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ryebaby0

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ryebaby0

  1. ryebaby0
    The three I use the most: Roben Ryberg's The Gluten-Free Kitchen (I actually wore a copy out!). It's basic, but the recipes don't require a bunch of unusual ingredients, and that can be helpful at first! Incredible Edible Gluten-Free Food for Kids by Sheri Sanderson. A lot of family favorites that are already pretty much gluten-free naturally, just...
  2. ryebaby0
    RAST testing is more like a arrow pointing in a direction than a street sign with a name, if you get my drift. You can have an elevated RAST result and have no clinical symptoms (and are therefore not considered allergic); allergists usually rely on reactions more than test results. My son RAST-tested positive for eggs (while being tested for a bazillion...
  3. ryebaby0
    Of course you smile sweetly and take the gift! Just like you would with any other gift that's the wrong size/style/taste/etc. (And don't tell me we can return those, because we all know that returning things is a bigger pain....) Here is someone trying to do something nice, take it that way. If they ask later, you say "I would have loved to eat them, but...
  4. ryebaby0
    Yes,it profits them, since I assume these loyal customers are purchasing things. My point was if you want gluten-free labelling, we are the ones "responsible" for using our power through purchasing;it's not the FDA or some regulatory system or grocery chains. Little companies have a lot to gain. Big ones, not so much. (I myself am a regular at our local...
  5. ryebaby0
    This is a perfect example of why the FDA and food organizations are against labelling. My dairy can label my milk gluten-free because ALL milk (yes, ALL regular ol' nothing added to it like buttermilk) IS gluten free. But another dairy might not do that, and resent the competition and additional expense of "advertising" something that occurs naturally. So...
  6. ryebaby0
    Be hopeful! My son was tiny (less than 5lb) at birth, dx at 9 at the 8-10th percentiles and then fell off both height and weight charts. He is now, at 14, in the 50th for weight, and the 80th for height!
  7. ryebaby0
    Not to be the party-pooper here...but.....(and I have a son dx in 4th grade, so I'm sympathetic, and I work in an elementary school classroom). Tell him to get over it. Okay, not in those words but I would continue to let him have a stock of his own snacks, and eventually he will decide he's more hungry than proud. Unlike many children, our celiac...
  8. ryebaby0
    How long has it been? Sounds like DH is still in denial, which makes him human, not awful. That being said.... ...my son, as a gluten-ingesting undiagnosed celiac, began his crisis one fall. First it was limping, then it was joint pain, then came the NSAIDS for the rheumatoid arthritis dx, then the rapid and debilitating weight loss. Throughout all these...
  9. ryebaby0
    We had a similar miserable experience at a Red Robin near Harrisburg; we barely had time to start the usual "we need ...." talk when the server excused himself, and brought back the manager. Who said there's nothing here you can eat. Not the fries. We can't cook the burger special for you. I won't guarantee the food isn't contaminated by something else ....
  10. ryebaby0
    www.cokesbury.com has gluten-free communion wafers (I'm Methodist). Our church bought them, but I keep them here at the house.We have communion every month, so I go a little early and snag two cups of juice (Welch's)from the stewards. We bought a little cut glass covered butter dish (I think at WalMart, actually) and I squished fimo in one end and made dents...
  11. ryebaby0
    My son was dx when he was 9, and since you are overwhelmed already (perfectly normal! Get ready for SAD, that might be next!) we'll give you our short list of advice: 1. Tinkyada pasta. Eat lots of it. 2. Turn a cabinet into Gluten-Free Central. All our gluten-free pots, pans, strainers, utensils are in the same spot. All are the same color (Red, or...
  12. ryebaby0
    I know this one! There's a place called Harmony House that makes cheap, wonderful, portable dried veggies/beans/fruit for backpacking. It is EXCELLENT, affordable and versatile. Best of all for us, the packages are single-ingredient whole foods. They come in resealable heavy-duty plastic pouches; I've got 14 grams of dried spinach flakes here and it's...
  13. ryebaby0
    Your son sounds perfectly "normal" for his age, and no amount of holding him out will change his basic personality type. By the time his stature is an issue (for boys, that's middle school) there's no telling where he will fall in his peer group, and being small is not a defect ( My oldest in his class son was the smallest until this past summer, when he...
  14. ryebaby0
    Most major pediatric hospitals (not to be confused with the pediatric department of conventional hospitals) have at least one pediatric GI who specializes in swallowing/feeding disorders or dysfunction. They often have "clinics" i.e. offices in neighboring suburban areas. I would think you need to get in contact with whatever one is "closest" to you; closest...
  15. ryebaby0
    I know this thread has kinda run its course, but as the non-celiac spouse, I wanted to put in a last two cents. While I don't know your husband, and know that things are always complicated, I can empathize with his sadness over the diagnosis. While it might not be the ONLY cause, it might be the "last straw" cause. Guys don't like to feel unhappy, and pile...
  16. ryebaby0
    1. How often does your child get glutened? 2. How long do symptoms usually last? 3. Can you always identify where the gluten came from? 4. How do you help them through a glutening? 5. How long has your child been gluten-free? 1. Almost never (maybe 2x so far) , but my husband does a few times a year 2. about 2-3 days 3. Ha! Don't we wish!! Tends...
  17. ryebaby0
    Okay, the newbie survival kit was put together by nini, and the link is on her homepage (scroll down to the very bottom...) Open Original Shared Link Also, remember that as human beings, people have their own tolerances, thresholds, opinions, and viewpoints on many celiac issues. (enterolab's credibility being one, McDonald's fries being another...
  18. ryebaby0
    You are actually fortunate to have so many family members already familiar with it -- that could make things easier. The shock will wear off! But it's normal to feel overwhelmed. Anyway, my son was diagnosed with rheumatoid arthritis prior to a proper diagnosis of celiac; his ankles and hands were the most affected joints. Once he was gluten free, all his...
  19. ryebaby0
    Oh, now, I've been here longer than dirt ~ but thanks for the "welcome" anyway ... joanna
  20. ryebaby0
    Here in Central Pa there is a bakery called Gluten Free 4 Me which makes to die for food, and they do ship. The website is at: www.glutenfree4me.com The baker is a mom of several celiacs who started the business and they are soon moving to a much bigger facility, it's been so successful. Those of you traveling to State College for football season also...
  21. ryebaby0

    ARCHIVED Dining In Nh

    ryebaby0 replied to sedunk's topic in Gluten-Free Restaurants

    Just wanted to say that we ate at Rafferty's this June and it was fabulous --the food, the people, the food, the food, the food the people...... You really can't improve on ordering from a FULL menu from servers who already know everything about celiac.
  22. ryebaby0
    My husband was dx two years ago at the age of 42, only on the basis of blood tests we all had after our son was catastrophically ill and dx (eventually) as celiac. DH had very few symptoms -- he thought the occasional D, occasional gassiness was normal (his family has a wide spectrum of GI issues; none have tested postiive for celiac though) and it was a...
  23. ryebaby0
    " Not only do I worry about him touching the food but also how will he feel when the whole class gets to eat what they've made and he cannot? Even if they add something in that is gluten free I am sure it won't be everyday. " My son was dx only 3 years ago, in 4th grade. He also has some friends with food allergies from birth, and I want to reassure...
  24. ryebaby0
    My son's middle school has "Family and Consumer Sciences" class, which all 6th and 7th graders must take. This includes a cooking unit! We went in at the beginning of the school year, talked to the teacher, and made up some alternate choices. That year, the food unit concerned snacks and beverages, so he could have the smoothies they made, and most of the...
  25. ryebaby0
    Depending on which side of the lake you will be on, you might want to drive up to N. Conway and eat at Rafferty's. I posted a thread around June 24th or so about the place -- it's on Kearsage, across from the train station. Their daughter is celiac, and the menu is unbelievable. We drove an hour to have lunch, and after driving around Crawford Notch, went...
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