Jump to content

ryebaby0

Advanced Members
 View Profile  See their activity

  • Posts

    467

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ryebaby0

  1. ryebaby0
    I just thought I'd report on Rafferty's (Kearsage in N Conway, you can't miss it). It was a profoundly wonderful experience. 1. There were as many gluten-free choices as on a "normal" menu. Fish, seafood, pasta, burgers, salad, fries. pizza; my husband and son were just thrilled to actually have to CHOOSE. 2. The place itself is charming, clean...
  2. ryebaby0
    If you are anywhere remotely near North Conway, NH, go to Rafferty's Restaurant and Pub. The gluten-free menu is at www.raffspub.com and includes hamburgers on gluten-free bun, gluten-free pizza, chicken alfredo, salads with gluten-free croutons, scallops, baked haddock ---- I could cry just reading it. The owners' daugher was dx as the restaurant opened...
  3. ryebaby0
    The Scout reference reminded me: There's a company called Harmony House Foods in NC -- they sell dehydrated food meant for backpacking but it is great stuff for travelling too (or camping). The part that is great is that these are single ingredient packages -- ONLY spinach, ONLY carrots, ONLY broccoli, etc. -- so you can buy just the things on your personal...
  4. ryebaby0
    Booooo to the school! Argh, what a pain! But this illustrates perfectly the first principle of parenting celiacs --- We Do It Ourselves. The school assumed you would contact them and tell them what you had planned to do. You assumed they would contact you and make accomodations. It would be nice if we could count on outside help, but we can't. At least be...
  5. ryebaby0
    Hear hear! When you get there, take the hostess aside and ask if you can speak to the waiter or tell her your issues away from the table. Research the restaurant. Eat at home first. Bring a salad with you, and ask for a clean plate to put it on. (that's my husband's favorite) For heaven's sake, bring yourself a piece of cake Order a burger, ask to have...
  6. ryebaby0
    Oh goodness, gluten-paranoia is so incredibly normal! After a long time, you won't feel like this, but with all the stress newly diagnosed families have to deal with, it's just easier to do it all yourself Over time, your son will learn about what he can and cannot have, and that will enable him to feel normal because he won't need YOU there all the time...
  7. ryebaby0
    Whether your specialist says a biopsy is necessary does not actually mean you have to have one done. IMHO, a tTg of 153 from a reputable lab certainly doesn't leave any ambiguity, and tTg is very specific. The difficulty with biopsy is that there is always a chance that it will just happen to miss a damaged area. Ask your doctor what he would do if the biopsy...
  8. ryebaby0
    Why not just start him on a gluten-free diet? The doctor's opinion is interesting, but not actually necessary....
  9. ryebaby0
    We've all been in your shoes. Trust us when we say you won't always feel this panicked! No, my husband felt fine, thinking the occasional nausea, gas, bathroom issues were just related to particularly stressful days or food he'd eaten. He could eat and eat and was always tall and rather thin, but felt okay. We were all tested after our son was dx, and...
  10. ryebaby0
    Hi Jane ~ Diagnosing celiac disease can involve all, or a combination of, endoscopy, blood tests and dietary change. You are going to get a lot of "answers" to these questions because unlike, say --- diabetes---you don't simply run a certain set of tests and get a definitive "yes" or "no". Endoscopy shows characteristic damage to the small...
  11. ryebaby0
    Just out of curiosity, why do you think this proves he's intolerant? My son was a symptomless celiac right up until the time he was so sick (from the years of gluten exposure destroying his system) that he was hospitalized for 8 weeks, with no villi left.......
  12. ryebaby0
    As the mom of a 13 yr old (dx at 10) with various food issues and systemic problems, I feel your daughter's pain, and yours. It is a very hard adjustment and involves a grieving process. That being said --- she IS different, and might as well fold those differences into her life NOW; on the other hand, she isn't all THAT different and you shouldn't feel too...
  13. ryebaby0
    Well, there's no way she's going without you, and expecting her to manage food is not realistic, so their only choice is to take you too. You might offer to accompany her as an unofficial chaperone and pay your own costs. I too, have never had a problem; the schools have always picked the parents of kids by "Lottery" but somehow I (and a parent or college...
  14. ryebaby0
    We travel with a little grill, too..... ...corn tortillas, with Contadina pizza quick, mozzarella and (if he likes it) hormel pepperoni. Pizza quesadillas ! ... Genisoy bars (peanut yogurt flavor is gluten-free) .... Glutino pizza "bread" sticks with sauce for dipping .... Polly-O string cheese ...hot dogs in a thermos stay hot! Dinty Moore...
  15. ryebaby0
    Our worry is not about the labels, per se. How likely is it that manufacturers of "naturally" gluten-free products -- companies not marketing, necessarily, at niche consumers -- will add some negligible amount of gluten just to avoid the whole problem? I can see where the testing, etc. is not worth it to them, and mainstream consumers often veer away from...
  16. ryebaby0
    Just for reference: My son's dx tTg was 152 and it took 18 months for it to come to a "normal" reading. Your daughter just may need more time ...
  17. ryebaby0
    You'll forgive us all for asking --- but we've seen lots of people on the board who are "sure" they have no gluten in their diet, and it turns out they do. But in the way of eliminating any doubt, can you return to a very narrow diet and see if that helps? Another thought I had was a vitamin deficiency? Has he had a screen of basic minerals, etc ? Or a allergy...
  18. ryebaby0
    FYI I found a multi w/minerals formulated for teens (extra vitA, D, Iron, Magnesium and Zinc) i.e. the dosage is more than children's and less than adult. It's called OneSource Teen's and these are not chewables (my 13 y.o. hates chewables). Anyhow, I called and the company confirmed that they are gluten-free..
  19. ryebaby0
    My son was diagnosed via staggeringly positive bloodtests followed by blindingly obvious biopsy; my husband was diagnosed via equivocal ttg, amazing dietary response, and no biopsy. (So I just didn't know which button to choose!) joanna
  20. ryebaby0
    I'm also the celiac's wife, and I want to caution the two of you -- stop saying "I need to find out what he ate/drank/did " or "I need to cook him x,y,z..." HE needs to find out what he ate. HE needs to learn to cook some basic gluten-free foods (you know, like rice and chicken). Otherwise, he will be completely dependant on you, which is lousy for you both...
  21. ryebaby0
    Maybe your GI won't disagree with you, given the remarkable change in her health. And even if s/he does, in the end it's the decision you make. Certainly her life isn't endangered by the lack of biopsy, and if her pediatrician is convinced by her dramatic change, that's all the "medical" proof anyone should really need. Don't be afraid to disagree with doctors...
  22. ryebaby0
    My son was dx when he was 10, and I think he was in the 5% range for height (we won't go into his weight!). The year after his crisis/dx/hospitalization, he grew about 2 inches; the two years after that he has grown about 6 and is now in the 50% range for height, as tall as me at 5'4"and age 13.5. His celiac dx actually came after a dx of juvenile RA; it...
  23. ryebaby0
    With all the celebrating in December, let's see who has the best celiac disease-related story, just for the entertainment value. I suggest the following guidelines: 1. keep it to one paragraph 2. choose a category -- either the " guess what someone said about my food issues" , "guess what they tried to feed me" or the best "look what a nice thing...
  24. ryebaby0
    Good grief girl, you tell them! Or in three months when your head stops spinning, how will "and this is reallllly serious and important, but I didn't tell you at Christmas because it was a pain" go over? I would keep it simple. Call the MIL, say you've both been diagnosed, you don't know enough about it right now to be confident in educating her,...
  25. ryebaby0
    Goodness yes, I think we all feel overwhelmed and miserable from time to time! And of course, this time of year is one big food-o-rama for the "mainstream" world, and here I am, stockpilling frozen entrees to take to potlucks so my guys can sit and gaze at the "buffet of doom" (my son's favorite invented term) and hating the world of people who start ANY...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.