking for this thread....here's my son's story in a nutshell: dx at 9, already very small and not slow-growing, more like non-growing hospitalized , having fallen off the growth chart completely for weight, and in the 5th for height subsequently put on gluten-free diet PLUS zinc (you have to have it to grow, newly dx kids are often...
  17. ryebaby0
    No...if he doesn't have at least one of the the genetic markers, he can't develop celiac if he does have the genetic marker, he could (but not necessarily will) develop celiac
  18. ryebaby0
    Prometheus is not the only lab that can do Celiac panels -- those are common tests that have to be ordered by your doctor, but most any lab can have those processed/run with a regular blood draw. Just wanted to clear that one up~ Also -- what you often read is that studies show a correlation between early introduction of "the big 7" allergens and food...
  19. ryebaby0
    Hmm... My son was dx @ 9 (he's almost 16 now)..... Your son is only 7. No matter how much it appears he "understands" he can't have gluten, it will never be that easy, any moreso than getting him to clean his room, do his homework, or brush his teeth. As a child, he will make poor choices. Often! It's not been 1 year. He may not have yet internalized...
  20. ryebaby0
    Well, that must have been scary for all of you! I would not biopsy a 6 month old. Celiac testing on children under about 2, conventional wisdom would say, is so inconclusive as to not really be helpful. (You aren't likely to get a "yes" or "no" definitive answer). Enterolab, as someone has mentioned, does not give you a definitive answer either. (Some people...
  21. ryebaby0
    I'm the mom of two aged-out Scouts and one thing to consider is the stoves. The risk of cc is enormous (has anyone seen Scouts "clean" stoves?) and we just bought our son his own stove and created his own patrol kit (kitchen kit). Depending on how your troop operates, that may solve some of your problems. Foil packs are great, IF your son will eat the contents...
  22. ryebaby0
    Running Rabbit also makes gluten-free licorice, in black cherry, raspberry, citrus and "black" (regular!). You can buy it in Giant stores and specialty stores, or the gluten-free mall. The licorice is shaped like little bunnies, which makes it particularly nice for Easter!
  23. ryebaby0
    Ahhh, isn't this a problem? Soooo awkward! Anyway. Write these people a lovely thank-you note and tell them you are just so sorry, but for the next 6-9 months you are concentrating on a very limited diet because everything seems to be causing a reaction (tell the truth!) but love them for the support. And then give them a list -- a 5-item list -- of...
  24. ryebaby0
    I'm so glad you posted this -- we are at the Wexford office of Children's so often, and we get off in Cranberry and go right through Rt. 19, and I never thought to consider any of those restaurants. I'll keep Uno's in mind for our next trip!
  25. ryebaby0
    If you want to try another excellent choc. chip recipe, try the food network's site. Alton Brown (host of Good Eats) actually altered his for a show about food substitution. The recipe is called "The Chewy Gluten Free" ---"chewy" is the name of the original cookie -- and it's fabulous. Makes a bunch, no weird ingredients, and they are great. I make them for...
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